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Old 06-09-2004, 04:59 PM   #1
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Join Date: Jun 2004
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sickntiredtoo HB User
Post fibromyalgia or RSD? Need your advice! New member

Hello to all of you. I am so grateful I have found this outlet. About 5 years ago, I was dx'd with Fibromyalgia. I have taken every medication my doc can think of, including, but not limited to, Norco, Ativan, Xanax, Lexapro, Elavil, Flexeril, Skelaxin, and so many more. None of them seem to work. I take the Ativan for anxiety, which somewhat helps, the Norco for pain,(which I was on for over 3 1/2 yrs), I am now on Fiorinol with Codeine, I guess it is better than the Norco, still on the Flexeril (doesn't do anything!), and am on Remerol for depression (this one actually makes me feel better!!).

I am to a point where I can't stand the pain anymore!!!! I mean I can't stand it, but my doctor is done prescribing narcotic pain meds. I think he just thinks I am a drug seeker. I have gotten to the point of feeling hatred toward the man! I was told it is against the law in the state I am from, for a doctor to knowingly allow a patient to suffer unnecessarily, which he is doing as far as I am concerned.

I am seeing, for the first time a pain management doc at the end of this month and am hoping he/she will not let me suffer any longer. I am just not sure what to ask for. I have been considering the pump, but am allergic to morphine. I think there is a demerol pump, but have heard so many negatives on the pump. I don't want to become an addict, but don't want to live the rest of my life in this kind of pain.

Now, the doc, the one I hate, is telling me I may have RSD instead or along with the Fibro. GREAT! I am not even sure what this means! I just want to feel better. I am sick of being on so many medications, especially since I know this all can't be good for my liver. I was told by my PCP that all the Norco (vicodin) will only cause liver failure after a period of time. So, what do I do? Risk the need for a transplant at some point or just live with the pain? I know I can't live with the pain. It makes me cranky and I am just a miserable person, as a result!

At this point, life just sucks for me and the people closest to me. Will the pump be the answers to my prayers? And is it a good idea for me to ask the pain management doc about it on my very first visit? I am in Dallas, TX, so if there is anyone out there close to me, who knows of a good doc, please refer! I am not good at picking docs. I always seem to pick the jerks with no compassion!!!!

Sorry about the long winded post, just needed to vent more than I originally thought!

With sincerest regards,
Kristi (sickntiredtoo)

Last edited by sickntiredtoo; 06-09-2004 at 05:00 PM.

 
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Old 06-09-2004, 07:43 PM   #2
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Join Date: Feb 2003
Location: Tx
Posts: 1,125
Jenetti HB User
Re: fibromyalgia or RSD? Need your advice! New member

Im so sorry youre going thru all this sweetie. Sometimes it takes quite a while to find a combination of meds that work best on your body. It took years for me to get diagnosed, i mean YEARS. THEN i had to wait another year or so before we found the right combination of meds, because it was always, "give it some time to see if it works", "give it a few months". Well i think we can tell RIGHT away whether something is working or NOT. For me the combination is hydrocodone taken with soma (muscle relaxer). I take it 3 - 4 times a day. Plus elavil at night so i can get that deep sleep that is needed to recover from the day.
There were times i hated my doctor as well. Also the "pain management" doctor i was sent to, said i was too young, excuse me??? Im going on 50 next month, he said i was too young to be turned into an addict. Like i was going to abuse the meds. He said he could not prescribe any pain meds, only guafenesin and physical therapy. I thanked him for his"precious time" and said id no longer be seeing him. He had the nerve to say, im sorry, i dont know how you people can deal with the pain of fibro every hour of every day, he said, i know i couldnt be able to handle it. YET he expected me to be able to live without pain meds. I told him i would go back to my primary doctor who was sympathetic enough to understand the pain i was in. SHe is the one who prescribes me the pain meds. Says its best to take them everyday, because before i was on them, i would get into these vicious pain cycles that would take higher dosages of pain meds to control the pain and bring it back down to a tolerable level. This way its more of a maintance procedure so it wont get intolerable again.
I can understand totally hon. When others gripe about their headaches or a hurt here or there it bugs me. I try being sympathetic but inside its like you have NO CLUE what real pain is. Keep working on trying the different combinations of meds hon till you get the right one that works for you. DO NOT GIVE UP SWEETIE! Hang in there, im keeping you in my prayers. Trust me we have all been there.
Love and hugs,
Jen

Last edited by Jenetti; 06-09-2004 at 08:12 PM.

 
Old 06-10-2004, 06:24 AM   #3
Senior Member
 
Join Date: Apr 2004
Location: Fond du Lac, WI
Posts: 250
typingterror HB User
Re: fibromyalgia or RSD? Need your advice! New member

Hear you loud and clear. Unfortunately we are all passengers on the Titanic and are enduring this same frustration. It seems when you initially get meds they help for a short time and then you are back to square one. This trial and error is the pits, but a necessity. I am so glad you are going to pain specialist as they may have the answer. We are definitely not patient patients. I do not think anyone just has fibro alone as we seem to be blessed with multiple problems. Hang in there girl and keep venting here. Don't want you assaulting the doctors as then you will be diagnosed as a pyscho case on top of everything else. (TT)

 
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