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Old 06-12-2004, 07:21 PM   #1
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Beary Tired HB User
PAIN, PAIN, GO AWAY...Come again...well never!!

Well, I recently had a very positive ordeal with my DR. My husband kept telling me I should switch because my DR. would give me 20 tabs of this and 16 tabs of that and it was costing us a small fortune. I was all prepared to go into to my DR get the meds I needed for the month until I could see a R.A. and a Psychiatrist. When I walked in he could tell that I was not a "happy camper". I told him that I was tired of having every single pill I take analyzed (especially since 4 DRs have diagnosed me with fibro) and that I "was and have" been a very responble patient. I told him that I hurt all the da# time and he needed to help me. I also told him that I had made apt. with the Psychiatrist, and explained to him that I thought that that I felt, that he felt uncomfortable about treating my anxiety issues. Then I asked him what he thought about me going back to see the the R.A........slow down. My DR became my DR again, as if magic, I was issued a full month supply of meds and refills with a resonable schedule for visits. I finally realized....I am the client and when I did I think it worked out well for both the DR and myself. I vented about how I felt he had been treating me and he apoligied. I really like my DR and I am glad I don't have to leave him. He prescribed a new medication which he said can help block pain nerves, its called Tomax. I also on Pain Meds, Muscle Relators, Blood Pressure Med (Mitro Valve is Messed up), and Anti-Anxtiety Meds. Each of the the above are low doses but enough to ease the edge of the pain. I also need to be refitted for my CPAP for the Sleep Apnea and he is talking sending back to the Ear, Nose and Throat Speacialist because I keep getting these reacurring ear infections. He's thinking tubes. I in my 30's I thought tubes were for children but I recently got my second case of chicken pox too, so whatever. I am just proud that I stood up for myself and I got to keep a DR that I really do like.

Have a Great and Pain Free Day my Friends!!!

 
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Old 06-13-2004, 06:38 AM   #2
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typingterror HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

I am proud of you. Thanks for reporting something positive. It goes to show that once in awhile miracles do actually happen. May you continue to get good medical treatment. Right now I am real happy with my rheumatologist even though road was long to get there. (TT)

 
Old 06-13-2004, 10:14 AM   #3
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taurus3 HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Good for you BEARY! I remember reading posts awhile ago where you were frustrated with being treated like an addict. Plus it does add up moneywise. Doctors forget that we have to pay a copay even for one stinking pill, that is if your'e lucky enough to have insurance.

I too had a positive experience with my doctor awhile back. I have been seeing her for over eight years but after I became disable, I kept feeling like she didn't believe me or thought I was a hypochondriac. So finally after 18 months I went in with the attitude that I was confronting her and if I didn't like what her answers were I was firing her.

So I told her how I'd been feeling and asked her flat out once and for all "do you think this is all mental?" She admitted that sometimes she wondered if there was something more going on in my brain that I wasn't aware of that could be making me worse. So I offered for her to talk to my shrink who I knew did not consider me psychosematic at all. She spoke with me, spoke with him and ever since then she has been my champion. She gives me whatever I need that she thinks will help. She fills out the SSI paperwork and is completely supportive.

That old saying is true "you don't get what you don't ask for."

I'm glad to know you have a more reasonable prescription plan now and a better feeling about your doc. We really need that as chronically ill people. I think sometimes doctors go into medicine because they want to cure people and when they can't, they don't know how to deal with it.

 
Old 06-13-2004, 11:23 AM   #4
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mollymadison HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Oh my Goodness! I wish I had the courage to stand up to the Dr's. I just want to go in there and say "I need your help. I need pain management. Are you going to give me that or should I go somewhere else." and I mean none of this 10 or 15 pills. That doesn't work. We DO have to pay a co-pay everytime we get a Rx. Also, when I call for a refill, they suggest aleve. ALEVE is not working! @#$% I'm calling because the pain is severe! Then they act like I'm an addict! Please someone give me some advice! The rhuemy didn't even call me back after 3 messages from Thurs to Fri. So here I am hurting without anything to releive it. I have appt with PCP on Tuesday. HELP

 
Old 06-13-2004, 11:35 AM   #5
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typingterror HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Mollymadison, when I was not receiving doctor's attention/treatment I felt like throwing myself on floor and foaming at mouth to get immediate treatment. Of course, I did not do this as I would have probably broken a bone or be wearing a strait jacket now. After I read fibro book I did become more aggressive with doctor as we have to look at situation that we have hired them for a job and we would surely not accept inferior work had we contracted someone to do work on our home. Thus it is our duty to fire someone who is not living up to their end of the bargin and find someone competent. (TT)

 
Old 06-13-2004, 09:29 PM   #6
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taurus3 HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Hi Molly,

Thanks for all your other kind replies as well. I'm glad some of it gave you hope. It makes me feel needed and valuable.

I am 35 and it's taken me literally 20 years of dealing with lupus and fibro and the doctors that treat it to get up the courage to be confrontational. You don't have to be in their face about it. Just be human and try to appeal to their humanity. When I talked to my doctor I refreshed her memory of all the things I was involved in before having a child and how well I dealt with the pain. I assured her that all my dreams and ambitions were still intact in my heart, I just didn't have the body to deliver them and needed help to get it back.

How old are you Molly? I'm sure you mentioned it at some point but I too have brain fog now and then. I'm only asking because it might help to know that as far as how to deal with the doctor.

Just remember, they are human, they are paid by you and they can all be easily replaced. You might try telling your PCP that you can't function with your pain level anymore and you need real relief. Tell him/her that you have been researching fibro and talking with a support group (us) and found that most of us are on flexaril or soma and Hydrocodone (codein). Not large doses but a small daily dosage which allows the body to release the muscle spasms and cramps and relieve the pain enough that you can function and keep moving so as not to lose mobility. Most of us seem to take one soma or flexaril at night and one or two codeine during the day. This is not enough to make anyone an addict and if it helps you great.

If you find you need more that's ok too but if you can get the prescription as a trial from your doctor and prove that you can be responsible and that pain relief does help you, maybe he/she will be more cooperative.

What I've found after being on it for awhile is that once my body is in a state of management, I can go a whole week sometimes without needing either drug. Then when I have a bad flare I have pain relief. My doctor knows that I may not take anything for five days and then take 3 or 4 codeine throughout the day if I'm bad off.

It's all so ridiculous really because they give you enough pain meds to knock out a race horse for something like a root canal.

I'm not on meds now because of the baby just so you know.

I hope that helps. Good luck with your doctor and I will check the boards before Tuesday.

 
Old 06-14-2004, 11:12 AM   #7
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Beary Tired HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

I saw the bill that has been submitted to my insurance company minus my copay it was $175. nice chuck of change...bling, bling!!! I know it took me a long time to stand up for myself but it took the DR a long progression of easing into a pattern of this. I would have fired him on the spot if I knew that I have fibro and he offered me Aliev or Advil or anything less than something I knew would cut the edge off this horrible pain. You can buy those meds yourself. I will tell you what gets my DR attention real fast when I tell him that the pain is enough that I will go to the ER. Then he knows your serious. If your DR can not provide you with more then with what you can do for yourself, you have NOTHING to lose, maybe you could gently remind him of that. I just hate this DA# illness!!!

Today is the day you should stand up for yourself, it feels really good!!!

Have a wonderful and painfree day!!!

Last edited by Beary Tired; 06-14-2004 at 11:14 AM.

 
Old 06-14-2004, 05:26 PM   #8
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mollymadison HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Thanks eveyone!

Taurus-I am 30 y/o female that was just diagnosed. It started in my feet and eventually worked its way up to my legs and then my back. Before I knew it, my whole body was consumed. I went to the ER twice in one week. The first visit came out with liver imflammation. The 2nd visit, the Dr immediately said it's fibro. He could tell by the pressure points. The pain is more manageable now I would say. At first, I couldn't think of anything else. This was coupled with severe nausea, diarrhea, chills, and sweats. The first Dr. gave me Vicoprofen for the pain. The 2nd Dr gave me nothing. Said to take anti inflammatory like Advil. Yeah Right! I was already taking Vicoprofen for migraine headaches. It's the only thing that works. I now have to convince one of my Dr's to get me back on that medication. I know what works and that's the one thing that does. My Rhuemy put me on ultracet. I had some of that over the weekend and it seems to take the edge off the fibro pain but, does nothing for the migraine I had this weekend. It really does nothing for my headaches at all. So I will talk to my PCP tomorrow. Hope all goes like I want it to.

I have really learned alot from the boards here. I especially like your entries because they are so helpful.

Thank you so much!
Molly

 
Old 06-15-2004, 09:59 PM   #9
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taurus3 HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Hi Molly,

I asked about you age because that can influence how doctors deal with their patients. But at 30 you shuldn't be having any of the rationalizations they give you when you're say, 20. You know, eat better, exercise more, your just depressed, blah blah blah. My Mom is bipolar so I understand what a full plate you have.

So next time you go to the doctor you tell him/her that you are a 30 year old wife and mother who has managed to care for yourself and family all these years. You have a real illness with real pain and you need real help.

I'm pooped, had a bad day with my toddler yesterday and hurt myself. I'm not supposed to be picking him up at this point but I had to put him in baby jail (the crib) or I was going to lose it.

I look forward to seeing you here too! Andy

 
Old 06-22-2004, 06:55 AM   #10
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PapaRoux HB User
Re: PAIN, PAIN, GO AWAY...Come again...well never!!

Hi--

I've had to do the same thing---complain to the doctor and get on an equal footing with him. Like you said---we're hiring them, not the other way around. I've had some bad experiences with doctors, as I'm sure many have, but finally I found one that treats me right, gives good meds and brings me in for physical exams/blood on a regular basis.

The last doctor I had pretty much dismissed me with a wave of the hand like he just didn't care.

Ed

 
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