I am heading to a Pain Management doctor on Tuesday and hoping he will be able to help me with this terrible pain. Over the past 6 mos. I have been seeing a Rheumy and she spends more time (20 - 30 minutes) with "Med" reps. Each time I have everything written out, daily pain, diet, sleep, stress, etc. I keep it precise and to the point in a few paragraphs. She will quickly glance at it and sat it down everytime. Really not paying attention to it and than ask me to tell her what is going on. My belief is the paper method saves time as opposed to trying to verbalize, especially when "fibro fog hits." Usually my visits are on the same day as Mr. Rain hits!! You see her every 6 weeks and it's so frustrating to be wisked in and out with no real assistance. Basically a wasted trip. She of course would not think of sitting down and when she stands over you with her foot tapping....you get the distinct feeling you are being rushed for the next patient. She insist on doing pilates and you will get better. Medicine, oh you are to young. (I am 47, not beyond years...but not 12 either.) Get plent of sleep she says, ahh yeah right, that is not something that comes easily these days. Well than go to bed earlier than 10pm. I don't fall asleep until 3 am and get up at 5 am ....the pain is terrible with no sleep.
Anyway, my question is.... has anyone else experience similiar and had a pain management doctor help you? I'm keeping my fingers crossed.
Also, any suggestions on what to ask a pain management office? I have all of my film xrays, etc.
Thanks to any of you for your assistance.
Last edited by waiting4acure; 06-13-2004 at 08:43 PM.
I'm right there with you! I'm also wondering if I should go to a pain management Dr. It doesn't seem like my Dr's are going to work with me on managing my pain, at least not with medication. And sometimes you just need the meds. I would also like to learn the other things to help with the pain but, sometimes I can't even get out of bed. Of course, I am new to this disease or whatever you want to call it but, I'm already sick of it!!!!! I don't want to feel bad and some time I'm going to have to go back to work. The only reason I'm off now is due to my psychiatrist. The Rhuemy and PCP would not write a note to be off let alone complete the ST disability papers correctly.
Anyway----I would also like to know what to expect.
Hi ya'll! I just wanted to reply to the Pain Management question. It was about 1 1/2 years ago that I was referred to my Pain Doc. The referral was for lower back pain and the end result was an MRI showing yucky things in my lower spine. But anyhoo, I told him about my Fibro and the man couldn't be more than a blessing. Now granted, I have other things going on besides the Fibro, but he has helped me tremendously. He fills out any forms I bring him for my social security application ( which by the way, seems to be misplaced for the time being, and isn't THAT fun! ). He recently filled out a form declaring that I was inable to work so that I can work on getting a student loan discharged. He works with my meds. I recently asked him for a pain med that was time released and he prescribed me Oxycontin. He also offered something else incase I was afraid of becoming addicted. I said that I didn't think people who really suffer from pain get addicted. He is going to give me OCC block at the base of my neck to help with tension headaches. Gee I can't imagine what would cause those! He said I wouldn't have a headache for 2-3 months. I also asked him about a procedure called Radio Frequency (sounds funny, I know) for my back pain and sciatica, and he said he'd do it for me.
So, I guess what I am saying after all that, is that going to a Pain Doctor has been the best thing that has happened to me, since I literally "fell apart". He is very supportive. I think Pain Docs understand pain, and are solefully there to see to it that you suffer from as little pain as possible.
I will be interested to hear how your appointment went. And if someone out there doesn't have a Pain Doc, see if you can get a referral. All you need is a foot in the door. And as far as what to ask. Don't ask at first, just TELL him/her EVERYTHING that hurts, and try to describe the pain specifically. Like burning, stabbing, achey, etc.
I was wondering about this myself. but I cant understand how they can help me with the pain part. will i have to go to thereapy 3 x a week , and will try keep trying different things on me, til i get so frustrated like the others?
or will they try that relaxation crap? yea relax, HA i hurt, and they want me to relax
My rhemy doc really explains things to me, but seeing him every 4 months with gunea pig pill, makes it seem like a waste.
and my family dr gives me the pain pills, for fibro but mostly for my 2 past back sugeries.
I am looking forwarded to here how it goes too. I hate going to a doc whose just going to TRYYYYYYYY things.. grrrr
I saw a neurologist who said even though i cant sleep in rem 4, the pain is really keeping me awake too and suggested pain management..
I dont really want these temporay shot either, it works for a while but when it wears offf OHHHHHHHHH the pain feels worse..
I wish you luck at your appt and hope very much they can help you, that would be wonderfullll
To my husband! I have my first rheumy appt in a week- referred by my doc ( a GP). I think he is only referring me because we are going on 2 years of pain meds together and I think that makes him nervous! My DH was wondering why I wasn't more positive about this idea,"maybe this doctor can help you"...or maybe a pain management center. I told him all the questions you just asked! I DON"T want to be a guinea pig! They don't know what will "cure" me at all..they don't even really know what will help this illness! You can tell that just by reading a board like this and seeing the variety of different drugs and protocols we all try! I don't want to borrow trouble...but I HAVE done my research...and I KNOW there is not a cure...I don't have other symptoms other than the classic fibro ones....and they can't fix that...SLEEP, EXERCISE, EAT WELL and pain meds when needed....Isn't that the drill?????I am not sure then why I need to see multiple doctors and try multiple drugs??? Cynical yes...doubting yes....but, I will go, and cross my fingers that this isn't a waste of my time. One thing that I do know...this doctor will NOT be running all sorts of tests on me! I DID that already!
Good luck at the pain clinic if you decide to go...I hope that you find a doctor who is on your side!
My primary doc sent me to a pain management doctor for spine problems. He did get me a tens unit, which helps alot. But he also diagnosed me with fibro, which i knew i had since my primary doc had diagnosed me with it two years prior. I was just going to him for the spine problems in case i needed those shots they give you in the spine.
Well, he said i wont give you any drugs for the fibro. I know fibro is very painful and i couldnt go thru every day what you people go thru. But i cant and wont turn you into an addict as such a young age, (excuse me, im turning 50 next month). He said to my fibro patients i recommend pilates, yoga and guafenesin. I said thanks but no thanks, i'll still to the drugs im getting from my primary doc who seems to understand what im going thru and has more compassion than you.
She gives me hydrocodone, plus soma, prozac and elavil. Those are the drugs i take for the fibro and ive been on the same dosage for over two years proving i dont abuse or misuse the meds. So that was MY experience with the pain management doctor. Like i said he was able to get me a tens unit for my spine, after that i no longer see him or even have a desire to. My primary doc takes good care of me.
How disappointing!!! Honestly, my first impression upon walking in was, "No patients?" The room was empty and I thought that strange because it takes so long to get in with a Pain Management Specialist.
I came prepared with a very brief summary of the medications I am taking now, the past and what didn't and did work. A run down of my treatment/doctors over the past 2 years. Now remember, it was precise and to the point. The minute he/Dr. walked in he was reviewing my chart and the my notes....the first thing out of his mouth was, I have a friend who is a doctor and just got sued for over $10,000 as the patient accused him of addicting him to medication. I will not give you anything "strong." He noticed Oxycontin from 1 year 10 mos ago and said, "Are you coming in here asking for this, because if you are, I will not prescribe it." Before I could speak, he want on to talk about his doctor friend who may end up in jail. Here I sat in terrible pain, ready to cry. I had waiting for this appt for mos and I was dealing with a, in my opinion, quack. I'm sure there is a more appropiate word, but you can't say that here. I said, if I was here to get Oxycontin I would have gone to a Neurologist who prescribed it over a year ago. I came for help with this Fibromyalgia and you are making me feel I am only here to get a medication for "recreation" purposes. He said, the first thing you need to do is aerobics. Not the gentle walk around the block, brisk dance, jazz... etc... I said, I do stretch and I do walk, but when I am in terrible pain how do I do what you are suggesting? Also, that would send me into a flare. He said, no, stop babying yourself. He than wrote a prescription for Vicoprofen. I said, as per my list that doesn't work for me. He said, well try it again. I said, maybe because it was the generic form? He said, there is no such thing as generic for this. I said that there was because it was prescribed to me. He argued and wrote the prescription. Granted, I realize that most Name and Generic work in the same way, but there are some that the compound is weaker. When I got to my car I called CVS. Sure enough, I was correct. Oh yes, one other thing. Towards the end he suggested trigger point injections. I said, who will be doing them? He said, me. I said, today? (Not that I was going to let him after this nightmare appt, but I wanted to see what he would say.) He said in 4 weeks and that his regular office is in MD (this was in VA) and I would need to call the receptionist the day before the appointment to have her remind him to bring the medication with him the next day.
I am so dissappointed!! After 2 years of suffering with this....I feel like I failed in finding this doctor who was not compassionate or caring. But, I will not go back to him. Now to start all over again.... ) : I guess there are all kinds ....doctors....out there. Thanks for caring everyone!
OH WOW sweetie, sounds like my doctor. He kept hubby and me waiting in the room while the nurse kept coming in and making excuses for the doctor. Oh hes in the other room he has an emergency. EMERGENCY at a pain management clinic?? We waited for about 30 mins then (since i had waited for over a month for this appt) I got up and was gonna go complain when the door FLIES open and he runs in running like Kramer from the jerry show, even the little slide kramer does, i mean it, hon and i looked at each other and just laughed.
My first reaction was, uh oh, THIS is the doc ive been waiting on???
He also stated no strong drugs, i have a friend who so and so and so, i also know other doctors if you want strong drugs i can give you their names. You go to THEM for the opiates. I told him i wasnt there for drugs, but for help. HE also went on with the pilates, yoga , exercise bit. I swear. I thought pain management docs were suppose to "take the pain away or at least help you with it". This guy just wanted us out of there with exercise plan and guafenesin which hasnt even been PROVEN to actually WORK yet. Never again. If i do go to another pain man. doc it sure as hell wont be him.
Waiting, and Jennetti, YOURS are the stories that make all of us wary!! I know there are hundreds of doctors out there...and some are good and caring..and some are callous...but geez, I get hestitant to even GO to someone new...On the other hand , as I read stories like yours...it gives me the strength to walk out on any doctor that told me first off what he/she WOULDN"T do for me. Wishing you both better successes and treatments!
Thanks! Appreciate the support. When you run into doctors like this, the support is so welcome I do know there are good doctors out there....just like everyone tells me....there are good men out there...he he he. (Divorced)
One thing I forgot to mention...when the doctor came in his cell phone rang several different times. 3 of the times it was his office in Maryland. The "assistant/nurse/recept" once asked if he remembered to fill a prescription, another time, your wife called to remind you to bring dinner home and the other to see what time he was heading back to Rockville. I know I should have just got up and walked out, but when you wait so long for relief and take several hours off at work....you walk away frustrated and upset to start all over again. (How did I know what the asst said? He had the cell phone volume up so loud you couldn't help but hear.)
I still hear that Pain Management is the way to go...so I am not giving up. Does anyone know of a good Pain Management in or near Northern VA?
There are days hon that i say to myself (i mean level 8 or 9 pain days) that at this point im about ready to go back and say you know what doc, give me the names of those docs who hand out the opiates. I have a life, that is worth living, and should NOT have to live that life in severe pain everyday for the REST of my life. I dont care at this point WHAT you think of me, whether you think im an addict or someone wanting to get high. Your opinion matters NOT to me at this point. Im hurting, my whole family knows im hurting, im not upstairs crying my eyes out cause im ******* bored and have nothing better to do. SO go ahead, tell me their names. Let me deal with them directly.
If i become "addicted" to the drugs, then at this point i really dont care. If it takes the pain away so i can enjoy life like a normal person then WHY does it matter if i become addicted?? At this point of my life i will be needing meds/drugs for the REST of my life , we both know that, sooooo where does the "addiction" part come in??? That part i dont understand. It's not like this thing, monster is going to go away. IT will only get worse and will be with me for the rest of my life. Do you think the number one thing in my mind is getting "hooked" on pain meds?? Hell no, i want to be able to go out to dinner with my family, or a movie, or down to austin to see my son without showing pain in my face. Id like to be able to sit across the table and laugh with them again without having to see their eyes checking me to see how much pain im in and watching them worry.But these damn doctors dont know pain and have no compassion whatsoever. Theyre in it for the money and nothing else. I dont hate easily. But i have to honestly say im starting to hate some of these doctors. I just wish id find one that would be compassionate (pain management) and wouldnt be a coward when it came to prescribing stronger meds. Right now, i just thank GOD, that my primary doc which is a woman is the one who takes care of me and prescribes the hydrocodone and soma, and elavil and prozac and is the one who treats my fibro. I don't know what id do without her, she is truly and angel.
Good luck to all of you with the pain management clinic. I loved the Seinfeld reference Jenetti. I'm so sorry you ahve to fight so hard for care. It's the same everywhere. We don't even have a pain clinic here because the medical community ran them out five years ago thinking they were pushing drugs. I live in a small area (about 100,000) that is very fundementalist so they are paranoid by anything non-traditional.
I get so sick of hearing the exercise speech. I feel like I need to have someone come and video tape me for 48 hours to show that YES, I REALLY AM DOING THE YOGA AND PILATES AND WALKING AND MOVING AND STRETCHING! It's like they just don't believe you.
Luckily my doctor knows me and what I do. Bu tif I have to go see anyone else it is a major stress situation for me because I know they are going to judge me unfairly.
I thought about all you poor gals suffering with pain this morn as I typed a report for large Chicago hospital from Pain Management Clinic. They actually have patients sign a contract when prescribing narcotics which was first time I have ever heard of this. I guess this is one way to cover their butt and stop treatment on patient who abuses medication per contract. It might be worth while to ask about signing a medication contract just to see what doctor says about this approach. Who knows it may work as you really have nothing to lose? (TT)
Ask your doctor about prescribing low doses of amitriptyline (a tricyclic antidepressant). Sometimes that works for people, but it can have nasty side effects and should only be used in small doses. Also, for better or for worse it can make you sleepy. Also, pregabalin should be on the market in Europe soon, so if you can find a place to order it online, I have heard it is amazing. (Made by Pfizer).
I saw my FM doc last week (a rheumatologist) and I asked him if he could give me nerve block injections or trigger point injections. I asked because he is my 'pain' doc, as I've had bad experiences with pain management places in the past.
He said that nerve block injections wouldn't work and that in my case he'd have to inject my entire body's trigger spots---all of them. So--he ruled that out, too.
He gives me exercises, meds and just plain old good advice.