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Old 06-21-2004, 06:20 PM   #1
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taurus3 HB User
Leg Weakness & Falling Down

Hi Everyone,

What a bad pain day I'm having. We had a storm move in so of course I'm all torqued up.

I have a special request for info from everybody. My Mom also has fibro and lupus like me along with diabetes, bipolar disorder, etc. Lots of extra stuff.

She has the problem with fibro where her legs get weak and go out from under her without warning. There is no associated dizziness or fainting so it's just her legs crumble and then she falls and hurts herself. This has happened about once a month or so for over a year now. With the disc degeneration in her back I'm worried she'll break something they can't fix.

I know some of you have talked about a cane for added balance. Have you found anything else that seems to help? Are any of you on specific medication for the muscle weakness problem?

Any info would be greatly appreciated. It's hard because right now I'm in worse shape than her but since I'm the daughter and she's the Mom I wish I was better so I could help her more.

Thanks everyone!

 
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Old 06-21-2004, 07:51 PM   #2
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mollymadison HB User
Re: Leg Weakness & Falling Down

Hi Taurus!
At the beginning of this flare up when I first got Dx'd, my legs were so weak I could hardly walk. I had to have my husband help me in and out of the tub. But, luckily I have never had them fall out from under me. I hope your mom gets better.

On another note: I also have bi-polar with severe depression right now. I did not know that you also have it.

 
Old 06-21-2004, 08:18 PM   #3
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Ajijaak HB User
Re: Leg Weakness & Falling Down

Hey, Taurus -

"Torqued up" - man, is that ever the phrase for it! Happens to me when the weather changes, too.

I still have episodes - usually when I'm fightin some other bug or in a really bad flare - where my balance is off. I've fallen in the shower a number of times - fortunately, nothing more badly injured thus far than an incredibly painful elbow (nerve included). But before I was DX'd (but it had become apparent that something was terribly wrong), I had a much greater problem with ataxia. In my case, it usually manifested on the left side, feeling as though the entire left side of my body were dragging, although nothing was visible to others.

I've never been prescribed a drug or supplement that deals specifically with the balance problems, but I know they're out there - her rheumatologist should be able to offer some options. And if none of those is workable - contraindicated or whatever - the two things that *do* alleviate it somewhat for me are the two drugs that alleviate all of my symptoms to some degree: Ultracet and Adderall, preferably at the same time. They don't work on balance per se, but when the Ultracet has my pain under control and the Adderall has my fatigue under control, I find that I'm MUCH steadier all the way around.

Incidentally, I sympathize with the ill-parent problem. I moved here to take care of my parents six months ago - Dad, 80, severely advanced Parkinson's and heart disease, among a gazillion other problems; Mom, almost 75, triple bypass last November and now greatly heightened risk of stroke. Needless to say, she's no longer able to help him, and there are a great many days when I'm picking him up off the floor - full dead weight. And I'm still not as helpful as I'd like to be, because my own health so thoroughly sucks. So, now that I'm done venting ( ), feel free to use me to vent if you ever need it!

Ajijaak

 
Old 06-22-2004, 07:39 AM   #4
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PapaRoux HB User
Re: Leg Weakness & Falling Down

Hi Taurus--

I use magnesium for my leg problems. Supposedly they work to strengthen the muscles. I've been on it for about two months now and it seems to help.

Ed

 
Old 06-22-2004, 09:22 AM   #5
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taurus3 HB User
Re: Leg Weakness & Falling Down

Thanks everbody, I'll pass that on to Mom. I think I had a confusing sentence up top. I have lupus and fibromyalgia. Mom has both of those too and diabetes, bipolar disorder, etc. Ugh my right side hurts today. I had some acupuncture last night and it really helped but I'm still dragging. I'm getting a haircut today though if it kills me.

The acupuncture fells really amazing when they get in some of those trigger points. The spot in my hip/buttock that everything seems to radiate from feels like a little electrical shock when the needle goes in. And then RELIEF.

Too bad I can't walk around all the time with needles sticking out of me.

HAve a good day - Andy

 
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