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Old 06-22-2004, 08:20 AM   #1
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PapaRoux HB User
Bad Day

Hi--

Since nobody else will listen I just wanted to tell the group that I feel like someone took a baseball bat and clubbed me all over. I feel that bad and have nobody to tell. But since I had to tell someone---it might as well be here where people understand.

I wouldn't usually post like this, but I'm at my worst today and it's anxiety provoking. I did too many weekend activities and am paying for it now.
I just feel like I can't do a thing today---even walking the dog.

Even the bottom of my feet hurt. I can't sleep during the day, so I'll have to gun this one out til bedtime. I pick up my pain meds at the pharmacy tonight, but have some for today. Hopefully I'll start to feel human again by tomorrow.

I just can't stand the fact that sometimes I have to act 'normal' just so other people don't run from me. My past experience with friends has been that when I've told them how sick I am---they just don't want to here it and just stop calling or caring.

So--I try to be as normal as possible, but I eventually crash hard and heavy like today. I don't know how I'll be able to do anything and that's been raising my anxiety level. I don't even want to answer the phone.

I know this will pass, but how long it will be this time---I have no idea.

thanks for letting me whine.

Ed

 
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Old 06-22-2004, 09:29 AM   #2
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Ajijaak HB User
Re: Bad Day

Oh, God, Ed, I'm so sorry - I know exactly how you feel, both physically and in terms of friends not wanting to deal with it.

I think we all tend to overdo it on the weekends, too - I did. Here, we finally(!) have a potential storm front moving through, and the temp has dropped from 103 to 69. It's gray and - for here - humid - and while I'll be SO glad if we get some rain, my body is screaming at me. I think it was Taurus who used the phrase "torqued up" in a post last night, and that's really what it is.

A couple of suggestions:

First, DON'T answer the damn phone! You don't feel like it, and it's *your* phone, to answer or not as you please. Turn the ringer off, turn down the volume on the answering machine, pop in a video or turn the TV to something indulgent, pop as many pain pills as you're allowed, and try to forget that the outside world exists, just for today. "Normals" don't want to be bothered with dealing with FMS, so why should you be bothered with dealing with them when you're in a flare.

Second, do you have a heating pad with a massage function? Soemtimes that really helps the bottom of your feet. If not, get one of the dog's tennis balls, sit in a comfy upright chair, and put the tennis ball under the ball of your foot. Then roll it around under the foot, pressing as firmly on top of the ball as you can stand. Start with the ball of your foot, then move under the arch, then back to the heel. Five minutes per foot helps keep me from getting shin splints and stress fractures (I'm very prone to both) during my workouts.

Third, even if you do hagve the massage pad, maybe use the tennis ball anyway for the feet and use the pad for body. If you don't have one, I highly recommend getting a multi-setting heat and massage seat cover. It set me back 100 bucks, but when I had to drive 2000 miles out here last December, I don't think I would have made it without the seat cover. Brookstone has them on their Web site; they're designed for cars, but can go in any chair, upright or recliner. Mine has heat and ten massage settings, stretching on a car seat from top of head to knees. And when I'm really in massive all-body pain, or my legs are beyond myh ability to cope with, I lay it down on the bed, leave the heat setting OFF, and use the massage under my body and legs for awhile. Just the sheer vibration helps block some of the pain.

Finally - and I have done this when I was really desperate and had no help! - next time you go to the pet store, invest in a package of puppy training pads. (I think it's about six bucks for a package 56, or some odd amount like that.) That way, when you have a day when you can't take the dog out, you can put them down on the kitchen or bathroom tile. The dog doesn't suffer, nothing gets damaged, and cleanup is just grabbing the edges of the pad, folding it over, tossing it in a trash bag, and throwing it out.

I don't mean to tell you anything you don't already know, or have tried and found doesn't work for you. But I know how hard it is when you can't figure out any way to deal with a flare, and I just try to give people as many things as possible that I've found over the years that might work. And keep venting to us - at least you know we get it!


Ajijaak

 
Old 06-22-2004, 09:52 AM   #3
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PapaRoux HB User
Re: Bad Day

Hi Ajijaak--

Thank you for the suggestions. The only things I do have are the 'puppy papers' for the floor. I use them if I'll be going somewhere overnight where I can't bring the dog.

I have an icepack. The heating pad broke, so I've been using a massive ice pack for the back. I'm not sure it helps.

I also have the tennis ball and have been using it, but as to your other suggestions---I will take them. Thanks for offering them. You were one, if not the first one, to welcome me to the group and I really appreciated it.

The heated massage pad I had looked for at Bed, Bath and Beyond. I think I might go for the $75 one. Also---have you heard of the 'Cuddle-ewe' mattress cover? I was going to invest in one, but my wife said it would make the bed too hot.

I'm definitely not using the phone today...yes, I just turned it off. And I'll just take the pills and like you said: don't even deal with the outside world today.

I'm aggravated at myself for going along with my wife's plans for the weekend.
I very seldom tell her I hurt, so I ended up in the casino with her for two seperate days--Friday and Monday, with hospital visits to her mother in-between. I never got a chance to rest right.

During the day I usually am alone with my dog. I got SSD when Lyme Disease attacked the body---it got that bad. Since I've been working since a kid (getting working papers I was so young) and putting in a good thirty years makes it easier on finances with the monthly check. I am so grateful I have it.

I was looking for some of your posts, as you've been so helpful to me I wanted to read some---just to get more of an edcuation on this disease.
It really is awful.

Thanks again, Ajijaak.

Ed

 
Old 06-22-2004, 10:40 AM   #4
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foxwalker HB User
Re: Bad Day

[SIZE=2][COLOR=DarkRed]

Hi Ed

I do hope you get yourself alot of rest today you know that you alway puch yourself to hard to be normal and then pay for it so I am here to bug you lol,now relax and don't do anything today but relax those muscles !!

Hugs Franny

 
Old 06-22-2004, 10:49 AM   #5
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PapaRoux HB User
Re: Bad Day

Thanks, Franny. I'll take your advice because today I feel like one of the walking dead. And I know you aren't feeling well and have been in bed---so get some shut eye and I hope you bounce back soon.

You're really lucky with your daughter.

Love,
Ed

 
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