I called my Rheumy this week saying I had not been able to get out of bed without horrible pain and had fallen twice but received no call back but did get a letter telling me about my bloodwork (anemia and low calcium but SED rate normal) and saying I have osteoarthritis in my knees and fibromyalgia-like syndrome. So since I can't get into see him for another month I made an appointment with my primary care doc. When I got there she sent in a nurse to write me one more prescription (2 weeks worth) for vicodine and had the nurse tell me that she (the doc) didn't know all that much about fibro and wouldn't write me anymore pain meds I would have to get them from the Rheumy. She wouldn't even see me to answer the questions I had (I had come with some printouts from the fibromyalgia association and wanted to discuss my options). The nurse asked if I wanted to have any bloodwork done and I started crying and said not right now and just walked out with tears rolling down my face. No one bothered to stop me or ask if there was anything wrong. Well, I came home, crying all the way, and then called and left a message on my docs voice mail saying that I would be looking for a doctor who could treat the whole me but that I thought they should never make a patient feel so belittled again. Of couse she didn't call me back.
I am just so frusterated with them all. The Rheumy doesn't think it's all that serious unless you have Lupus too and the primary care doctor just doesn't seem to care. And I am just feeling even worse than before. When the primary care doc thought it was Rheumatoid Arthritis she was all for helping me but since its Osteoarthritis and Fribromyalgia-like Sydrome (and exactly what does that LIKE mean) I'm not worth even seeing during my appointment time.
I guess I need a new doctor now to help me manage through this pain I have from the tips of my toes to the end of my nose. I'm taking two Vicodine ES every six hours and barely making it and living in a fog. Anyone know of a good doc in Dallas?
Just wanted to tell you that I compassionately relate to your frustration(s); and the crying episode that lasted from the "doc's" office to your having arrived home. Been there a few times, and became angry enough to fire them on the spot...told them why I was firing them, w/staff within hearing distance (small offices),and then when I got into my car I cried. It's to the point where I'm exhausted searching for help. I do understand how you feel.
Sorry, I don't live in Dallas and so I cannot recommend anyone. I wish you luck in finding someone who cares about their patients. Please post with updates; I'm interested
Thank you so much for the words of advice. Sounds like we are going through many of the same problems. [ removed ] Thanks so very much. Good luck to you and all of us as we take this journey. Its great to have a support group like this board.
Last edited by moderator2; 07-14-2004 at 08:15 AM.
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I live in the Dallas/Ft. Worth area. I recently discovered a Dr named Stanley Cohen. He Dr's out of St. Paul but has 9 Dr's that work with him in satellite offices. They are all supposed to be good with fibro patients. The practice at St. Paul is huge. Dr. Cohen first dx'd my paternal grandma with fibro in the 70's when no one believed in it. It will take a few months to get into to see him. I am using Dr. Geppert out of Grapevine. So far so good. He's definitely one for exercise and healthy diet, not one for pain meds. I've only been able to get ultracet mostly. He did give me vicodin (10) that he expects to last 6 months. However, my pain is a lot better. He may see you and your pain completely different. My grandma is seeing another Dr but I do not know is name. He is also out of the same practice. [ removed ]
Last edited by moderator2; 07-14-2004 at 08:24 AM.
Reason: Doctors by name, city and state, only, as per the posting rules. Do not post telephone numbers or any contact information so as not to be advertising. Thank you.
Sorry you had that experience. Some of these doctors are so uncaring it's ridiculous. They give the good ones a bad name. And the good ones are out there. I have to travel out of state to get good medical care, but it's well worth it.
I found my rheumatologist by calling a major hospital with a top-notch reputation. I asked for the Rhematology Department and asked for one of their doctor. And I got one.
You'll find somebody new. Sometimes you just have to keep looking and it a real relief when you find that person.
I use Vicoprofen four times a day and six Ultram and fifty mg. of Elavil.
It works for me because without it I wouldn't be able to move. Everything in my body locks--legs, arms, etc. All the pain meds do is keep me moving so I can get some things done. A little each day, but at least I can walk again.
I'm sorry you had that experience. I have cried my way out of many lobbies too. It sucked. My best advice is find another PC that will treat fibro and is willing to keep up on it. My doctor has studied over the years and has gotten very good at treating me. You can't have a doctor that refuses to give you meds because they are ignorant and refuse to learn. There are seminars and meetings for dr's all the time to learn about different conditions.
I went to our local "lupus specialist" once and he said "you don't look sick". His basic attitude was that unless I was dying and needed chemo he didn't see any reason to treat me. I ran out of the office crying with my Mom half a block behind me cause she couldn't keep up with me.
It might take a few tries but I'm sure you can find someone better. My doctor prescribes my codeine 30 days at a time. And I never have to get more early. So just taking them does not mean you will have problems with it.