Re: Post Partum & Fibro
I'm rested up today so here's my story too. I guess as far as a pattern it seems like it's just the physical trauma of the whole pregnancy/birth thing that makes it worse. How many of you had epidurals? Just wondering because when I had mine during labor I felt this explosion in my lower back and hip where the cath went in. Then my leg was numb for two months. For a week after delivery I couldn't get up off the toilet.
So let me back up, I was 33 when I had my son. He was a 7 pounder. My pregnancy was difficult but not troublesome really. No diabetes or anything else, just SI joint pain and premature labor which put me on leave early. My job at the time could not seem to get it that I couldn't work 50 hours a week past 7 months so my doctor put me on leave for my own good. I did have lots of itching, rashes and labrynthitis during the pregnancy.
My labor was induced, I had the epidural, had my son, twelve hours later I was so swollen I couldn't wear shoes other than slippers for a week. When we had been home from the hospital for about a week was when I first noticed that my body just seemed worse. My fibro had never been that bad even though I'd had it for ten years. My whole body just shut down. After about five weeks I was at least able to walk and use my arms more. But I had to adapt infant care to not being able to carry the baby around with my arms.
The day after my six week checkup, I developed an infection called an anal fistula which was from old scar tissue in my anus that had been stretched. Because the scar tissue was old it was going to require surgery on my butt to dig it out. The first surgery did not heal so I had to have it done again two months later. I was left with permanent sphincter damage, rectal incontinence and chronic diarrhea.
In the meantime fibro kept getting worse. So I've been dealing with not being able to work for about two years now. My SSD appeal hearing is August 4th.
I have so many symptoms it's hard to remember them all. My right side is the worst as far as the pains, spasms, burning, tingling, shooting nerve pains, etc. I get headaches, fatigue, dizziness, TMJ, brain fog which I have with or without pain meds, edema, repetative motion injury (from not doing much), dry eyes, blurry vision and on and on, oh yeah IBS. I also have lupus but it has supposedly been in remission for 3 years. That's why I had the first baby and I'm due 9/10 with my second. This pregnancy has been a breeze other than missing my codeine and soma. I'm home so I can put my feet up any time.
I can't desribe to someone who hasn't had it, how painful and horrible those fistulaectomies were. I couldn't sit for about six months. And now if I get any more damage down there I have to go five hours away to the big city to get a ******** replacement. That's not what they call it I just hink it's funny to say.
I was hoping that since I'm having a c-section and not doing all the straining and pushing this time it might be easeir but it sounds like both seem to do the fibro in. I know one thing which is I will be wearing suport hose during and after delivery to prevent the horrible swelling. In the old days that was standard maternity practice but thanks to the mighty HMO it's no more. If I have to have it out with every nurse in the hospital I'm still wearing my support hose.
So that's my story...Andy