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Old 08-20-2004, 09:31 AM   #1
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glowworm2 HB User
Fibromyalgia & Predisone

I am 60 years old & was diagnosed with fibromyalgia in early 2000 after going to over 20 doctors. I was doing some major suffering. Pain from head to toe. Even the bed covers hurt my skin. When I couldn't make it to the dr's office any longer, (doctor #21) my dr. sent a nurse from a home health center to evaluate me. She recommended physical therapy at home to get me mobile again. I had curled up in the fetal position and prepared to die. I knew I had to have a fatal illness to be in so much pain. I didn't believe for one minute that I just had pain. It was a long time later and a lot of research before I understood the vast expanse of having such an illness. I lost my job a few months later, was denied my disability because none of the judges believe in FM, lost my home next and ended up living in a 6ft x 12ft camper at a place called Shady Grove Campground with my son who has a terminal illness. We are quite a pair! By God's grace we have survived this first four years and now have a home...modest though it may be...we have a roof over our heads again. The doctor had started me on pain medication. If not for that, I am certain I would have ended up in the mental institution because the pain was driving me quite "mad". I have never gone to bed again to stay no matter how difficult it may be to move. My story is too long to tell here, but I had four major surgeries in four years and took a ton of predisone. I believe the predisone caused my fibromyalgia and I am hopeful that one day I will be well. I take extended release morphine 2xday for my pain and I am no longer in a wheel chair and can walk around the house and yard pretty good. Needless to say, I am confined to the house a lot and would welcome any correspondence. It is so difficult to keep the faith when you feel so isolated from the world. I am surprised every day when I wake up and I am not well. Read a lot...tried a lot of remedies. But it has always been in God's hands. Please pray for me and my son. God Bless!

Last edited by glowworm2; 08-20-2004 at 05:09 PM. Reason: title change

 
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Old 08-22-2004, 12:11 AM   #2
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taurus3 HB User
Re: Depression & FMS

Hi Gloworm, You and your son ahve had quite a battle just to survive. I'm so sorry to hear of your troubles and I will keep you in my thoughts. - Andy

 
Old 08-22-2004, 07:54 PM   #3
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glowworm2 HB User
Re: Depression & FMS

Andy, don't know if you got my first message. i wanted to thank you for your kind words. God bless!

Gloria

 
Old 08-22-2004, 09:17 PM   #4
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AliceBlueBelle HB UserAliceBlueBelle HB UserAliceBlueBelle HB UserAliceBlueBelle HB User
Re: Depression & FMS

Gloria - There is so much, but one thing I wanted to touch on. Don't give up on your disability. almost everyone gets turned down the first time or two.

The internet has been great company for many confined to their homes. Forums like this are great. If this one isn't busy enough for you, there are many others around. Chronic pain forum is another good search term.

Alice

 
Old 08-24-2004, 08:51 PM   #5
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glowworm2 HB User
Re: Depression & FMS

Alice, thanks for the encouragment. You know I will be 61 yrs old next May and I have worked my entire adult life. I still can't believe I am having such a horrible time trying to get my disability. The main problem I have is that I know my attorney does not believe in my condition. I have only seen him twice and both times he has been incredibly rude. when I told him my ERISA attorney had gotten me a settlement with Liberty Mutual he looked at me and asked (very sarcastically) "how did he do that"? It was more his tone than his words that was so surprising. All I could say was "I don't know". I don't know why he agreed to take my case. Over the phone he was a sweetheart, but the first time I met with him he threw my file down on the desk and said " the judges don't believe in fibromyalgia!" I know I should have left then, but I was so sick and I had no transportation and didn't know where to begin to find another attorney. At that time I was almost crawling to the bathroom. My sick son had to help me do many things. I feel so guilty about all the stress I have caused him and it would help so much if we had enough money to pay our living expenses. we are very simple people and we are not greedy... I just want what I deserve...not a penny more..and since Liberty Mutual subtracted a sizable amount from social security when deciding my settlement with them...I want the amount they subtracted. But I have a feeling I am going to have to argue my own case when I go for my hearing. I don't have a clue what to expect from my attorney. I am so afraid I don't have the stamina or the will power to go through this process again...but if I live, I will have to. Thank you again. Write again soon. Gloria

 
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