What to expect with fibro - Fibromyalgia Message Board

jbot · 08-25-2004, 12:18 PM

I`m new to this board and to fibro.My dr diag me with fibro a year ago and I have so many aches and real pain that I don`t know how to tell what I really do have. Also have OA and other problems.I do not know what having a flare means because I never ever have a good day they are all bad with alot of pain and fatigue. I still push myslef to work but it gets harder and harde and when I get home at night In just crash. Thank goodness In have a wonderful husband that takes a lot of the work around the house off of me.I`m pass 50 so don`t have any small children at home.Any help as to how it effects you and what I can do to help it will be appreciated.All i know when i don`t sleep at night i`m worse off the next day big time. Well thanks and hope you all have a pain free day...........jbot

LadyMasters · 08-26-2004, 02:52 PM

Look to "the list" on this board. Eye opener on how accurate it is! Maybe you can print off and take with you to Doctor's. Get to feeling better and know others are here to support you

orchidbeauty78 · 08-26-2004, 05:10 PM

I have only Fibro for only a year too and I can only speak from my personal experiences. I have my good days and bad days. I recently started to listen to my Rheumy and start an excercise program, mostly light aerobics and can honestly say when i miss a day or slack off on the exercise I feel worse. You may want to try an aquatics program if one is available to you, this is the best on the joints and muscles. When I first got ill the pain was worse mainly because i was not sleeping and I thought I was dying.

There are days when the pain is so bad that I feel like knives are in my muscles all the way down to the bones, and then I have days like today when I just have slight pain and feel as if I am getting better. I keep hoping that one day it will just stay that way, but it does not. I also know from reading a lot that some people have more severe pain than others. The trick is to find a good Rheumy or doctor that will listen and understand actually really understand and can interpret the pain that comes with Fibro. I take some medicines almost daily and he also gave me medication for the bad days...I think that with exercise and watching my sugar intake has helped me. As far as what to expect from this darn disease, well I really don't know. Just take it one day at a time and don't push yourself past your limits...This disease has a way of making you pay for that. I hope you feel better

taurus3 · 08-26-2004, 09:16 PM

Hi Jbot, Most of us find after having fibro for awhile that once we get an effective treatment going that we will have flares when our pain and symptoms all seem to get bad at once. We're forced to rest and it can take varying lengths of time to get better. That's not to say that we don't all have something almost every day that hurts. But there is a huge difference between I'm sore and hurt and I can't move my right arm or hold a pen or pick up anything.

Hope that helps and welcome, everyone is great here - Andy

singerja1999 · 08-27-2004, 07:37 PM

One of the things that is so hard about this disease is that it effects people differnetly. I, for one, find that if I do not get a good night's sleep the following day I am in pain. The severity can vary. The hard part is that you cannot say that, well, 5 years this will happen or that will happen. Doesn't work that way. Seems to be a very individual disease. Try and surround yourself with good support people. For example. I have a weight trainer, water therapist, my brother is a physical therapist. I also have a wonderful husband who just takes each day as it comes. I feel very blessed.