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Old 01-19-2005, 11:59 AM   #1
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Sleep Apnea????????

Hi all,
I was DX with sleep apnea and was put on one of those breathing machines. To tell you the truth it has really helped with my FM. I had always thought that sleep was one of the great contributors of FM, so I asked my Dr about it and scheduled a sleep study.
I was wondering how many others have had the study? I know that men, women even young children can have sleep apnea even without snoring. So even if you think you do not have maybe you should talk to your DR about anyway.

 
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Old 01-19-2005, 01:41 PM   #2
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Re: Sleep Apnea????????

hi tt,
get ready for the most bizarre experience of your life. i had a sleep study done. first you quit any sleep meds. after a specific time period you go to sleep study world, put on your jammies, grab your teddy bear, get hooked up to a bunch of wire and then the nice tech leaves after telling you to sleep tight. they go to their observation room, and you try to go to sleep. i couldn't so i started playing with the red light at the end of the monitor on my finger. i was making tracers with the light when egor, yes egor came in and told me to stop playing and go to sleep. that really is his name! i managed to sleep a couple of hours, enough to give us a few answers. sleep apnea was not my problem. i have alpha intrusion (means my brain never sleeps) and restless leg syndrome.
the test is fun, weird and makes you feel like you are in a sci fi movie. do not expect to feel rested. i kept laughing. every time i would think about egor out there watching me i would think about passing gas or talking in my sleep and the laughter would bubble up. around 4 am i called egor in and told him i was done for the night. he said he had enough. i took a shower and split. it took the doc one week to get back to me with his impressions of the data.
i changed my bedding. i no longer tuck my covers in at the foot of the bed. i use a light flannel comforter and an even lighter down comforter. a top sheet or blanket is out. i make too much of a mess at night and usually wake to covers upside down and my head at the foot of the bed.
have fun and let me know what you think.
peace,
bluelakelady

 
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Old 01-20-2005, 09:01 AM   #3
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Talking Re: Sleep Apnea????????

Buelakelady all I can say is, DAMN!
Thats pretty funny. I bet that Egor hoped you would never show back up. Has the changes you made helped? I bet you are not with anyone are you? I can't see how anyone could sleep with you. hehe

 
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Old 01-20-2005, 02:21 PM   #4
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Re: Sleep Apnea????????

too funny!! you bet i am alone. even the cats have given up thinking they could sleep with me! smart kitties. i think it may have been the flying lessons they were uncomfortable with.
actually egor said i was fun, silly, and made his job that night entertaining. he said most of the people he meets are suffering from sleep deprivation, frustrated, angry, whiney and so are seldom pleasant let alone goofy. i guess i thought lack of sleep made everyone as goofy as it did me.
did the changes help? so much so that i was able to regain most of my lost memory, become more active, experience less leg pain, and my thinking process returned. now when it skips off to jamaica for a bit i giggle. i know it will return. we all need a vacation, right? so i dive into the fibro fog, snuggle down, and wait for the rest of me to get back.
i had spent over 4 years without sleeping more than 45 minutes at a time. my normal ammount of sleep total would average 4 hours. my speech became slurred, oh yea, i can talk again. like you couldn't already tell. i do love to communicate.
i now sleep at least 6 hours, usually 8, with one or two trips to the little girls room. i am, after all, no longer youthful. at least my bladder isn't. my mind spends less time at the 3 year old level. actually, i like being little again sometimes. how many other illnesses offer you the whole spectrum. from toddler to adult all in one day!
it's time for me to be good. i had myofascial release therapy today. it hurts in a bizarre way. it is worth it tho. on saturday when i wake up i will have mountains of energy and less pain.
the sun is out. there is a breeze outside carrying the smells of an early spring to my nose. how delightful it is to open the windows and dress in one layer! what part of our little planet do you hail from?
peace,
bluelakelady
ps i expect a story when you rest up from your sleep study, tee hee!

 
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Old 01-21-2005, 07:19 AM   #5
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Re: Sleep Apnea????????

Hi Buelakelady,
Actually I had my study several months ago. I found out that I would stop breathing up to 79 times an hour. They said I was world class. What an honor ! Since then I have been on a breathing machine at night, and had no idea that I was missing so much sleep for so long. It has really helped with the energy, but the pain is still there. You take care of your self.

 
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