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Old 01-24-2005, 10:55 AM   #1
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Bothrops HB User
I need help, please!

About 20 months ago I got ill and to this day have yet to recover. My symptoms are lightheadedness, dizziness, brainfog and fatigue, burning sensations in arms, back and shoulders. I have visual problems, full ears, sinusitis, kidney pain, frequent urination, sore throats, joint and muscle pains from lower back to feet. I almost forgot depression, anxiety, night and cold sweats

I have had plenty of blood work, MRI’s and CT’s. So far the only thing I have tested positive for is chronic EBV, cytomegalovirus, sinusitis and a + ANA. My hemoglobin and cholesterol are a little high. I have been on all sorts of antibiotics, even though they have not seen infection. After being on doxycycline for three months my bowels were normal and on time and kidney pains stopped. I have been on paxil and effexor now beta blockers with very little help. I will say they have helped my headaches and allowed me to sleep a little better.

I recently saw an ID Dr. who tested my immune system. Everything he tested me for checked out. He told me that was all he could do. I thought ID Drs. diagnosed CFIDS, does this mean I do not have this condition? He told me to get in touch with my GP. My GP was supposed to send me to a rheumatologist over a month ago. I still have not heard from her, after leaving messages twice.

Has anyone been through this? I have to get better and go back to work. I have two kids. Our government does not think that I am disabled. I am really confused on what I should do next? Does anyone have a clue to who I can get a proper diagnosis from. Is there any supplements I can take? Is there any other test I should have done? Does this even sound like CFS or FM.

Derek

 
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Old 01-25-2005, 08:51 AM   #2
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Re: I need help, please!

hi derek, i really dont know. try lymes board maybe?love april x

 
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Old 01-25-2005, 11:57 AM   #3
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Re: I need help, please!

Derek,

Ask your dr. to be referred to another rheumatologist. I have a good friend who also has FM but was diagnosed with sinusitis and EBV first.

Not much, but I hope that helps.

 
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Old 01-29-2005, 07:42 PM   #4
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Re: I need help, please!

Only a licensed Rheumatologist or specialized pain management physician should diagnose FMS, or any other illness for you. But, I can tell you that there IS a diagnostic test for FMS, if so diagnosed, you can qualify for disability, as I have. After my State disability ran out, I applied for full disability through Social Security. My claim was denied the first time, I had a Hearing, and I won. I should add that I used an attorney when filing my Social Security claim. There are attornies that only handle this kind of work. Social Security paid my attorney's fees once my claim was approved.

Furthermore, there are articles now published for jurisprudence cases. One good one is called "Innovations in Soft-Tissue Jurisprudence", by W. McKinley Smiley, Jr., J.D., LLM, Stetson University College of Law, St. Petersburg, FL, Jeffrey R. Cram, Ph.D, Nevada City, CA, Michael S. Margoles, MD, Ph.D, San Jose, CA, Thomas J. Romano, MD, Ph.D, Wheeling, West Virginia and John Stiller, MD, Plant City, FL (Authors), published in the Trial Diplomacy Journal.

Contact the following FMS organizations for information and copies of articles:
Fibromyalgia Network, P.O. Box 31750, Tucson, AZ 85751, (800) 853-2929; The Fibromyalgia Alliance of America, P.O. Box 21990, Columbus, OH 43221, (614) 457-4222

Books available include "The Fibromyalgia Supporter", by Mark J. Pellegrino, MD (1997), and Dr. Pellegrino has at least three other books on the market, ie. "Fibromyalgia, Managing the Pain" (1993), "The Fibromyalgia Survivor", where no subject relevant to FMS is left untouched. Dr. Pellegrino is both physician and patient and his books are written with liberal use of humor.

Best of luck

 
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Old 01-30-2005, 09:50 AM   #5
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Re: I need help, please!

Fibrolady, what is the diagnostic test you are referring to?

 
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