Does Anyone Hurt Every Single Day? - Fibromyalgia Message Board

builder · 01-26-2005, 05:17 AM

This is getting so depressing. I hurt everyday. I'm as stiff as a board sometimes. Any form of physical work or exersise and I am wiped out. I used to get several good days during a week, but not anymore. This seems to be getting worse everyday.

poopsie44 · 01-26-2005, 07:45 AM

YEA! Everyday. Maybe not as bad some days, but it is still there, like my constant companion I call it now. And it doesn't really matter whether I do anything (exercise) or not. If it's going to be bad that day- then it's just going to be bad that day. I don't get it! I do know that if I do to much one day the next day I can just about count on staying in bed or on the couch. Between the pain & the fibro-fog I just tell everyboby I'm ready for my padded room.(LOL) Although sometimes I think I'm serious!

bluelakelady · 01-26-2005, 07:51 AM

morning friend,
remember that fms runs in cycles. some days fms wants more of your attention than others. even if the exercise wipes you out do it! depression is fed by inactivity so tell your bed and your couch to go to, well, you know where, and find something, anything to do. the pain will be there. it does not matter if you lie in bed or go for a walk, so go for a walk. it's going to hurt anyway, right? i notice the pain gets alot worse if i go to bed. i only hit my bed when the fatigue comes. know what gets me back out of that bed? the pain. as soon as the fatigue passes i have fallout pain from lying in bed too much.
see the cycle?
i get one day a week, sometimes two where i feel powerful in my body. i am grateful to have a disorder that gives me those days. imagine life without them?
peace,
bluelakelady

anstar · 01-26-2005, 08:22 AM

I don't think I've been "pain free" in years. Some days are worse than others (and winter is always worst of all) but there is always some pain. I live my life by degrees. On relatively low pain days, I can get more done, but on really bad days, I just want to crawl into a hole and cry.

The fatigue is more crippling to me than the pain. I can work through most of that (usually.) It's just mustering the energy to move around that's depressing. Some days it just feels like too much.

I understand what you're feeling. I know those words don't seem like much to some people, but to a fm sufferer, those two words can be a real blessing.

luv2read · 01-26-2005, 09:18 AM

My worst chores around the house that cause the pain-burning-stiff muscles are : washing the windows, scrubbing the floor (double ouch), cleaning the bath tub, folding the clothes, washing the dog, etc.

A lot of the pain depends on what I'm doing or what I did the day before.

My very worst symptoms is caused by the TMJ. I have 24/7 head-face-both eyes-neck-and ears pressure. If I talk to much (like when I last saw my psychologist) , from my shoulders up will be totally flared up w/ pain and migraine. This is when I will feel those 2 tight bundles of muscles below the back of my neck inbetween the shoulders!! OUCH! Then I will need to rub those bulging spots with my fingers and get a hot bath.

But, yeah, I'm soooo afraid to get back into the work force!! I don't have to, but I would love to find something to do. I think I just got comfy being at home and keeping my symptoms down. But, is that really living?

Maybe I will find a job soon, who cares if I will most likely need more pain med. At least I'll be out of the house and interacting w/ others.

You got to remember that everyone's pain level tolerance is different too. Plus, for some who have had fibro for lots of years.....you go through different stages. Just like if someone passed away....the grieving, the denial, the compromise, etc.

I think that was the hardest part to get through. Accepting that my body would never be the same again. Some days I miss the old me, and some days I can't even remember what it felt like to be "normal".