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Old 03-12-2005, 08:54 AM   #1
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lil'missdiagnosis HB User
gland/neck/cheek/ear pain

Hi,

Has anyone experienced pain in the ears, neck, glands, and cheeks due to fibromyalgia. I have the pain all over but lately it seems more so in these areas. The pain in my cheeks feels kinda like the pain you may get after trying to blow up a balloon and you over do it. Swollen feeling. My glands hurt too all over. Anyone experience this? Any replies would be greatly appreciated!

Thank you,

lil'miss

 
Old 03-12-2005, 09:02 AM   #2
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seaturtle HB User
Re: gland/neck/cheek/ear pain

Hi, Yes, I have all these, worse when a migraine is coming on. The massage therapist I used to see would often tell me that my lymph nodes were inflamed in my neck, and I think this is part of the FMS, as far as I have read. Inflammation in general seems to be something that causes me a lot of pain, all over my body.
Peace to you,

Seaturtle

 
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Old 03-12-2005, 09:26 AM   #3
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kcgage HB User
Re: gland/neck/cheek/ear pain

Hi Lil Miss (cute name),

Yes my glands always seem to be swollen. My face hurts a lot. I have TMJ in my jaw, so that may be contributing to it. It helps to take an Advil to reduce any inflammation and massage your cheeks gently with your fingertips.

 
Old 03-14-2005, 02:24 PM   #4
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Lyn in Michigan HB User
Re: gland/neck/cheek/ear pain

Lil'miss

This is the first time I have posted to this fibro. board as I usually am on spinal disorders or another fibro wall that is really great too!!!
I have the same symptoms as you. My ears ache, behind my ears, my jaw, my face is sore too!!! I have had a headache for 5 years. It starts at the back of my neck and goes to the back of my head, over my head into my forehead and spreads out from there. I have not been diagnosed 100 per cent with fibro yet. My doctor gave me the name of a rheumotologist to go to and when I tried to make the appt. and told them that my GP suspected Fibro. they said, sorry we don't take fibro patients. They take up too much time!!! That threw me right off and I haven't made another appt. with any other rheumy. The Pain Management doctor and my GP say they think I have "chronic myofascial syndrome" which is kind of grouped with Fibromyalgia. I have had an Anterior Cervical Discectomy with a donor bone and titanium pins and plates 14 months ago for neck, shoulder and headache pain. The operation did not take away the pain and that is why they suspect myofascial/fibro. I live in pain everyday and can't give up yet. I am a 53 year old female who has lots to live for. I have gone to a face specialist to see if I had TMJ but he said I don't. I feel like it is my sinuses and have had a Cat Scan of my sinuses and have been to an ENT specialist and they say it is not that!!! I am having Medial Branch Blocks done on Friday which is a needle that they inject into my facet joints and if they find that the pain has gone 50% or more then they will do it one more time just to confirm that it wasn't a placebo effect and then they will burn the nerves!!! I had it done already last year and it didn't work but the Pain Management doctor says I have a new neck because of my surgery and also 6 weeks after my surgery I had a whiplash car accident (not my fault) so I really didn't have time to recooperate.
Sorry I am making this a long drawn out story. Yes I do have the same kind of pain in my face, ears, jaw etc. and nobody ever told me that they thought it was fibro. but I have always thought so.
Take care of yourself and I hope you feel better sooner. If you figure out anything that works, let me know, I would appreciate it.
Thanks
Lyn in Michigan

 
Old 03-15-2005, 04:01 PM   #5
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ahabik HB User
Re: gland/neck/cheek/ear pain

Hi lilmis,

I'm new at this board and was reading your question with my mouth hanging open, saying, "I have that". Yes the whole side of my face hurt and my ears felt like they were burning, on fire and I thought I was getting an ear infection. Then my jaw and my glands and my neck. The doc said no ear infection. I swear if I had known about this site it would of saved me many trips to the doc. Chest pain on left side, thought it was heart attack and I saw that addressed here. Thanks everyone. Anyway for the ears my doc game me some kind of numbing drops and when that symptom hits I use it and its such relief. This is a terrible thing we are all living through isn't it?

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Old 03-15-2005, 05:09 PM   #6
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browneyegurl HB User
Re: gland/neck/cheek/ear pain

Yep, I've experienced the ear, face and neck pain. Throw in costochondritis and you've got a real nasty lot of upper body pain. I use moist heat and occasionally take an over the counter anti-inflammatory which seems to help. I also experience a lot of dry mouth and tongue soreness. My doctor is telling me, "fibro and menopause." I actually feel like the best thing for me is to get a good nights sleep. However that is hard to accomplish with hot flashes in the middle of the night. I have been fighting off taking synthetic hormones by using natural remedies, but may have to give in and see if the synthetics would improve my situation. Seems like it's hard to win sometimes.

 
Old 03-16-2005, 10:24 AM   #7
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lil'missdiagnosis HB User
Re: gland/neck/cheek/ear pain

Thank you everyone for your great responses! I guess this is just something we have to work through along with evrything else! I hope everyone is feeling okay today and you have a restful night!

Thanks again,

lil'miss

 
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