This is the first time I have posted to this fibro. board as I usually am on spinal disorders or another fibro wall that is really great too!!!
I have the same symptoms as you. My ears ache, behind my ears, my jaw, my face is sore too!!! I have had a headache for 5 years. It starts at the back of my neck and goes to the back of my head, over my head into my forehead and spreads out from there. I have not been diagnosed 100 per cent with fibro yet. My doctor gave me the name of a rheumotologist to go to and when I tried to make the appt. and told them that my GP suspected Fibro. they said, sorry we don't take fibro patients. They take up too much time!!! That threw me right off and I haven't made another appt. with any other rheumy. The Pain Management doctor and my GP say they think I have "chronic myofascial syndrome" which is kind of grouped with Fibromyalgia. I have had an Anterior Cervical Discectomy with a donor bone and titanium pins and plates 14 months ago for neck, shoulder and headache pain. The operation did not take away the pain and that is why they suspect myofascial/fibro. I live in pain everyday and can't give up yet. I am a 53 year old female who has lots to live for. I have gone to a face specialist to see if I had TMJ but he said I don't. I feel like it is my sinuses and have had a Cat Scan of my sinuses and have been to an ENT specialist and they say it is not that!!! I am having Medial Branch Blocks done on Friday which is a needle that they inject into my facet joints and if they find that the pain has gone 50% or more then they will do it one more time just to confirm that it wasn't a placebo effect and then they will burn the nerves!!! I had it done already last year and it didn't work but the Pain Management doctor says I have a new neck because of my surgery and also 6 weeks after my surgery I had a whiplash car accident (not my fault) so I really didn't have time to recooperate.
Sorry I am making this a long drawn out story. Yes I do have the same kind of pain in my face, ears, jaw etc. and nobody ever told me that they thought it was fibro. but I have always thought so.
Take care of yourself and I hope you feel better sooner. If you figure out anything that works, let me know, I would appreciate it.
Lyn in Michigan