There is light at the end of the tunnel.... - Fibromyalgia Message Board

ukiahvalleymom · 03-18-2005, 06:35 AM

For me!!!

I received my lab results last night from my Fibro & Fatigue doctor that has revealed the underlying medical issues that are the culprits for keeping me in a constant flare-up. The best news is that with the treatments I should be feeling much better in 4-6 weeks!

Here are the results:
1.) Tested positive for Human Herpes HHV6.
2.) Tested positive for CMV, Large cell virus; its related to Epstein-bar.
3.) Tested Positive for Epstein-bar old infection, acute infection.
4.) Tested positive for Candida overgrowth and currently active, treated with a anti-fungal antibiotic.
5.) Tested positive for active Myco-Plasma Pneumonia, treated with a antibiotic.
6.) Test revealed previous Pneumonia infections can re-activate.
7.) Tested very low level of Seritonin treated with 5HTP.
8.) Tested very low level of Norenephrine treated with L-Tyrosine.
9.) Tested Amino Globulin: IGG- well below range, IGA- normal, IG?-active high: reveals that my body is trying to fight something off. IGG totals reveal immune system is off, treatment available, checking with Insurance Co for coverage.
10. Tested Prolactin, normal.
11.) Throm tested and revealed a battle in the circulation, Hypercoagulation, a blood clotting problem, treatment available, hopefully insurance will cover the costs, should be a year of treatment, with measurable reults in 4-6 weeks.
Also trying an Immune Booster, to see if we can kick start it back into action.

I now understand why I have had a different type of pain, my veins feel like exploding, that is from the blood clotting issue. Having all these infections alive at one time are constantly causing the fatigue, pain, headaches, eye problems, sorethroats, runny nose, flu-like and fever-like symptoms...

These are answers to a long journey, and I'll keep you posted, hopefully with positive news as I continue through my treatments.

I hope that through what I am experiencing there will be treatment available around the world for all who suffer with FMS and CFS.
Your all in my prayers, uvmom

hatefibro · 03-18-2005, 08:53 AM

Where did you go to get these tests? Do they think they can heal the fibromyalgia?

JJCHEEK · 03-18-2005, 08:04 PM

Let us know where to get those tests because the docs here dont run all those tests. They might do one for ebv, cmv, and candida. The rest of those I have never had done, I have'nt even been checked for candida, and I probably should, since all of this seemed to start at the end of my pregnancy and is still going on.

luv2read · 03-18-2005, 08:29 PM

I'm glad you're getting some answers. I've had the coagulation thing done (I think), but none of the other tests. Let us know how you're doing.

ukiahvalleymom · 03-18-2005, 09:36 PM

Hi, luv2, JJ, and Hfibro,
I have been going the facility since November '04, and have found it to be a place of warmth and genuine caring. The staff is great there, too. I have never been to a more thorough doctor and with an abundance of knowledge that he is passing on.

The story of how the clinics were started is worth reading about. They are going across the country with them, and the doctors are all specialized in CSF-FMS along with other major illnesses.

It takes time, there is a process, it is not a cure, but, it is a plan in the end to have a better quality of life, and I have received some good results already, read the therapy protocol on the web site.

Prior to my doctor appt. I received a 24 page history worksheet to complete, with symtoms, other major illnesses and surgeries, when I saw the amount of pages to write out all the medications taken for FMS, from the start to currently taking. The first thing I said to myself was, wow, I sure am lucky, I didn't even fill a half a page, treatment started the end of May for me. I have tried 4 Anti-depressants; Cymbalta and trazodone I still take.

I thought of all those who have been sick for years, and have gone through trying meds, having them not work, or maybe they did work short term on some if the symptoms and after some time the meds stopped working...
how many pages would be filled?

They treat the whole body, with supplements, natural hormones, along with western meds. I was very sick at my first appt, so they had me come in and have IV treatments prior to the appt and the next day I had more treatment, and was given some supplements and Ultram to head home with. By the way, I felt great that weekend, it lasted until I got back to work, my job may be another culprit, we'll see.

I knew that I would have blood drawn at the first appt, however I was amazed to have 34 viles drawn?!?!

I went back in 30 days for the results, and started the 2nd phase of the protocol.

Start working on the issues that showed up, get them under control, so that I would be ready to have the infectious diseases panel.

Based on my symptoms at the 3rd appt my doctor knew what tests to take, over 23 viles where taken in February, which resulted in the above message.

I am ecstatic...

I can be treated, most of what is prescribed this time will be covered under my insurance, both labs were also covered.

{{{removed}}}

His field is in hormones and longevity, he, himself had CFS and studied until he found what to do to get better.

If I can say his name, please tell me, for I don't want to mess up on this board.

I promise to keep you all updated on how I'm doing, I hope that you can find the site, if you think of me on Monday evening, around 5:45PST. Say a prayer, its my first time to learn how to inject medicine with a needle in to me, a bit scary, I think.

I have got to go this has taken me 11/2 hours to write and I am hurting everywhere, write to me what you think.

Goodnight, uvmom

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