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Old 03-24-2005, 04:18 AM   #1
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Hello My Friends

Hello Everyone,

A little while ago I posted because I was very stressed with the treatment I was receving from my doctors, not just the lupus doctor either, who is supposed to check on my fibro.

I had been complaining (not in a nasty way) about a really odd painful right side rib area and back pain. My GP arranged for x-rays of my spine (eventually) which came back as showing quite a bit of damage, plus the old -"you're over 21 syndrome" - everything falling to bits line!! Well, I asked my GP for a second opinion, which went down like a lead balloon. I told him that I would pay for private treatment. I saw a consultant, had a tummy scan done and was told that I had several lumps in my gall bladder (polyps, not gall stones), some of which were 1 cm in size.

Well, today I went to see my surgeon. He diagnosed the acute pain as my old chum costochondritis which apparently is raging at the moment. Fair enough. Then he drops the bombshell on me that he really needs to perform surgery on my gall bladder, but because of the lupus, APS, heart surgery complications he has somewhat a dilemma going on.

As the lumps are 1 cm in size, there is a very strong chance that the next stage is cancer, as bigger than that size is when the danger really begins. Cancer of the gallbladder is not treatable he informed me, and the prognosis is 12 months at the longest. I knew things were quite bad, but even I was lost for words. I thanked him for being honest, left his office and had a cup of tea - typical British girl I am he he. (I shed a few tears when I got home though).

The thing is there is such a high risk having to any type of surgery for me personally which we dicussed, but there is an even greater risk not having it. Great odds hey. I know what I am going to do, but I wanted to share this with you as I have come to regard you all as my friends. I don't usually post about my own bits but hope you don't mind this once.

My darling husband is on the mainland (I live on an island) working away as usual, as I type this. So it is a difficult time for me not having anyone to talk to. I do so hope you are all ok with my sharing this with you.

Thank you all for listening.

goldenwings

Last edited by goldenwings; 03-25-2005 at 11:50 AM.

 
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Old 03-24-2005, 06:24 AM   #2
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Re: Hello My Friends

Goldenwings, I am so sorry to hear of this news. I will remember a prayer, I wish I could give you a hug (((((((((((((((( gw ))))))))))))))))).... Keep us updated. Believe.

 
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Old 03-24-2005, 07:27 AM   #3
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Re: Hello My Friends

Goldenwings,
I'm so sorry to hear of this. If it were me, I'd have the surgery. I don't know the specifics of your other problems and why you shouldn't risk surgery, but to me, those risks would probably be better than developing untreatable cancer. Gallbladder removal surgery is actually pretty simple - at least here in the States. (I take it you live elsewhere?) Here it's day surgery with recovery of a few weeks at home. I know several people who have had it done. Is this an option for you? Just get rid of the pesky gallbladder and hopefully that will be the solution.
You're in my prayers...
God bless, Jen

 
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Old 03-24-2005, 11:58 AM   #4
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Re: Hello My Friends

Thank you Corin and JenniferE,

Yes, I have no doubts that I am going for surgery. Laproscopic is the best for me, the main drawback is being put under anaesthetic with all my other problems. Lupus, APS, heart surgery recovery, MNM and all other little bits going on which can cause me serious problems when I am "put out". I don't know all the technical details but the surgeons and their associates really get uptight with it all.

I have cancelled other non-urgent surgeries because of these problems, but there is no way that I am willing (nor is my surgeon) to let the lumps stay in my body much longer.

I have spent too many years fighting disabilities and illnesses, and I am ready to do battle with this one. Somebody told me today I was brave. I was rather taken aback, because I don't feel that I am. I don't ever think I am doing anything other than anyone in my position would do, getting on with life. It is not a rehearsal, make the most of what you have got. OK so I do have lots of limitations because of my disabilities but hey, I sure use what bits I can and as I always say I have life, that is the most important.

Hope things are going ok with you both.

goldenwings

Last edited by goldenwings; 03-24-2005 at 07:25 PM.

 
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Old 03-24-2005, 01:49 PM   #5
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Re: Hello My Friends

Golden,
I agree... you are brave. You're an amazing woman and don't ever doubt that! Do you know when you're having surgery?
God bless, Jen

 
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