New Here - Fibromyalgia Message Board

VeganGurl20 · 03-24-2005, 09:22 PM

Hi Everyone,

I discovered this board a week or so ago, and am just now trying to muster up the guts to introduce myself. I'm not very good with social situations, see I'm already nervous just doing this, afraid of what people's reactions are going to be. Don't ask me why.
But anyway, lol. I'm Jade, 22 years old, from Oklahoma. I have not yet been diagnosed with fibro, but it all fits with my symptoms, it's scary how much so. And I have been doing some research, and am amazed at how many things that are wrong with me could be related to fibromyalgia!! But I'm almost scared now to go to my doctor and suggest it, because even though I'm only 22, I have already spent YEARS being told, basically, that it's "all in my head". "Oh it's just psychological, here, have another Valium. Or some more Zoloft." etc. I have had so many tests and such run on me, only to have them all come out fine. So I keep thinking, but this pain is SO real! Why won't anyone believe me?? And I start to think, maybe I really am just crazy. But something in me just hasn't been able to believe that. And I have an even harder time getting doctors to take me seriously, with all the mental disorders I've been diagnosed with, and all the psychotropic meds I'm on. I have been diagnosed with severe Post-Traumatic Stress Disorder, Bipolar Disorder w/ psychotic features, Schizophrenia, Obsessive-Compulsive Disorder, Panic Disorder, and the list goes on. One look at my records, and I'm sure the doctors make an instant snap judgement that I'm making everything up, before they even examine me. So needless to say, it's been so frustrating, I feel like I want to bawl for hours about it.
On top of this, I also have Polycystic Ovarian Syndrome, which also causes me a lot of stress and pain.
So finally, after all these years, I find this message board, and start to research about fibromyalgia. And I think this may just be the answer. I may finally have a name to my pain. But what should I ask or say to the doctors so I can get them to take me seriously? And is there any other treatment for this, other than just taking pain medication?
So anyway, thanks for listening to me babble on.

Jade

apriltones · 03-25-2005, 09:29 AM

hi jade, im april. im from uk. im not diagnosed yet either but my symptoms really fit! took doctors ages to listen to me too! i have had my symptoms for 17 months. waiting months for a neuro appointment and then mri. they have mri to rule out ms,etc. they need to rule out everything before fibro is diagnosed as it dont show up on tests. i have had deppression,pnd,anxiety,panic attacks. im ok now, get anxious sometimes, no panic attacks really and off meds. whats your symptoms? i would go doctors. anxiety and deppression can do mad stuff to you!!! i have had it, floor moving beneath me,heavyness,headaches, dizzinees but i know as you probably do that my symptoms i have now are not related to this, love april x welcome!!!

purpleflyer · 03-25-2005, 10:59 AM

Hi Jade

My name is Mindy, i'm 27 from Ohio. Writing is very difficult for me but i just had to let you know that there is a treatment that i have hope in - it's called the Guaifenesin Protocol. There's a book on it called "What Your Doctor May NOT Tell You About Fibromyalgia". It's written by a doctor that seems to know the cause of FM... his theory makes sense to me!

Anyway, try to read this book and i hope it helps you

Take Care,
-Mindy-

KarenMA · 03-25-2005, 11:46 AM

Hi Jade

I'm new here myself. Everyone here is very supportive and is full of positive thoughts. I haven't been diagnosed either, but as you say, so many of my symptoms appear to be Fibro. My doctor just told me he doesn't like the term Fibro, but I feel in essence, he said I have it, he just doesn't like the term. Anyway, hang in there. I would mention it to your doctor yourself. You may be given something that will help you sleep-that should help a lot.

Bye,
KarenMA

Neverenoughslee · 03-25-2005, 12:36 PM

Hello.

My first advice to you would be to find a doctor who believes in Fibro. Fibro is REAL. I had been Dx with Fibro by my GP, and when I went to my Rheumy, I was questioning all these other diseases and HE actually said to ME, "Dont downplay Fibro, it is a very Real and painful syndrome!!!" I knew I found a keeper.

Try to find someone in your area, a support group, or something where you can find a good Rheumy that treats and diagnoses Fibro. And a doctor who wont look at your medical records and just "chalk it up" to some thing psychological.

We welcome you here with open arms and are here to listen, not judge.
Welcome to our family.