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Eye Problems with Fibromyalgia

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Old 05-18-2005, 04:42 PM   #1
Join Date: May 2005
Posts: 3
Rnae HB User
Eye Problems with Fibromyalgia

I have had fibromyalgia for about ten years and have been through just about everything associated with it. This last year I started having bleeds in my right eye. They are occuring about every 4-6 weeks now. They are not subcvonjuntival bleeds. They opthamologist has no answers and neither does my doctor to this point. I am extremely frustrated and don't know where to turn next.

When these bleeds occur I usually feel nausea and fatigue. I want to know if anyone else has experienced this and if so, what direction did the doctor take?

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Old 05-18-2005, 05:48 PM   #2
Join Date: Mar 2005
Location: St. Louis, MO, USA
Posts: 349
GodsGirl4ever06 HB User
Re: Eye Problems with Fibromyalgia

No, I have not bled at all, but I do get severe eye pain often. So, sorry, can't help you, but hopefully someone can point you in the right direction.
Diagnosed with:

Mitral Valve Prolapse
High Blood Pressure
Nummular Eczema
Solar Urticaria (but not officially yet)

Old 05-19-2005, 04:55 AM   #3
Senior Veteran
Join Date: Nov 2004
Location: UK
Posts: 1,567
goldenwings HB User
Re: Eye Problems with Fibromyalgia

Hiya Rnae,

I have these type of "bleeds" a lot of the time. The word "bleed" really makes it sound scarey, but mine happens so often that I am very used to it now. You say though that yours has not been diagnosed as subcon.haem.

The usual causes of this type of problem include coughing, sneezing, heavy lifting and straining or mild ocular trauma (just simply rubbing of the eye while sleeping). The source of the blood is usually a small, normal blood vessel which was stressed and ruptured. The condition is never associated with a decrease in vision or significant pain and discomfort. The presence of these symptoms suggest a more serious problem which requires urgent attention.

Only a small amount of blood is required, significantly less than one drop, to produce a nasty looking eye. So, unless the vision is decreased, the eye is painful or the hemorrhages are recurrent, there is no need to further evaluate patients with this common problem.

The other types of this common complaint are:-

"Rapid onset red eye with pain"

infection / inflamation
mechanical trauma
acute closed angle glaucoma

"Red eye with mild or no pain"

dry eye / keratitis
eyelash problems / blepharitis
substance abuse
systemic drug reaction
lumps and bumps

"Contact lens related red eyes"

I have Sjogren's, which does cause a lot of dryness. Consequently I then rub my eyes (I shouldn't I know) and then this causes redness for me. Have they looked into Sjogren's for you?

I am quite concerned for you that the doctors you have spoken to have not taken it any further. It does need more investigation I feel.

Hope this helps a bit.

I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

Last edited by goldenwings; 05-19-2005 at 04:57 AM.

Old 05-19-2005, 08:33 AM   #4
Join Date: May 2005
Posts: 3
Rnae HB User
Re: Eye Problems with Fibromyalgia

Thank you for your response. This is very frustrating. They have looked at Sjogrens, Lupus with no results. What troubles me is the flu type symptoms that accompany these bleeds. I will see my doctor again next week but am unsure as to how to advocate for further testing or referral.

Thank you again for your response.


Old 05-19-2005, 08:53 AM   #5
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Join Date: Nov 2004
Location: UK
Posts: 1,567
goldenwings HB User
Re: Eye Problems with Fibromyalgia

Hiya Rnae,

What you need to do is ask "again" what they think it is not. Then insist that they send you to an opthalmologist, who will examine your eyes and in my own experience, will then diagnose exactly what is wrong and recommend the appropriate treatment.

This is the only way that you are going to be able to get answers Rnae. If you look at the listing I posted for red eye, there is one section that indicates allergies being responsible. Maybe this could be a reason why you have flu like symptoms. Again I'm not diagnosing, just suggesting.

Whatver it might be, you must insist on seeing a specialist in this field. Your eyes are precious and you need to get this sorted as soon as you can. Your right to treatment is paramount.

I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

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