Still not where i was when on plaquenil. I am experiencing some new pains. I am somewhat confused if it is Fms, AS, or IBS related or something new. I have been having severe pain around the muscles all over my body. It is like it is the outer lining of the muscles. At times even sharp pain going thru the muscles. (upper arm, upper thigh, back area) I have muscle weakness and heaviness. When i try to explain it to the GP doc, i sound so ignorant. I also have been still having severe headaches and pain in the R back side of head and neck. (something that started when i had the plaquenil reaction with eye sight loss) I had a cat scan done couple weeks ago to see if anything showed up. it was neg. The neck x-rays i had showed RA. So now i am concerned it may be something else happening. Can anyone relate or any suggestions? I wont see my rhuemy til the 7th of June. Did i explain it well enough to understand what i am experiencing? Or do i sound still ignorant? Someone please help me out..