tkgoodspirit

Well THERE you are my girl! LOL

I gotta tell you, I was thinking of you the other day when I was replying to a post from another teen here on the board with FM. I was remembering you when you first asked about Juvenile Fibro. I reposted that info just recently for Julie, our other young friend with FM.

I hope she sees your post and replies. She's a sweetie. It would be great for you two to share stories about being a teenager with FM. She too had done something at her school for FM Awareness Day. Thank goodness for you guys, us old folks need you to spread the word! LOL

I HAVE been thinking of you dear, and when I saw your post I was thrilled! I am so humbled that you remembered me. You have no idea how much that means to me.

You sound like you are doing great. You feeling okay? How's your pain? School over yet for you? Remind me again, what grade you are in? What kind of plans do you have for summer, or are in a school that goes all year? Lots of questions eh? LOL Well, I'm kind of a nosey broad! I'd say "chick" but once you past 40, you become a "broad"!

I have a lot going on, personally. More tests than I can count on one hand, seems like. I have an MRI of my brain scheduled, checking for MS. And a new one on my lower back. Seems that a Neurologists thinks the nerve damage is too severe to operate on my back, it's too late, it won't help me. I have lost a lot of use in my right leg. You should see me dress myself, pretty comical! I also have an EMG scheduled to check the nerve damage in my right leg and where it's coming from. I told them I can draw them a picture where it's coming from! LOL I have an Ultrasound scheduled to look at my heart, I guess it's sounding a little "weak", another Ultrasound for my Thyroid. I had a bone scan done that showed some abnormalties in my bones that's caused by a malfunction of the Thyroid. ????? Got me?

The MRI of my brain will probably show cartoon characters dancing around in my head! And the bone scan was kinda cool. You just lay on this slab, it's too hard to call a table! And the camera rotates around you and takes pictures of your skelaton! When the camera was under me I could see my skelaton on the monitor. It looked pretty funny. It looked like one of those Halloween door decorations you put up! LOL All I kept thinking was "Geez, I have big bones!"

My FM pain is a bit high right now. I need my pain meds adjusted. I was put on a new long acting med in February and we're still in the "tweaking" stage. I see my doc this Tuesday, so hopefully we'll get a good dosage going here and I'll feel better. It's frustrating tho, I need to clip my roses, poor things, they look pitiful. So does my house! I hope no one comes to visit, if I could only teach my dogs how to vacuum and dust.

I was doing a little Physical Therapy. I had trigger point release massage therapy for about a month on my upper back and neck. It worked great. If you get those inflamed trigger points and your upper back hurts bad, ask your doc to write you a script for Trigger Point Massage therapy. Trick is, you have to find a Physical Therapy facility who has someone who specializes in working with their "hands". The place I went, has a guy who runs the place and his specialty is Sports Medicine so he's trained to use his hands as therapy. They had all the exercise equipment of course, and he's trained in other kinds of therapy, but he specializes in massage therapy. Most PT facilities do have a massage therapist on site, but you have to be careful because some of them just work on you once or twice then put on a a peice of equipment. Then you're like "hey, where's the good stuff?" Anyway, rambling on there! Sorry. If you ever have trouble with pain in your upper back, shoulders and neck check into trigger point release massage.

Are you able to get any exercise in? Do you all still have Gym class in highschool? Can you participate? It's important you try to stay active, especially cuz you are so young. Being your age, you can stay active, you won't suffer so much when you get older.

Well, darlin' that's about it for me. I'm so happy to hear from you and so thrilled you remembered me. And, yes I DO think the "Butterfly Ball" sounds great! You know the official color of FM is purple? Our pins are purple. Just like the breast cancer pins, only ours is purple.

I hope that our other teen Fibromight replies so you can meet each other. Her username is "Godsgirl4ever", and she has a lot of threads and posts here on the FM board. She's like you, has a lot of "spunk". Check 'em out. We are lucky to have both of you as part of our "family".

Well, gotta run, my DSL modem is dying a slow death, I have to keep unplugging it to let it "rest". I'll call my ISP next week and get them to bring me another one, that I'm sure will only last 2 years, like this one. That seems to be their life span. Glad I'm not a DSL modem!

Love you honey,
tk

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"We must be the change we wish to see in the world"
Mahatma Gandhi