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Old 06-06-2005, 05:59 PM   #1
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New here

Hi, just found this board. I am 45 and was diagnosed with fm 10 years ago. the going has been rough. I have 6 children, 1 autistic and the stresses are there. My question is I have been taking celebrex for years for the pain and it used to work really well but it seems the last 6 months nothing. My doctor says it is the stress and to lessen it (yeah right) but I wonder how I would feel if I stopped taking it, I probably wouldnt be able to get out of bed, it is hard now but if I stopped.....I joined a gym and have been going 5 days a week for 3 months and I dont see it helping with the fm although I have lost some weight (I have about 40 more lbs. to go). Any suggestions out there?

Thanks Debbie

 
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Old 06-06-2005, 06:47 PM   #2
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Re: New here

Welcome Debbie, you will find a caring bunch of people on this board and some great information.

I took celebrex several years ago and it seemed to help for a few years but when the fibro got worse and the joints got involved with lupus it wasn't as effective. It did do fine for minor joint pain, but did not help when the muscles got involved.

Don't you just love when the drs. say to lesson your stress!! To me they are just saying I don't know what to do for you.

Excercise is suppose to be very good for fibro, my doc sent me an article from JAMA that said for non medicinal help exercise was at the top of the list. Low impact aerobics and water exercises are suppose to be the best, but I think anything you do is good. Way to go on the weight loss, keep up the good work you inspire me.

Welcome to the boards, I hope you stick around and post when you can.

Glojer

Last edited by Glojer; 06-06-2005 at 06:49 PM.

 
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Old 06-06-2005, 07:49 PM   #3
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Re: New here

Hi Debbie! Welcome to the "family"! It's nice to have you here with us. I hope you find the FM board helpful. There are a lot of good "folks" here that are happy to be of help and support however we can.

Ah, you have been on Celebrex for YEARS? Has your doctor told you about the recent risks discovered in using this med over long periods of time? The most recent research of meds like Celebrex and Vioxx (the Cox2 Inhibitors) show that continued use of these type of meds over a long period CAN and MAY be harmful. Talk to your doctor and do some research about the recent FDA warnings regarding these meds. Bextra is another one. All these are anti-inflammatory meds. What were you prescribed the Celebrex for? Was it for the FM? FM is NOT an inflammatory condition. Unlike Lupus or RA. Celebrex is safe to use if you use it short term. There are other anti-inflammatory meds out there that are considered safer. Arthotec is one. I use it for my DDD, arthritis and my bursits.

Usually, exercise is very helpful for FM. There have been many members here on the boards who have begun a regular exercise routine and noticed a remarkable difference in their pain. The use of regular exercise for FM raises Serotonin levels in our brains, which us FM'ers have little or none. Raising the Serotonin in our brains increases Endorphines, which I'm sure you've heard are the body's natual "pain killers". You've heard of the "Runner's High"? It's when a marathon runner's endorphine level raises so high that they no longer feel "discomfort" or muscle "pain" while they are running. This is why exercise is important to relive the pain of FM. Of course, excessive stress can counteract the advantage of exercise. Stress will virtually block any of the "good stuff" that our bodies naturally produce to reduce the transmission of pain. And yes, I totally understand that reducing your stress is easier said than done, but it is so important that you try to do just that.

Yoga is a good exercise to reduce stress. Removing yourself from your stressors for a few minutes each day can help immensely. Reading a book, taking a nice bubble bath, listening to soothing music like nature sounds, or simply "meditating" and clearing your head by rhythmic breathing are all good ways to "decompress". It's vital that you try to find some time to do this at least once a day, if at all possible. Though I DO understand your family commitments make that difficult. But you know, that if you don't take care of yourself first and foremost, you will not be in any shape to care for your faimly. Instead of going to the gym for a week, try some relaxation methods of exercise. See how this makes you feel.

You may be doing exercises at the gym that are not right for FM. Stretching exercises are the best. Slow rhythmic stretching and low impact exercises are best for FM. Walking is good, if you can. Not power walking, just a nice paced walk. Bike riding, not racing, is also good. Recumbant bikes are best. Light weight training is also good, just using a few pounds. Also, you mentioned losing some weight (yippee for you! you GO girl!) it is possible you have also lost some nutrients, and sometimes losing weight with FM can throw your system out of whack until your metabolism readjusts itself.

Exercise that is too rough or too strenuous is not good for FM. FM is a connective tissue disorder, a musculalskelatal condition. FM does not involve inflammed joints or muscles, the connective tissue is the only thing that may becomed inflamed and certain anti-inflammatory meds do not help the inflammation of connective tissue. Cox2 Inhibitors like Celebrex will not help reduce the inflammation of connective tissue. Celebrex is made to stop the progression of the inflammatory component in arthritis. Arthritis is different than FM.

Since you were dx'd 10 years ago, there have been considerable amounts of research done on FM and how it affects our CNS and the treatment of FM has changed by leaps and bounds since you were first dx'd.

It's totally possible you built up a tolerance of Celebrex after all this time. I used it for awhile when it first came out, until I didn't notice any relief. Have you tried Aleve? Muscle relaxants seem to work better on FM pain than anti-inflammatory meds, though they are sedative. Are you getting good restorative sleep at night? Are you waking up several times at night? I'll bet that when you were first dx'd the importance of restorative sleep wasn't as prevelant as it is now. Did your doc talk to you about this when you were dx'd? Which kind of doc dx'd you? Are you seeing a Rheumatologist? Rheumy's seem to be the most popular doctor to treat FM. There are FM specialists out there. Are you taking any other meds to help treat your FM?

Of course with 6 children and one of them being a "special" child at that, is not an easy task as far as reducing your stress! God love ya! I bow to you, for I am not worthy, you most definately deserve the title of "Queen"! LOL I can't even begin to imagine what it is like to take care of six children while having FM. Do you get any help at all? Does your husband or family help out some? You may want to start there to take some of the pressure off you. You can't do it all. You just can't. Even a healthy woman couldn't do all you do! I know it usually is not in a mother's nature to put herself first, and it is natural for a mother to feel guilty if they DO put themselves first. In your case, or any busy mother's case, you really need to put yourself first, or you will have nothing left for your family. Feed yourself first, then you have more fuel to take care of your family. We are not like the animal mothers in the wild, the lions and tigers who feed their young first and then feed themselves. Mother lions do not get FM. Besides, mother lions aren't taking their cubs to soccer, school, shopping for school clothes, throwing birthday parties and all the other "mom" things we do to make our children happy. Being a mom is a tough job, and being a mom of 6, must be overwhelming. No wonder you have a hard time getting out of bed. I would bet that you are not getting the right kind of sleep. Are you taking any type of medication that helps you maintain a good restoritive sleep? There are some very good ones out there that won't leave you groggy in the morning.

Have you had any kind of massage therapy? This has been found to be one of the most satisfying treatment for FM patients. Deep tissue massage therapy is the best. It hurts at first, and you will be sore the next day, until your trigger points release and your tissues have been relaxed. Aqua Therapy is wonderful exercise. You can usually find classes at the YMCA or a gym that don't cost as much as physical therapy. Warm pools are the best!

You see what I'm getting at? Take care of yourself, DO try to rid yourself of as much stress as you can. I realize this will be hard. Use your family members if you can to help you out. Make time for yourself, do more stretching exercises, more relaxation techniques. Please! Oh and come here and post when you feel overwhelmed, or if there is something you want to know about, or you want to share with us. We are all here for each other. We want to support each other, because, we realize that having FM, we all need support and understanding. No one understand FM more than another Fibromight. IMO.

Please consider coming off that Celebrex. Talk to your doc first about other meds that will specifically help FM. Please research Celebrex and the effects of long term use. Just because a doc says it's a good med for you, doesn't mean that it is, or that it still is. Meds run their course on a body over time. I don't believe there are any side effects in stopping the use of Celebrex. Ask your doc though, but I believe you can stop using it CT. Like I said, there are a lot of other meds out there that are anti-inflammatory. But IMO, anti-inflammatory meds do not usually help FM. Muscle relaxants and anti-spasm meds usually work the best.

Please, try, when you can, read some of the other threads here on the boards, especially any thread that talks about any new research, new medication or treatment for FM. You'll see a lot has changed in 10 years. A lot has changed in 3 years! There are a lot of threads that discuss diet and supplements that help some FMights. The very first thread at the top of the FM board has a list of different supplements, amino acids and anti-oxidents that have been shown to help maintain FM symptoms. It's a "sticky" thread, meaning it stays in that 1st spot permenantly. Malic Acid is found to be one of the most helpful supplements. Check with your doc before you decided to use ANY of these supplements though, they can interact with prescription meds, and some people can't tolerate certain supplements.

Again, welcome Debbie, I hope you feel right at "home" here with us and we hear from you often. I'd love to hear what you decide to do as far as relaxing and the Celebrex.

Here's wishing you a good spirit.
tk
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Last edited by tkgoodspirit; 06-06-2005 at 08:01 PM.

 
Old 06-08-2005, 07:11 AM   #4
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Re: New here

Hi Debbie,
Welcome!!!!

I echo what tk has said about Celebrex.... I just about gasped when I read that you'd been on it for years and am still on it!!!! Not good, not good at all. It's been proven to cause serious problems when taken long term. Definately talk to your dr!!!

You'll find tons and tons and tons of information on this site about every aspect of FM that you can think of - and some you've never thought of! Soak it all up like a sponge and add your own insite - we love other's opinions and wisdom.

God bless, Jen

 
Old 06-08-2005, 08:08 AM   #5
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Re: New here

welcome debbie!
peace,
bluelakelady

 
Old 06-10-2005, 04:51 AM   #6
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Re: New here

I am new here as well, here it is, 3:40 a.m. Don't know why it took me so long...I have suffered with FM/chronic pain for over 20 yrs now...I am 44 yrs old. I feel that I am on the verge of discovering something very important about my condition, when/how it began, and I'm actively seeking answers, commonalities with other fibro patients to test my theories. I am beginning to believe that my condition has something to do with hormonal changes/corticosteroid abnormalities, based on recent 5 day prednisone therapy for asthma. I have exhausted almost every homeopathic/natural herbal treatment in my over 20 yrs of dealing with this condition, have been treated like a hypochondriac by medical professionals, friends and family members and i'm mad as hell! I just came off 5 great days of little to no pain, good energy and feeling "normal" for the first time in many many years. I am crashing so hard now...every part of my body hurts today, right down to my toenails, and i am profoundly exhausted. I've been in bed for most of the day. My question I have tonight is this: has anyone here been on extended corticosteroid therapy and what were its results/side effects? If there is a thread on this board about this, if you could kindly direct me to it, i would be grateful. Let me first explain that i was on extremely high doses of prednisone when i was 19 for a rare eye disorder for many months, had numerous bad side effects, and have avoided any corticosteroid tx since then like the plague, even when my doc says i need it for my asthma. After d/c that therapy i never felt the same again. Im wondering if it caused longterm abnormalities in my adrenal glands. Has anyone here had a similar experience? Thank you for listening...Lee

 
Old 06-10-2005, 06:24 AM   #7
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Re: New here

hi lee,
you are crashing off the steroids. i did them for 20 days about 6 years ago. i gained 20 lbs. ate like a horse. got very aggressive, had to really watch that when driving. for those days there was no pain. the trade off was not worth it. my entire personality kept trying to change and be "not me". i felt like superwoman on the steroids. i think if i had continued i would have become superlargewoman with an attitude from hades.
welcome to the board. you will find much support, information and love here.
i am glad you have decided to step out and find us. you are not alone. we are here for you.
peace,
bluelakelady

 
Old 06-10-2005, 06:44 PM   #8
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Smile Re: New here

Thank you so much for the warm welcome, blue! And for your prompt reply. Well for a brief and shining 5 days i at least got my house cleaned...i am not giving up on the hormone theory, however. I have noticed a difference over the years in my symptoms during my menstrual cycle, as well. I am so grateful for this message board and its wonderful members...you made an otherwise unbearable night easier for me, just by reading your words of encouragement and advice, and by being able to vent my spleen on others who REALLY understand fibromyalgia. It took about 3 and a half hours for me to get my pain level back to something i could tolerate, and i don't think i could have endured it without reading all your inspiring posts. Thank you again, from the bottom of my heart.
Warmly, Lee

 
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