I too have FMS. It is difficult to understand what triggers it. I am going to an Auto Immune Specialist (which FMS belongs under). She is involved highly in research. I get a weekly shot of Glutithione with ATP. For some reason it helps the muscles. I can tell when I am late with the shot, my muscles start drawing up. You might want to ask your doctor if they have tested you for your NKC (natural Killer Cell) count. Many doctors don't realize that there is a test for this. The shot also helps build up my NKC which keeps me from being so tired all the time. I still have big problems with that though. The longer it goes on the less change you have of recovery. Just to warn you in advance the shots are the most painful ones I have ever had. Shots normally don't bother me but these really burn and at times leave knots. It isn't because of doing the injection wrong. The medicine is really strong. Instead of going to the doctor each week for the injection My husband or myself will give it to me. If I don't have it I can hardly wake up and muscles hurt really bad. I hope this info is of help. Let us know how things go.
Thanks for your responses, I have had both TPI's and Botox and neither helped me. I was just curious as to others results. I was told by my family doc about 3 years ago that I had Fibro and chronic myofacial pain syndrome but I have never had any true testing, just the trigger point testing for the Fibro. The Chronic Myofacial thing was diagnosed through MRI of my shoulder which showed a torn tendon and degeneration fo the shoulder. I am not completley convinced that Fibro is what I have or all I have. I have posted a few times on the lupus board so if you'd like to know more about me look me up there. I was being tested for lupus but my ana was negative back in 2003 and the doc that just did blood work on me did not test ANA but he tested my SED rate. He said it was normal and that since it was normal he said I was highly unlikely that I had lupus or and other inflamitory disease. Any ideas? Please read up on me in the lupus board so you know what all I'm dealing with and let me know your thoughts. THANKS!!!!!!!
I have had a series of injections in the past and prior to my diagnosis of fibro. I was being treated in a pain management clinic and was given injections directly into my spine and shoulder joints. This was done through the use of a live x-ray. I was able to see on the monitor exactly where these huge needles were going. I dont want to get into the technical description of meds etc as brands are different everywhere.The injection was a cocktail of a local anisthetic, pain killer/relexent and steroid.
The pain relief was great and the effects lasted about six weeks at the beginning. over time I had to have the injections more frequently and stronger. Eventually I had to give them up because of side effects. Digestion problems and weight gain from the steroids. Doc was also afraid of long term bone weakening from the prolonged use of steroids.
I now know that the pain was more to do with fibro than my back problem.
Eight years ago, I had saline novocaine trigger point injections in my back. It was the most painful thing that I ever went thru. I would come home crying from the treatment and never get relief. I quit after a bit, because it was just too much to bear. I had the same experience from chiropractors. It was so very painful and I thought it only made things worse......not better.
P.S. It could just be another of those treatments that work on some people and not on others.