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Old 07-29-2005, 02:12 PM   #1
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Question appointment with new doctor

Hi, this is my first posting. I'd like everyone to know I'm dyslexic. can spell but can't type what I want to all the time. Please bear with me. I have had fatigue for close to 18 months and pain for close to a year. I have a lot of other symptoms of FMS as well. It's been growing in intensity. I have been referred by my PCP to a pain specialist. I'm not sure if I should mention what I think the problem could be. I don't want to get off on the wrong foot with this new doctor by implying I know more than he does. I found the "Fibromyalgia for Dummies" book very helpful. I'd appreciate any input from anyone out there. You guys are part of a club no one really wants to be in. Thank you so much. I look forward to some guidance. One question. Is a low-grade fever an on-going problem with FMS?

 
Old 07-29-2005, 03:44 PM   #2
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Re: appointment with new doctor

Welcome Judith! Just my humble opinion, I would approach the pain doc with the idea that you feel you have fibro, but I always want to hear what the docs have to say before I make a judgement on whether they know what they are talking about or not. In other words, let him tell you first and then you tell him what you may think. I appreciate docs who listen to my opinion and make rational arguments as to why it can't be a certain problem or why I don't need a certain medicine.

Good luck, let us know how you are doing.
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Old 07-29-2005, 04:32 PM   #3
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Re: appointment with new doctor

Hey good luck, I hope you get good news, but we are here for you, I am new to sso we can learn together.

 
Old 07-29-2005, 05:36 PM   #4
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Re: appointment with new doctor

Welcome Judith,

I have found in my journey and search with fibro that the best thing to do with doctors is tell them your aches and how you are feeling overall. I would mention that you feel you have Fibro and do not play dumb, because you are not. Then, let them be the one to make suggestions and such. You can always say that you have read up on it and this is your take on the situation. Doctors are strange creatures in the sense that they like to be the decision makers and the ones that know more than the patient.

Don't let them push meds on you in the way of saying, "just take this, and this, and this"....any good doc will not do that and will talk with you in a compassionate way. A good doc will always listen. You know your body and and you have read up on fibro. It doesn't hurt to try things. Always ask for samples before you buy a med, this will make the doctor more aware of what they are giving you and why.

In my experiences, the one doc that always seems to give me the most time was the pain specialist. I hope this turns out to be the same for you.

For some reason, I have also found myself doing this, a doc will ask, "how are you doing" and before I know what is coming out of my mouth it is "oh, fine". LOL...Many people I have talked with say they do the same, why, it is a mystery. THere have been times that I have been chasing a doctor down the hallway to tell them something else because they did not answer my question or given me the chance to even ask the question.

The only reason that I would say any of this to you is that I worked in a doctors office and unfortunately to many times the patients were not given enough time. A lot of this can be blamed on the Insurance companies.

Just be honest, if you are not happy with how things turn out, if you go back to the doctor tell them or seek out another one.

I have found so many times in life that I stress over things and think that everything is going to not work out when going to a doctor. Many times I am so wrong and I come home with a smile since things went great.

Good luck my dear and let us know what happened and how you are doing. This is a great place for love and support.

Peace and love, Janet

"Compassion can help heal the World"
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Old 07-29-2005, 06:05 PM   #5
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Re: appointment with new doctor

I agree with hangin! I had been through a handful of doctors trying to get a freakin diagnosis and I always received hesitation and disbelief. the first time I met the doctor I finally got a diagnosis from I went in the office pretty fed up saying I chose you after leaving a few doctors because I'm almost positive I have fibromyalgia I know you treat patients with fibro and I just want a yes or no, I'm tired of getting looked down upon and sent on my way, I just want to get treatment for whatever it is i have. and I think by being firm, polite but firm, I was finally taken seriously, I went in with a brief list of symptoms and how long and frequency of them and he did a diagnostic test and ran some blood work and by the trigger point test and basic evaluation and symptomology diagnosed me with fibromyalgia.I think I was really lucky too because I had seeked out a doc that treated fibro and was familiar to it. all you need to do is gather up a handful of doc names, call the medical office and tell them you are considering doc.(insert last name here) as a new primary care physician and would like to know if he treats or has treated other patients with fibromyalgia-they will tell you if they know and if they truly don't they can find out very easily. anyway-I tend to ramble but go into the office with a brief list of your symptoms and that you feel you may have fibro because you know of others that have it and you experience the same symptoms and if you have a decent doc he will do a trigger point test and other physical stuff and he will also run some blood work to rule out other illnesses that mimic fibro.good luck keep us posted

 
Old 07-30-2005, 11:11 AM   #6
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Re: appointment with new doctor

hello and welcome to the wonderful healthboards. my home away from home, lol!!!
maybe when you go to the doctor you can let him/her know that you have been doing research on your symptoms and let him know what you came up with and what he thinks of it. i am sure he will do some different test on you to eliminate what he thinks it could be. that is great you are going to a pain management doctor, they have alot of things that may be able to help you that may relieve some of your symptoms like injections and even different medications.
good luck and keep us posted with what happens at you visit.
robin (girl75)

 
Old 08-01-2005, 04:52 PM   #7
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Re: appointment with new doctor

Thanks for the replies. I see the pain specialist Tuesday afternoon. As part of my "new sympton of the day/week/month", I have developed a pretty bad amount of pain in my pubic bone of all places. Anyone else? Thanks for the concern and advise. The encouragement is greatly appreciated. I'll post when I have information. Meanwhile, prayers to all of you out there.

 
Old 08-03-2005, 03:51 PM   #8
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Re: appointment with new doctor

I got a definite diagnosis on Tuesday. After a long, long wait for the doctor to come in ( I rested on exam table) I got a diagnosis in less then 10 minutes. He read the forms I had filled out, asked a few questions and pushed on your basic 18 tender points. He got half way thru, grabbed the Fibro brochure for a reminder and prodded away. He then announced I had Fibro and he was sending me to a doctor here (oregon) that specializes. I am also getting MRI on hips and pelvic area. He thinks I have too much pain when walking than fibro should cause. He is testing blood for arhtritis. I'm still taking this all in. I was able to obtain a temporary handicapped parking permit. I need it here at work. How many of you are able to hold down full time job outside the home? Anyone care to tell me their age? I'm 62. This is NOT a better late than never thing. This is such a helpful board. Thanks for the replies.

 
Old 08-04-2005, 08:05 AM   #9
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Re: appointment with new doctor

Judith I am glad you finally had a doc who listen to you. I am sorry you have joined the ranks of us fibromights, but glad you know what it is.

I actually had to give up my job. I did work full time and kept reducing my hours until I was finally working two shifts a week and when business was slow I told them to cut my hours out first if they needed too and give the hours to those who needed them for the pay and the benefits. I am now 56, was diagnosed in 2003 but I had a lot of symptoms before that. As have many I ignored the symptoms and kept going to take care of my family and get my kids through school and off to college and beyond. I finally had to give in and cry 'uncle' and go to the doc in'03 and give up my job in'04.

I am glad you found this board, this group of people are so supportive and have such great info and ideas to share. Keep us posted on how you are doing.

Glojer

 
Old 08-04-2005, 10:29 AM   #10
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Re: appointment with new doctor

Hu Judith, welcome

Glad you have found this board. I had searched the web for a long time until I found this site. The board is supportive and loving, full of information and everyone can relate to what you are going through.

I had to quit work in 1998, I am now 49. It was not an easy decision but there were two factors that entered into it. The pain I could still handle at the time but I was making to many mistakes at work. This was not fair to my clients and I didn't want to ruin my good name. Of course I miss it terribly, not only monetarily but the interaction with people. I wa lucky and was able to get on life time disability with no problems (that is another subject). I had my doctor give me a life time disability parking permit since I didn't know when and how long I would need it. On a good day, I do not use it. It is great to have on those tough days. My husband also became ill in the last year so I am able to be home for him, there are reasons for everything.

Nothing is forever and we never know what the next day will bring.

I know it is a lot to take in. My experience was that people around me didn't get it. Don't be angry with them, it is just that for some people if they do not see something wrong they can not fathom that you do not feel well. That is where coming to this board is a life saver.

Keep us posted on what happens at the PM doc. Hope all goes well. We care.

Hope everyone is painfree and/or in little pain today.

Peace and love, Janet
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