Originally Posted by hummingbirdhope
They gave me Feldine and muscle relaxers, well Friday which was my third day of Feldine, I had and allergic reaction, so I am the wekend without anything because the office is closed, and I am truley hurting, so we will see what he gives me Monday. I hope it is something that helps because the pain is pretty unbearable right now.
So sorry you are having such a hard time, I hate to see anyone hurt.
Feldene is a very old medication and I know of a lot of people who have had very bad reactions. One on my friends almost died from it, I don't know if it was an allergic reaction or what, she was found on the floor of her bathroom in horrible stomach pain and hardly breathing. I will not bore you will details but the doctors went oops!
I won't touch that medication, not just for what happened to my friend but also when I was young it gave me terrible stomach pains. They also gave it to my husband who has a history of stomach problems so I would not even let him take it.
A blessing in disguise that you coudn't take it. I don't know what your symtoms were but IMO it is not a good med. For some I am sure it works. There are so many other meds to give that I do not understand why docs still give this out.
Ask the doctor for samples of meds he prescribes you. A lot of times they have them but forget so all you need to do is suggest that he give you samples before you buy a script, it can't hurt to ask.
Make sure he explains why this feldene worked on your body like this, even if it is a guess on his part. That way it stays in his brain that you should not take it nor anything in that family.
Tell him everything about the stinging in your legs, etc. Be your own advocate. You obviously need something for your pain so do not let him make you feel it is in your head nor not as bad as it is. Sometimes they do not know what to do, however, until they can get it together you should not have to live in pain. I have had fibro for 11 years and understand what you are going through with docs.
Tell him you didn't call the office over the weekend since you didn't believe anyone would help you. There is always a doctor on call, unfortunately, if it is not your doc they do not help much but next time give it a try. Having an allergic reaction to a med is serious and they should take it as so. You could have ended up in the hospital IMO. As you can see I do not like Feldene at all. There have been warnings about his med for years.
When you see you family doc tell him that you feel that you are getting no where with your care. A good doctor will listen to their patients and nor take offense. They are human and have feelings. THey need to know that you are unhappy and suffering. I am looking on the bright side and saying that he is going to help you. You should not be in unbearable pain, espeically when you have a doctor. That is unexceptable to me.
AS Girl 75 said, not all docs like to give something for pain to fibro patients so you may need to go through a few doctors. If it becomes an issue, get your phone book out and call the docs and ask the nurse if they treat fibro and what is there policy. Do not be afraid that they will judge you, they usually do not have the time. Don't get discouraged, eventually you will find someone.
I asked my GP to send me to a pain speicalist and this PM doc has been my rock. Never judging and knowing I would not be there if I wasn't hurting. Since you already are diagnosed, this could be your best route. In the meantime, tell your family doc again what is going on and how you are feeling. Hopefully the compassion a doctor is supposed to have will come forth. He should try everythiing in his power to help you, that could be sending you to a PM doctor as well as a rhuemy.
Sorry to ramble but I get a little hot under the collar when anyone suffers. THere are too many options out there to not get some relief.
Going to a shrink is not a bad thing, it can help so much to talk with someone. When you are in pain it does a number on your brain as well as your body, so don't look at going to the shrink as a bad thing. I couldn't find one in my area otherwise I would have gone in a heartbeat.
By changing your lifestyle they probably meant that you will have to do things differently. To say "Live with it" is a sweeping statement so try to chalk that one up to them having a bad day. With fibro, depending on how bad you have it, you have to set limits on yourself and you will have good and bad days. This board is a great place for you to be.
IN NO WAY AM I A DOCTOR OR A MEDICAL PROFESSIONAL, I SPEAK FROM EXPERIENCE ONLY AND OPINION.
I am a little under the weather today so I hope I got the succession of doctors correct.
Good luck and please keep us posted. I am very interested as to see what the docs have to say, everyone else on this board also cares. You will get alot of info and support here.
Peace and love, Janet
"Compassion can help heal our World"