Originally Posted by hummingbirdhope
I know this is a personal question but can you tell me what meds have been effective for all of you with FMS. I just keep getting switched and nothing is helping the pain. Thanks
Hi Hummingbird, Don't get discouraged. With FM there is no magic pill or treatment since everyone is so different.
They switched me for years until I found something that worked, doesn't take the pain away totally, but makes it livable. There are some wonderful days that my pain is barely there....those are good times.
I go to a PM doc and he is the only one I trust. I take oxycontin 40 mg 3 x a day and soma for spasms. Without the oxy I am in bed and unable to move since my whole body burns. I also have two herniated discs in my lower neck so he gives me shots for this.
I also go to acupunture and a chiropractor. THis releases a lot of my stress.
It might take a while before a doc will put you on something strong since they have to have a relationship with you in order to protect you and themselves. It all depends on the doc and how they feel about certain medications and FM.
After years of blood tests and research, my doc found out that for some people who have FM they have Human Growth Hormone deficiency. Well, I had none, minus, zip, zero. As you get older the level does go down but you should maintain some in your system. It also has something to do with the pituatary gland.
I have to take shots everday and since I have been on this med I can get out of bed with some energy. Before I had no energy and this med helps me tremendously. The only drawback is that some insurance companies do not pay for it and it is very expensive. I battled with mine for a year and they denied me, no more appeals. I am now going through an organization that strictly deals with people with that problem. Anyway, this may bore you but this is a med that has worked for me.
As Cherbear said amino acids can help, I also use chelated calcium for the terrible leg pain and cramps. It helps a lot. You take it at night and it is cheap.
Keep searching and telling your docs you needs. Eventually you will find the right doc and the right med. There is also something that beats all the meds, exercise. I know it is hard since when you are in pain it is hard to move. However, it is one of the best pain killers. IMO
Hang in there, hope you feel better.
Peace and love, Janet