Hiya GodsGirl,
Just a message of hope for you. I have been disabled with various medical problems since I was young. I was diagnosed with lupus when I was 16, this really changed my life in a big way. Since then I have had lots of medical and surgical interventions because of different physical conditions. When I was diagnosed with fibro about a year ago, I though "You have got to be kidding, how much more do I need". I can't change it though, so I am trying my best to be of support to others who also need help with dealing with it.
I didn't have what you could call a conventional life growing up. I missed out on lots and lots of things. What I did though was to realise eventually, that whilst I couldn't do many things, they were lots of other things I could do and do them well. I had a very stressful job, but thrived on it, I have travelled a lot, getting to do things which were only in my dreams when I was younger, the icing on the cake for me was that I got married 16 years ago. None of these things did I ever think were going to be possible when I was 16 and diagnosed with my first horrid illness.
Honestly, you will get there in the end, it is very difficult I know, but try not to give in to the demons. Fight them and come out on top. With the support and love of your wonderful family, and the care and back-up from coming here to be with others in the same position, I know things be be ok.
I really enjoy the things I do in my life, limited though it is. When I achieve something, I feel so good about it. I actually give out emotional advice and support to other people who have the same type of medical conditions as I do, and this is one thing I enjoy doing tremendously. I have taken a not very good sittuation and turned it around. This has helped me to deal with all that I have going on with me. Don't get me wrong, I do have days when I think "no more please", but those feelings don't last for long. I come here and I share, and then I know that I am not alone in any of this.
Honestly, you will get there in the end, it is very difficult I know, but try not to give in to the demons. Fight them and come out on top. With the support and love of your wonderful family, and the care and back-up from coming here to be with others in the same position, I know things be be ok.
I do so hope that you are a bit better soon.
Lots of love
goldenwings
