insight needed (also a bit of a vent)
I've read the sticky about general information on fibromyalgia (the first post at least...the ones after are a little too indepth for my concentration right now).
Please tell me if any of you have experienced something similar/know if this is possibly related to the syndrome.
First of all, cold flowing sensations, particularly in my head. Feels like it is actually in my brain and that it is a 'nerve' that is causing a release of coldness. Sometimes it's in my inner thighs also.
Extreme nerve discomfort/hypersensitivity. Now very few web sites have mentioned nerve discomfort, which makes me think perhaps it's not F. Actually, I only came across one that has. Which leads me to explain that just this past Fri. I was at a neurologist. He found nothing wrong. About 2 months ago I also got an emg because I thought I had carpal tunnel -- the test showed nothing. So pehaps it only feels like nerves, but it is not? Now since neither doctor found anything, and F. can only be diagnosed through the stimulation of pressure points, perhaps I'm headed in the right direction? Although I should likely get a second opinion. *confused*
I have also read that this is not a progressive illness. Now is this wrong? If it is not, then I do not have it because just about everyday it's something different -- is that normal? Or does progressive mean it will not cause damage to the body? If it is progressive concerning pain and discomfort, is there ever an instance where it doesn't turn into agonizing pain? Or is the outcome usually unfavorable? Has anyone been shown to have F. without much progression?
Now to the venting part:
Sometimes it feels like a person is chiselling away at my bones. Mainly my ankles, and now my sternum. The beds of my fingernails even hurt, and the skin between each finger. I cannot stand still without shoes on if it's on a hard surface -- nearly unbearable. It makes standing up in the shower quite the feat, or I simply do not stand at all. So I have to put a towel underneath myself because sitting down on a hard surface is also terrible.
Noise has bothered me for over a week now, but last night was the defining moment. There was a fly buzzing around, and if it would get too close, the sound was practically torturous. I thought I was going insane. I mean a fly? Come on.
It has also 'spread' to my face. Tingling lips, and putting on eye makeup has gotten to be semi-uncomfortable.
So I plan on making an appointment with a rheumatologist this week. Good idea? Any other doctors I should consider going to?