Hi Angie,
Welcome!
Wow, your household must be very supportive and different. It seems to cross all boundaries, Dad, Mom, You, Sister, Preteen Niece and Teenage Niece. I have never heard of a family having so many of its members that has Fibro. I find it interestingl
It sounds like your family has a great sense of humor. You would have to with all of you dealing with Fibro.
I am surprised that no doctor has recommended that they do a study on your family. I mean this in a nice way. I wonder what kind of information they could get regarding genetics, skipping or not-skipping generations, etc. Your family could be a fountain of knowledge and lead to some understanding of Fibro. Just a thought. There are teaching hospitals, research centers and hospitals that do a lot of research and testing that just might like to get their hands on you, I mean this figuratively, do sudies, collect data, things that would not be hurtfull to the body. Your eating habits, illnesses in the family, simple things like that we might be able to learn a lot from. Something could come out of this that could bring a world of help to fibro patients.....that would be awesome
Something good that came out of a difficult situation.
At least you all understand each other and how each one of you feel. That is a big hurddle in itself when family members who do not have it just don't get it. Not that I blame them, it is the unknown that scares them.
You could do your own research when you are up to it and write down when, whom, symptoms, etc. of the family members who have it if this is something you would be interested doing. I find it fascinating.
I have read that they feel that fibro may be genetic, if so, your family is the living proof. When your doc said it presents itself earlier in each new generation, there must be a reason he says this and where does he get this info? I find this all very interesting.
I hope you do not take offense from anything I said. I mean it in the sense that you may bring help to millions of people. You never know.
If you care to share, are all of you on the same level of illness? How do you handle the illness with so many of you not feeling well? I cannot stress enough, I say this with caring in my heart.
You came to a great place to get support, this is a wonderful board. Hope I didn't say anything that bothered you.
Peace and Love, Hangin
