Hello Nean, I highly recommend you be open minded to getting the sleep study like your Nuro suggested.
I have had fibro for almost 13 years and I just got my sleep study last month after I got sick and tired of sleepless nights and being forced to be at work at least 8 hours a day and productive even though I was flaring and feeling like crap. I am in the military and I 2 years ago I switched assignments and moved to a new place. My ex-husband, (extremely vindictive) started problems for me through people he knew where I went and I have been under the microscope for almost 2 years by people who do not understand me and are not compassionate at all since I look like there is nothing wrong with me. My supervisor told me only two weeks ago that he believed I was faking it just to get attention.....unreal. I have had so much patience with this guy who is so very closeminded. I could get him in big trouble, but he really believed I was a bad person....wrong. He is slowly coming around as my new Commander is showing me tons of support so it is politically correct to begin to support me......amazing. People are so funny and predictable sometimes, but they do mean well. People who are faking it deserve that kind of treatment so chose to to educate him verses hurt him, but I am definately the real Leader and I still insist on going to my Doctors appointments.
The reality is I hate attention and I just was frustrated at the lack of empathy when I was struggling to just survive. I have frustrated him and my leaders because for the past 6 month ever since I came back from Iraq in Feb 2005, I have gone to the doctor for almost every symptom looking for answers to old problems, and some new ones I had been "sucking up' and struggling with. Their lack of appreciation for me having such a strong desire to serve my country that I have been doing everything I had to do to meet the high standards against the odds to be happy and productive has caused me to for once in my life put "Me first", for a BIG change.
I got sick in Iraq with this awful virus that got almost everyone else too that I served with so when I came back to my unit in the States and started running again, the cold flu like symptoms started really bothering me and aggravating my fibromyalgia which forced me to put the exercise on hold. That was enough to upset a lot of people. We really are a family in the military but when someone is not conforming, they can be brutal and really put tons of pressure on you to "get it together" and no amount of explaining can be done to the average healthy person who has never been sick in their life.
Bottom line is after I had the sleep study they diagnosed me with jumpy leg syndrome and undiagnosed sleep disturbances.
They may find out why you are not sleeping good and you will know and not guess like I did for so many years. I probably had bad sleep apnea before my Tonsillectomy in April because my husband said I snored so loud before, but not very much after my surgery.
The sleep study is not bad at all. It is a little awkward to have the little patches all over to evaluate your sleep, but it is worth every minute of it in the long run. Think positive and let the Doctors do their job and give them a chance to find out some more about how your brain is acting during sleep, or lack of it.
They found out that I NEVER went into stage IV sleep and validated the fact that I have Fibromyalgia. I knew that but it shut up the nonbelievers and I started getting better care from my Doctor. I found that a interesting but nevertheless it added a lot of credibility to my case.
I have had restless arm and leg for years and I know it is a result of not sleeping well. I have found out that when I take a good amount of Elavil, 20-50mg a night it aggravates this condition and it worsens it although it may help me sleep and with fibromyalgia. I was unaware of this until several other people noticed it worsened their Restless leg and then after reflecting over my own experiences I have realized it did the same for me so I am OFF the Elavil, possibly for good.
I just got a letter in the mail the day before yesterday that stated my Doctor has also diagnosed me with polyarthritis and has authorized me to have 6 visits to a specialist for treatment.
What is polyarthritis? This came as a surprise to me but with all of the undue stress, I know why I am having undisturbed sleep.
As a result of the sleep study, my Pulmonologist has put me on Requip and I have been taking it slowly for the past 2 weeks too build up to the required dosage. That is ALL I am taking for now.
I usually have more problems with Fatigue rather than a lot of pain except when I am flaring, but this past week I have been aching in my neck/shoulders, hips, hands/feet, and lower back.
One Rheumy in Oklahoma actually took X rays of my neck/shoulders and lower back right before my divorce in 2000 because I was in such pain. The X-rays showed my muscle spasms were so bad that they were pulling my upper and lower spine out of place and causing the pain so I took Skelaxin for about 3 weeks and it caused my muscles to relax and the pain subsided. Something to think about.
I am very sensitive to meds now and my liver enzymes shot up right after some hard exercise this year so I will not take any meds for pain except the brutal headaches, that is where I drawl the line.
Now I am going to have a large tumor removed on my right hand on my 5th metacarpal below my pinky finger and my hand surgeon is very concerned that there is not enough bone there to stabilize the finger even when he uses a bone filler and 3 pins. I am sure if it can be fixed he can fix it I just hope it is not a bone cancer.
I had a tonsillectomy in Apr 05 and was miserable for a couple of weeks but the Percet was such a relief to me. I was not nearly as depressed and my body aches I was accustom too were GONE while I was on that drug.
I am so looking forward to having time off work and Percet and I plan on taking ever bit they give me. I am too strong to be addicted to anything, but I remember being pain free, if only a short while.
Overall, I don't mind the pain of FM because it lets me know I am alive, still breathing, and it feels like the day after having gone to the gym and hit the weights hard feeling the burn of exercising. I actually can get a high of some sort by feeling the pain and burn in my muscles.
In my case having to bear the cross of FM has made me a very very compassionate, caring, loving forgiving, longsuffering soul more so than I was before FM. I was not nearly as tuned into people and concerned with their issues as I am now and I DO CARE so very much about others. It has made me a much better person and that having FM is a small price to pay for turning into such a good person. Sure I am not as successful to others as I should have been or could have been but unlike others, I am truly happy with the person I am at peace with me and that is priceless. I have about every symptom of FM including depression, anxiety, and an adjustment disorder because I am not fitting into my current unit and I miss my daughters, they live with their father, (temporarily) and I dislike being alienated and being discriminated against because I am not living up to my rank, I was actually demoted in May 05 after I got sick, long story, but that really made angry and determined to make me find out why I was sick more so than before I deployed to Iraq. People can be so hateful to some and loving to others but I know God is fighting for me and ultimately HE is in control and is very wise and WILL always confound the wise. What comes around, does go around and I don't have a vindictive bone in my body cause I know vindicating my enemies is his job so I just love them and realize that they do not know any better.
Several medical reports have been sent as a package to our Headquarters and my Doctor has put me in for a medical retirement and I am keeping my fingers crossed that it will be approved. Although I am a wreck mentally and physically under the abuse, I yearn to get out and finally rest my weary soul.
I have just found this board a couple of weeks ago, but I love you all and I am really inspired by your loyalty to each other, faith, courage, and strength. I probably won't post very often, but I do enjoy reading your post.