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Old 08-18-2005, 10:04 AM   #1
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Question the creepy crawlies???

Hello
I have a ?.....the creepy crawlies that i have read several people describe...

Sometimes at night i spend the majority of the night itching one spot and then another..feels like bugs are crawling on you...?? Is this like what others have experienced??-

I am still going thru the process of being diagnosed, but the more i have read, it seems i have fm.

- trouble sleeping/ night terrors
buring between shoulderblades
hands tingle, feels asleep
ibs
- tmj- dental problems...if i get a filling, its only a matter of time before i end up having a root canal......and the root canals dont heal properly..the tooth eventually gets pulled..
-forgetfullness..(while in the shower i cant remember if i washed my hair)
-left leg aches..some shooting pain
-shingles 4 years ago...pain is still there
-hubby has to pull me out of bed because of my neck/ back being painfull/stif

-left my job because i would be up for 3 days in a row...then falling asleep while driving (thats only 1 of the reasons)
-cant stand for long periods
-costochronditis
- feels like i have a bladder infection, then normal 2 days later. (no blood in urine)
-neck stiff
-my mom also had weird problems, none that were explained (she has passed due to cancer)

My neuro wants a sleep study...but i am tired of being studied.

My pcp and i talked about all of the above and all of the mris (3), bloodtests, urinalysis, ultrasounds, emg all normal. (except for a bulged disc)
He said that i probably do have fm, and to do the best that i can to fight the depression.

I cannot take antidepressants, i feel like i cant breath while on ultracet.
So on bad days i have to take vicodin for pain, and xanax helps with the pain too.

Sorry when i went so long, but when i read about the creepy crawlies....i thought, great..is this another sign?

Thanks for listening,

nean

 
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Old 08-19-2005, 06:24 AM   #2
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Re: the creepy crawlies???

Oh those darn invisible bugs, I get them also. There have other posts about them also, they sure drive you up a wall.

Hugs, Linda
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Arthritis, cervical and thorastic

 
Old 08-19-2005, 07:16 PM   #3
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movin slo HB User
Re: the creepy crawlies???

Yep, the old creepy,crawlies! Man I hate to have them visit. I get so hyper over the feelings that sometimes I'm up at 3 a.m. taking a hot shower. Figure if it is bugs , they can be drown in soap and hot water for their trouble. And no I never have seen any bugs lol. Some times I feel like I'm trying to crawl out of my own skin. Horrible feeling.
My Doc. told me I could take a benadryl and some times that helps. Hope you find some relief.
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Old 08-20-2005, 07:57 AM   #4
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bilij HB User
Re: the creepy crawlies???

Goodmorning folks, several weeks ago a dermatologist told me my
itch was caused by nerve endings overacting. (He did not know I have
fibromyalgia and I didn't tell him.) The little tube of cream he prescribed
was expensive, almost $100.00. It does stop the itch, but as one of you said,
it's from one place to another or all over. When I'm really busy and interested
in what I'm doing, I don't notice it nearly as much. A hot shower works for me too.
With fibro, we fell every little ''quirk'' in our bodies and when something hits hard,
I just say, ''this too shall pass.'' I hope you have an itch free week-end.
Bilij

 
Old 08-20-2005, 05:25 PM   #5
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Re: the creepy crawlies???

Bilij Glad you got something for relief I have psoriasis,(very dry skin) My Derm put me on steroid cream. It stopped the itching. But I was on it for so many years (Without warning) that you only use it for 2 weeks at a time and off for 3 to4 weeks. The result is my skin is so thin like some in their 70's, I bump into things and I end up with a hematoma. My family Doc. took me off it and I take hydoxizine .25 mgs. They use this pill for hives and other reactions. It works very well, but it knocks me out. Right now I'm not on the Hydoxizine. I'm on so much other stuff. Any way glad you got something. Just be Care ful if it is steroids.


Down with the creepy~crawlies !!
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Old 08-24-2005, 10:36 AM   #6
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Unhappy Re: the creepy crawlies???

My skin acts funky a lot. Mostly in a painful way, e.g. Like having a mean sunburn and something scratches you.
Can't shave my legs, it hurts, plus, I haven't been practicing to be a contortionist! It's hard for me to get my body to manipulate certain positions.

Today it's bothering me a bit. Touching my arms is too much.

thommie
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Old 08-24-2005, 12:22 PM   #7
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movin slo HB User
Wink Re: the creepy crawlies???

Hi Thommie,
Sorry your arms are bothering you today. When my arms and everything hurt mine is solid pain and sometimes putting on a warm sweater or shirt helps. but when the nerve-endings act up I have not found anything to help that I have walked around the house all summer(just about) with sweat-pants on and a warm shirt on We have A/C, and I get cold and achey easy. Hope you feel better soon
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Old 08-24-2005, 07:36 PM   #8
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Re: the creepy crawlies???

Hey Thommie,
I'll have to admit, I too have those darn creepie crawlies every day. Drives me nuts, it's like I have an obsessive-compulsive itching disorder or something and I, like movin slo have paper thin skin. I don't get hematomas but I bump into something or scratch myself just a little too hard and it's always a cut or gash that bleeds. You can't imagine how many scars I have (well maybe you can) but i'll just say I don't go outside without long pants on, and at least a sort sleeved shirt that covers my back and shoulders. What causes this thin skin? I've had it all my life and my father is the lovely man I inherited this from.
Bilij, Do you remember what that tube of cream was that you were on for the creepies, was it a steroid cream?
KSP

Last edited by ksp; 08-24-2005 at 07:40 PM. Reason: Boy thats a tongue twister "sort sleeves shirt" i meant "short" I think i'll leave that one there.

 
Old 08-25-2005, 12:35 PM   #9
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bilij HB User
Re: the creepy crawlies???

Hi ksp, the name of the cream is Zonalon (doxepin hydrochloride). I've
only used it a few times because the ''creepy crawlies'' as we all call
it, moves from one place to the other. There's no way this little tube
would last long, so I just don't use it. I haven't looked it up on the net
and there wasn't an insert in the box. I will look it up and post again.
Although I am dark skinned, I inherited thin skin from my dad I bruise
very easily and being 74 makes it worse.
Bilij

 
Old 08-25-2005, 12:50 PM   #10
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Re: the creepy crawlies???

ksp, Zonalon isn't a steriod cream, but the list of side effects is long.
(This must be a fairly new medication.) I've been reading your other posts.
I wish we could sit down and talk over a cup of coffee. When I type words,
they don't sound the same as when you talk face to face. My prayer is that
you will make wise decisions.
Bilij

 
Old 08-25-2005, 03:35 PM   #11
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Re: the creepy crawlies???

Hi everyone,
I forgot to mention that warm showers or baths(I don't have a tub) helps with the creepy~crawies and sore achey muscles. I have them to day. Any body want to Share? HE_HE. They are FREE
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Old 08-25-2005, 04:41 PM   #12
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Re: the creepy crawlies???

Keep your creepy crawlers. I swear this thread started mine up for three days in a row I have them. as soon as I scratch one another dozen appear. I think we should all give our creepy crawlies to whoever started this thread, lol.

Hugs, Linda
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pa235

Fibromyalgia
Myofascal pain syndrome
Costochondritis
Arthritis, cervical and thorastic

Last edited by pa235; 08-25-2005 at 04:44 PM. Reason: creepy crawlies, crawling on my eyes]

 
Old 10-15-2005, 12:23 PM   #13
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Lightbulb Re: the creepy crawlies???



Hello Nean,

I highly recommend you be open minded to getting the sleep study like your Nuro suggested.

I have had fibro for almost 13 years and I just got my sleep study last month after I got sick and tired of sleepless nights and being forced to be at work at least 8 hours a day and productive even though I was flaring and feeling like crap. I am in the military and I 2 years ago I switched assignments and moved to a new place. My ex-husband, (extremely vindictive) started problems for me through people he knew where I went and I have been under the microscope for almost 2 years by people who do not understand me and are not compassionate at all since I look like there is nothing wrong with me. My supervisor told me only two weeks ago that he believed I was faking it just to get attention.....unreal. I have had so much patience with this guy who is so very closeminded. I could get him in big trouble, but he really believed I was a bad person....wrong. He is slowly coming around as my new Commander is showing me tons of support so it is politically correct to begin to support me......amazing. People are so funny and predictable sometimes, but they do mean well. People who are faking it deserve that kind of treatment so chose to to educate him verses hurt him, but I am definately the real Leader and I still insist on going to my Doctors appointments.

The reality is I hate attention and I just was frustrated at the lack of empathy when I was struggling to just survive. I have frustrated him and my leaders because for the past 6 month ever since I came back from Iraq in Feb 2005, I have gone to the doctor for almost every symptom looking for answers to old problems, and some new ones I had been "sucking up' and struggling with. Their lack of appreciation for me having such a strong desire to serve my country that I have been doing everything I had to do to meet the high standards against the odds to be happy and productive has caused me to for once in my life put "Me first", for a BIG change.

I got sick in Iraq with this awful virus that got almost everyone else too that I served with so when I came back to my unit in the States and started running again, the cold flu like symptoms started really bothering me and aggravating my fibromyalgia which forced me to put the exercise on hold. That was enough to upset a lot of people. We really are a family in the military but when someone is not conforming, they can be brutal and really put tons of pressure on you to "get it together" and no amount of explaining can be done to the average healthy person who has never been sick in their life.

Bottom line is after I had the sleep study they diagnosed me with jumpy leg syndrome and undiagnosed sleep disturbances.

They may find out why you are not sleeping good and you will know and not guess like I did for so many years. I probably had bad sleep apnea before my Tonsillectomy in April because my husband said I snored so loud before, but not very much after my surgery.

The sleep study is not bad at all. It is a little awkward to have the little patches all over to evaluate your sleep, but it is worth every minute of it in the long run. Think positive and let the Doctors do their job and give them a chance to find out some more about how your brain is acting during sleep, or lack of it.

They found out that I NEVER went into stage IV sleep and validated the fact that I have Fibromyalgia. I knew that but it shut up the nonbelievers and I started getting better care from my Doctor. I found that a interesting but nevertheless it added a lot of credibility to my case.

I have had restless arm and leg for years and I know it is a result of not sleeping well. I have found out that when I take a good amount of Elavil, 20-50mg a night it aggravates this condition and it worsens it although it may help me sleep and with fibromyalgia. I was unaware of this until several other people noticed it worsened their Restless leg and then after reflecting over my own experiences I have realized it did the same for me so I am OFF the Elavil, possibly for good.

I just got a letter in the mail the day before yesterday that stated my Doctor has also diagnosed me with polyarthritis and has authorized me to have 6 visits to a specialist for treatment.

What is polyarthritis? This came as a surprise to me but with all of the undue stress, I know why I am having undisturbed sleep.

As a result of the sleep study, my Pulmonologist has put me on Requip and I have been taking it slowly for the past 2 weeks too build up to the required dosage. That is ALL I am taking for now.

I usually have more problems with Fatigue rather than a lot of pain except when I am flaring, but this past week I have been aching in my neck/shoulders, hips, hands/feet, and lower back.

One Rheumy in Oklahoma actually took X rays of my neck/shoulders and lower back right before my divorce in 2000 because I was in such pain. The X-rays showed my muscle spasms were so bad that they were pulling my upper and lower spine out of place and causing the pain so I took Skelaxin for about 3 weeks and it caused my muscles to relax and the pain subsided. Something to think about.

I am very sensitive to meds now and my liver enzymes shot up right after some hard exercise this year so I will not take any meds for pain except the brutal headaches, that is where I drawl the line.

Now I am going to have a large tumor removed on my right hand on my 5th metacarpal below my pinky finger and my hand surgeon is very concerned that there is not enough bone there to stabilize the finger even when he uses a bone filler and 3 pins. I am sure if it can be fixed he can fix it I just hope it is not a bone cancer.

I had a tonsillectomy in Apr 05 and was miserable for a couple of weeks but the Percet was such a relief to me. I was not nearly as depressed and my body aches I was accustom too were GONE while I was on that drug.

I am so looking forward to having time off work and Percet and I plan on taking ever bit they give me. I am too strong to be addicted to anything, but I remember being pain free, if only a short while.

Overall, I don't mind the pain of FM because it lets me know I am alive, still breathing, and it feels like the day after having gone to the gym and hit the weights hard feeling the burn of exercising. I actually can get a high of some sort by feeling the pain and burn in my muscles.

In my case having to bear the cross of FM has made me a very very compassionate, caring, loving forgiving, longsuffering soul more so than I was before FM. I was not nearly as tuned into people and concerned with their issues as I am now and I DO CARE so very much about others. It has made me a much better person and that having FM is a small price to pay for turning into such a good person. Sure I am not as successful to others as I should have been or could have been but unlike others, I am truly happy with the person I am at peace with me and that is priceless. I have about every symptom of FM including depression, anxiety, and an adjustment disorder because I am not fitting into my current unit and I miss my daughters, they live with their father, (temporarily) and I dislike being alienated and being discriminated against because I am not living up to my rank, I was actually demoted in May 05 after I got sick, long story, but that really made angry and determined to make me find out why I was sick more so than before I deployed to Iraq. People can be so hateful to some and loving to others but I know God is fighting for me and ultimately HE is in control and is very wise and WILL always confound the wise. What comes around, does go around and I don't have a vindictive bone in my body cause I know vindicating my enemies is his job so I just love them and realize that they do not know any better.

Several medical reports have been sent as a package to our Headquarters and my Doctor has put me in for a medical retirement and I am keeping my fingers crossed that it will be approved. Although I am a wreck mentally and physically under the abuse, I yearn to get out and finally rest my weary soul.

I have just found this board a couple of weeks ago, but I love you all and I am really inspired by your loyalty to each other, faith, courage, and strength. I probably won't post very often, but I do enjoy reading your post.

Take Care,

Carla

 
Old 10-15-2005, 12:58 PM   #14
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movin slo HB User
Thumbs up Re: the creepy crawlies???

Carla,
I'm sorry that your military family are closed minded group. And that you are having such a horrible time with it all. We all know Fibro.and it's partners are enough to deal with. God Bless this board. I would be in a rubber room with outThis Wonderful group of people You have found the right place when you found this board.
My prayers are with you on getting your discharge. warm hugs,and good strong energy being sent to you. Keep posting and let us know how things are going. You NOW have many,many understanding,loveing,caring people standing beside you,in front of you and willing to hold you up when you need it. Hang in there we are all with you!
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Old 10-15-2005, 03:15 PM   #15
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ceerose67 HB User
Cool Re: the creepy crawlies???

Quote:
Originally Posted by movin slo
Carla,
I'm sorry that your military family are closed minded group. And that you are having such a horrible time with it all. We all know Fibro.and it's partners are enough to deal with. God Bless this board. I would be in a rubber room with outThis Wonderful group of people You have found the right place when you found this board.
My prayers are with you on getting your discharge. warm hugs,and good strong energy being sent to you. Keep posting and let us know how things are going. You NOW have many,many understanding,loveing,caring people standing beside you,in front of you and willing to hold you up when you need it. Hang in there we are all with you!

Thanks SloMovin,

I think YOU and all of the other supporters are ANGELS and I love you all....

Carla

 
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