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Old 08-22-2005, 09:43 AM   #1
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New Drug for fibro????

Hello There,

Any information would be appreciated on this question. Thanks in advance.

My dear cousin was diagnosed with fibro a little while ago, she is really uptight and won't allow herself yet to share how she feels about it. It is her own "thing" and so I must bide my time before she accepts that I too have it, and am only trying to help and advise. I have to walk on eggshells with her at times, so I tend to let her think that things I say to her are her idea. She is a wonderfully warm person with a heart of gold, but anything physically wrong and she speaks as though nobody knows but she what it is like to have the pain. She copes her way, and so I must respect her wishes -for a while he he !! I don't say that with any form of malice, it is just the way she is. I don't take offence though because I know it is new to her and she has to come to terms with it and work out how to be open about it in her own way. I am there for her whatever though. I have asked her to join us here but she is not pc friendly.

Question : Have any of you taken a drug named Pregabalin (I think this is the spelling) for your pain? My cousin has been told - here in the UK - that it is not approved yet by our own licensing board. She can have it - maybe - but a monthly prescription will cost a small fortune. She was told it is approved in the US, but it will take time to be distributed here by our GP's.

Any input would be of help, and then I can let her know what my friends here say about it. I have to tread very carefully, so that I don't come across as a know-it-all. I only wish to help her, but I must approach it in a way that makes her comfortable. I got to know of this drug because my cousin actually said that her doctor had told her of a "wonder" drug in the US. I said that I hadn't heard of it but would ask around if she told me the name of it.

Thanks to you all.

goldenwings
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Last edited by goldenwings; 08-22-2005 at 09:51 AM.

 
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Old 08-22-2005, 10:01 AM   #2
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Re: New Drug for fibro????

Sorry golden I have not heard of it, but will be interested in what others have to say.

 
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Old 08-22-2005, 10:06 AM   #3
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Re: New Drug for fibro????

Hiya Glojer,

How are you doing? The other name - I thought it was the manufacturers name - is Lyrica. Any better?

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Old 08-22-2005, 10:12 AM   #4
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Re: New Drug for fibro????

hi golden,
i just did a search on the drug. it binds to the calcium in our bodies and regulates it. it is the sister drug to neurontin only is touted to work much better. i will be asking my doctor about it. it sounds like it is worth a try. do a search on your computer for it. you did spell it right.
your poor cousin. i think we all understand the fear and denial that goes with a new illness. we are here for you and for your cousin. in time she will find her way. you will find the right words to gift over to her. i cannot imagine you sounding like a know it all type. i simply do not see that as your style, girlfriend.
i sure hope we hear from someone here who has tried it. i will go back and read about side affects and such. my doc will know if it is one i ought to have in my body.
love and peace,
bluelakelady

 
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Old 08-22-2005, 11:31 AM   #5
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Cool Re: New Drug for fibro????

Hi goldenwings,
If there is a wonder drug here in the states I sure have not heard about it. So check on the spelling and keep us posted.
Best of luck with your cousin, Keep the faith.
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