Is this common with fibromyalgia? - Fibromyalgia Message Board

dorri · 08-27-2005, 07:04 PM

Hi all, hope someone can advise me. I've had a rough year last year with muscle/stiffness, fatigue and joint pain and was eventually diagnosed by a rheumatologist with myalgia and arthralgia. He put me back on prednisone, 10 , 7 1/2 and then 5 mg as a maintainance, and I was feeling much better with my muscles and joints. Problem is, the pain started again since the doctor tried to wean me off prednisone, even with a very minimal amount down of 1 mg. It seems to have triggered off the pain and stiffness. Now going back to the original amount of 5 mg no longer helps.
These last couple of weeks my body aches from top to bottom. In the last few days I've been experiencing burning skin which I never had before? When I say burning, it's burning! Is this a part of the myalgia or is this something unrelated.? My whole body feels the fire.
The doctor told me to remain on 5 mg and take a pain killer with it? I've already been taking tylenol 8 hr with it for the night, (for several months) I hate to add more to it.
Any advice would be appreciated.

pa235 · 08-28-2005, 09:02 AM

Yes, the burning skin is a part of FM. I get it often, feels like you have a brush burn.

Try the search, I know there were older posts about this. go into the FM site, I am sure you will get some hits.

Hugs, Linda

Glojer · 08-28-2005, 11:36 AM

dorri burning pain is a part of fm. I am down to 4mgs of prednisone but only for about 4days now, don't notice the difference yet. I only use ibuprophen for that extra pain killer if I need it, either 2 over the counter pills or when necessary a prescription 800mg ibuprophen (you have to take it with food) maybe the doc can prescribe something stronger along the lines of your tylenol or something like that. Good Luck!

dorri · 08-28-2005, 09:20 PM

Linda, thank you. I was thinking how I could explain the burning pain, and couldn't find the right words, but thank you for finding them for me, yes, it does feel exactly like a brush burn.

Glojer, thank you and I hope you do well weaning down on prednisone without any problem. I only take tylenol for the pain. I was told that I can't take any ibuprophen because it would aggravate the CD. What doesn't make any sense, the doctor gave me celebrex (even worse) which did help, but after 5 days or so, I had to discontinue due to the stomach upset it was giving me. Good luck.

rosebuddy · 08-29-2005, 10:04 AM

For the burning, I took 600 mg of neurontin 4 times a day. As soon as the med started to wear off, the burning would start coming back. After a year, i was able to wean off the neurontin