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Old 08-30-2005, 07:42 AM   #1
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At my wit's end.

Hi.

I'm new to this board - my son found it for me - but fibromyalgia has me at my wit's end. I'm in a lot of pain, my legs especially, but it wouldn't so bad if I knew that something could be done to put me back on my feet. I've tried all sorts of treatments - and spent a lot of money doing so. My last real hope seems to be a series of injections that my specialist (UK) is trying to find funding for. I was just hoping if someone out there could give me some good news? To let me know that this works and can reduce the pain in my legs, letting me get out of the house.

Best wishes all.

 
Old 08-30-2005, 08:55 AM   #2
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Re: At my wit's end.

Just wanted to say welcome sinatra fan! I'm sure some of the more knowledgeable people on this board will have some info for you. I have never had injections, but please keep us posted and share with us when you feel up to it.

 
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Old 08-30-2005, 11:23 AM   #3
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Re: At my wit's end.

Hello Sinatra Fan, welcome to the board and I like you ''name''.
(I don't think my grandchildren has ever heard a Sinatra song.)
The doctors I know mostly treat symptoms such as depression,
anxiety , insomnia, and pain. I don't have depression or anxiety so
I take Ambien for sleep and Lortab for pain. Until more is understood
about the disease, all we can do is trial and error on an individual basis.
Some of the folks here get good results from physical therapy, massage
therapy and array of anti-depressants and anti-anxiety medication. Some
use homeopathy treatments and some have tried acupuncture and the list
goes on. At least now research is beginning to take notice of the thousands
who suffer with fibro. There is research at UAB hospital in Birmingham, Al and
an excellent article in the B'ham paper about a new drug that hopefully will
be approved in late 2006.(not an antipressant, but for fibro) I am still skeptical
because of other drugs that seemed to hold promise.
This post is too long but I know how you feel and I hope the injections work for you.
Keep us posted our new friend from the UK.
Bilij

 
Old 08-30-2005, 12:00 PM   #4
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Re: At my wit's end.

Hiya Sinatra Fan,

I would like to welcome you to our family. There is such a tremendous amount of support and understanding here and no problem you might want to share will be too much trouble.

I personally don't take any pain killing drugs for fibro, because of the interaction wth other endless medications for other problems, but I agree that so many "alternative" types of therapies seem to ease the pain in some of us. I do so hope that you can find some type of relief soon.

I have had steroid injections for costochondritis, but never for fibro symptoms. I do so hope that you can get them when they are funded.

What lovely and caring son you have, he's a credit to you. Please come back and join us whenever you can.

Take care.

goldenwings
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I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

Last edited by goldenwings; 08-30-2005 at 12:01 PM.

 
Old 09-02-2005, 06:42 AM   #5
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Re: At my wit's end.

Thank you everyone, everybody seems so supportive here. It's really good. As was Frank Sinatra. ;-)

I'm not really up to speed with the Internet so you'll have to bare with me while I get to grips with using the discussion board - but I'm determined to do so. Just keeping this "thread" open, I've suffered with fibromyalgia for such a long time now - and for that reason, late 2006 doesn't seem so far away.. - so I'm on the lookout for good news stories. (It's hard not to be negative). Is there anybody here who've had it for years and years, and then had it regress, or get better, or anything similar...?

 
Old 09-02-2005, 07:07 AM   #6
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Re: At my wit's end.

Goodmorning Sinatra Fan, you are doing just fine on the discussion board.
I've never been a whiz on the computer ; in fact, it tires me out just to sit
here. I agree with you that 2006 seems like forever and I wish I could tell you
that there is medication that would make fibro go away, but if there is, I
haven't found it. This board helps us see we're not in this battle alone and
sometimes just putting our feelings in writing, makes it easier. We all handle
pain in our own way and having so many ''newbies" on the board gives a much
broader view of this disease. Please keep posting, you are important to us.
Bilij

Last edited by bilij; 09-02-2005 at 07:09 AM. Reason: words left out

 
Old 09-02-2005, 07:12 AM   #7
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Re: At my wit's end.

welcome sinatra fan.
in the beginning of my journey with fm i was in a wheelchair for 6 months. i simply could not walk more than a few steps. that wheelchair is now being used by a very old woman up north.
my legs are still my weakest link in the chain that is my body. however i have chosen physical therapy to help my body be as strong as it can be. sometimes i can skip and run, other times i stagger around as tho drunk.
what i came to understand about fibro in my body is that some days are grand and others demand respect for limitations. i suck up the nectar of those grand days and be kind and gentle to my body on the days when i cannot do as i please.
the gift fibromyalgia gives us all are those lovely windows of "normal". i have been doing this for more than a decade. you will get the hang of it. for myself and my emotional self i got a good shrink about 9 years back. priceless. i learned a different way of addressing my life. that alone helped me to not stress out when the rough days hit. not to go into the well of insanity when pain threatens to overwhelm me.
what sort of injections are you talking about?
peace,
bluelakelady

 
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