| | Haven't been around in a while... also SSDI and FM??
I have "treatment resistant" FM, on the Duragesic patch and T4 for pain, lots of other meds, mostly the normal FM protocol, according to my doctor. I have had a HELL OF A TIME getting my Duragesic from our drug provider, CareMark. NOTHING but problems with them. The first order they got right, this last one, because the doctor sent it from his office and did not mark DAW because he thought I had told CareMark NO GENERIC (which I had!!!!), they sent Sandoz. I have called Janssen and ordered the Bioclusive patches to use with the generic, and next time, you better believe DAW WILL BE on the rx.
I was wondering if anyone else had trouble obtaining controlled substances such as Duragesic from CareMark. I am in GA, my scripts go to TX. I do get a 3 month supply at one time which is nice, but they won't take back the generic as they say, "We filled it correctly. Your doctor did not specify DAW," even though I DID specify NO GENERICS in the 5 to 6 WEEKLY phone calls to them to find out where the hell my meds were. Because of them, I was without my Duragesic for close to 4 weeks, then I got this generic. I have heard going from name-brand to Sandoz may cause nausea and headaches, just what I need! Anyone had this experience???
I think CareMark is a joke. I was just wondering if anyone else had trouble with them and any advice on how to deal with them.
We did move in June, and I took my time getting the house in order (we are unpacked but not completly organized!). I pulled a muscle in my lower back soon after we moved and was in the bed for 3 weeks, literally crawling to the bathroom because it hurt too bad to walk. My doctor would not increase my meds even though they were not working due to the pulled muscle. There are NO Pain Management Clinics or doctors outside of Atlanta, a 3 hour drive. So I am stuck with a Family Practitioner who knows little of FM, and even less of pain management.
I also tried Cymbalta, and found it had neurologic side-effects (eye and sight problems, mostly, and headaches with nightmares) so I dx'ed it. I stick with my Wellbutrin now.
Glad to be back. If there's anything new I missed in the world of treating FM while I was away, please fill me in.
Also, I read on a Social Security website that SSDI has "no classification for fibromyalgia" when it was submitted as the only reason for disability. CAN you GET SSDI for FM? Do I need a lawyer? Anyone had any luck on their own?
Thanks in advance for replies ...
mkmb75, aka MK