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Old 09-17-2005, 01:56 PM   #1
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Unhappy Breathing Problem

I am having difficulty getting proper breaths. I have Fibromyalgia which I have been diagnosed with during the last 6 months. I know though that I have had it a long time before diagnosis.

For the last couple of months I have had difficulty getting proper breaths. I feel a pressure discomfort in the sternum area and sort of at the very top of my stomach.When I take a breath it is like a pressure pain trying to get the breath in.( Like labored.) When I breathit is like something pushing up from that area keeping me from taking a proper breath.

This goes on 24/7. There really is nothing that eases it .

I was in ER a couple of times with this and was checked out for heart and everything came back normal.They did a chest CT and X-Rays blood tests and ultra sounds.

There is a tender area just inside my left shoulder blade that when I press it , it seems to affect my breathing or make the breathing problem more noticable.(Not that it is ever not noticeable..)

I read about Costochondralgia on one of the Fibromyalgia sites. Does anyone have this condition? Could it present like this?

BIYA


(Fibromyalgia -with most of the symptoms..lots of pain right now, Diverticulosis, Acid Reflux, Hiatal Hernia, Mitro Regurgitation, Heart Murmur, osteoarthritis,hypertension, high cholesterol)

 
Old 09-17-2005, 02:34 PM   #2
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pa235 HB Userpa235 HB Userpa235 HB Userpa235 HB Userpa235 HB User
Re: Breathing Problem

If you type in costochondritis at the top of the board, you should be able to get a lot of info. I know since I have been a member there have been lots of posts about this.

I know a lot have talked about breathing problems and sever pain in the sterum, like a elephant sitting on their chest. I shallow breath when my costro is bad because it hurts to expand the ribs with a deep breath. A lot of fmers have costro also.

Hugs, Linda
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Old 09-17-2005, 03:17 PM   #3
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Re: Breathing Problem

Linda thanks for listening and responding.

Anything about difficult breathing would be appreciated....

 
Old 09-18-2005, 05:39 AM   #4
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Re: Breathing Problem

I think that this is one of those things you dont' want an amateur diagnosis on. You do need to find a doc that can give you an answer...But I also know that I have read many times that breathing can be a difficulty at times for FMers. You just need to know for sure that is the cause, and it isn't something more serious.

 
Old 09-20-2005, 05:30 PM   #5
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Re: Breathing Problem

DecLady...I have had just about everything checked out. The last things will be in Nov. (an endoscopy) and Jan. if not sooner a second Neurologist visit. I had a scope done by the ENT, Stress Test, ECG,Chest San, Abdominal Ultrasound, DVT Ultra Sound(Doppler), Chest X-Ray,Rheumetologist examination by two of them,Thyroid Bood test and Ultrasound.

Are there other things I shoud be checking out?

Great to read the posts.

Biya

Last edited by Biyak123; 09-20-2005 at 05:31 PM.

 
Old 09-21-2005, 05:32 AM   #6
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Re: Breathing Problem

I think that costochondritis is one of those things that a lot of doctors don't know to look for. You may want to print out info about it....IF the info sounds like what you are experiencing...and bring it with you when you go for your next visit. If nothing else...it will give them something to consider..and maybe they will look outside the box and find out what is wrong. If it is costochondritis there are some things that can help.

 
Old 01-20-2006, 11:56 AM   #7
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Re: Breathing Problem

hi biya! i know this is old post! did you find out what caused your breathing! i wondered why your ecg and heart test was normal when you have heart probs. im concerned as doc reckoned it sounded like i had heart murmur other day? he really worried me! he listened after and couldnt hear it!

 
Old 10-17-2007, 01:39 PM   #8
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Re: Breathing Problem

Biyak123:

I'm hoping that you found out what caused your problem because I'm experiencing the same EXACT thing! I have basically been bedridden for one month due to the fact that if I do anything (laundry, walking, bending over, etc) I get shortness of breath and all the other symptoms you stated in your message two years ago. Even sitting up straight causes me problems so I'm constantly leaning back (which thankfully I have a bed that adjusts).

I just left my appointment with the Pulmonary Specialist who said it could be Fibromyalgia or Psychosymatic(?); which to me was a nice way of saying that I was Crazy That's always the answer I get when the doc can't figure out what's wrong OR the "you must be depressed" answer!

I've had FM for almost 10 years now and this is the first time I've had this type of symptom come up. It's hard not to get depressed after having two CT Scans, EKG's, an EchoCardio Gram, Breathing Test, Blood Tests and nothing shows. I was taken to the hospital by ambulance because I thought I was having a heart attack. The CT Scan showed a spot but the Pulmonary Specialist said that after the 2nd scan it wasn't anything that would cause my problems.

I was really down after my appointment this morning and for the first time I checked out the message board on this website and came across your message. What a blessing for me!!

I hope you get this message.....the only prayer I've ever asked is that they would have an answer to what's causing this problem for me. It's hard to live life if you can't breath normally.

Sometimes Hope is all we have to hold onto with this illness.
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Old 10-17-2007, 03:38 PM   #9
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Re: Breathing Problem

Hi I just found this site about 5 minutes ago and this is the first thread that caught my eye. I could give you a very long history of my fibromyalgia because I was diagnosed 22 years ago and consider myself an old pro at this. I know that this thread is very old but I hope that someone is still listening. Costa Condritis is what they called it when I was taken to the hospital when I was very young, even before I was officially diagnosed at 22. (I am 44 now) I am so sorry that all of you have gone through what you have with this specific symptom. Believe me I have horror story after horror story but not about this one. I went to the er and the guy just some how knew what it was. He sprayed my chest with a topical anesthetic, (that numbed it with very cold) and the pain went away.

Basically costa condritis is fibromyalgia attacking the tendons and joints that hold your sternum to your ribs. I thought that I was having a heart attack. But after that spray of cold the pain went away because the site of the problem was so close to the surface that it was able to be eased from the surface of my skin.

Now about breathing problems...When a person is in pain, they tend to hold their breath. I had horrible migraines as well in the early days of my fibromyalgia (now controlled completely by medication, topamax).

Since I too,......... and this was in the early days of fibro when they were telling all of us when we would end up in the er writhing in pain that it was all in our heads, (one time the Dr. wouldn't even look at me, he told my mother I needed a shrink and walked away)......was dealing with more pain that anyone else could even imagine I learned that breathing exercises would help.

I'm sure that you can look them up or get a book at the library, I promise you that regular breathing even through pain will make a huge difference, and the right kind of breathing. From deep in your abdomen and one of my best tricks is 10 breaths in and then 5 out and keep doing it. Eventually let it out in a slow measured manure and then start over.

Also learning visualization will help some people. Look it up, that one is harder to explain but I will try if you want me to. Turns out I have done it for so many years that I taught myself self hypnosis and didn't even know it.

I saw on TV one of the things I use to visualize along time ago and boom I was limp. At least I was sitting down.

People have told me for years that I should write a book about my experiences with fibromyalgia, but I never have. If there is ever a question please ask me....I feel like an old pro...
S

 
Old 10-17-2007, 05:43 PM   #10
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Re: Breathing Problem

Thanks for the reply!

Being a newbie to this site we sure aren't newbie's to this illness.

The strange thing about this breathing thing is that I'm not in any "normal" FM pain, I just can't get a full breath. Let's say that I'm picking up around the house, after I'm done I'm breathing as if a just ran a marathon. I notice the pressure on my chest when I bend over. The pain in my chest and left shoulder area is better but the breathing is still the same. The best way to describe it is when I take a deep breath I feel as if there is pressure on my chest and it chokes me up to my neck.

A friend of mine said she thought it was asthma, but the doctor today said it wasn't a problem with my lungs.

I know you can understand the frustration....after having FM for so long!!

It's nice to be able to relate to people when others just don't understand.

M.
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Old 10-18-2007, 10:00 AM   #11
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Re: Breathing Problem

unfortunately for me yes, it is one of the symptoms

I often wonder how I am able to get up every morning to go to work. I don't know how much longer I can take this
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Old 10-18-2007, 10:30 AM   #12
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Re: Breathing Problem

Is there anything that you do that has helped you get through the day? I want to be able to go back to work but even talking on the phone too long makes me get out of breath?

How long have you been going through this?
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Old 10-18-2007, 11:22 AM   #13
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Re: Breathing Problem

it comes and goes and it seems to have something to do with weather patterns, airbourn stuff like typical allergies, but also I'm sensitive to smells. The tiniest thing and lately I feel like I'm having asthma attack. People who smoke i public bother me a lot, air fumes, smoke from trucks, riding on the subway, its awful. Its getting pretty bad, and every day that goes by I want to stop working. Not to mention the panic that comes with this disorder.

I haven't really figured out how to cope with it being that I work and have to come out. When I'm home I'm ok because I keep my apartment the way I like it, plus I'm relaxed, other than that, I have a hard time as well
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