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Old 09-27-2005, 10:08 PM   #1
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has anybody been told to have a VARIANT of fibromyalgia?

Hello~

Since the onset of my pain with spasms, burning, and pins and needle pains first on hands followed by pains on feet,I had average pain level of 8 out 10 for first two months. At that time, I was told I have crps/rsd. However about that point, my original symptoms were getting milder but all over body aches and joint pains kicked in. By that time, I had changed the pain clinic and different doctor said I don't have crps/rsd and she wasn't sure about what I have at that point. Now, with my pain level going up and down depending on uses of my hands and feet, the doctor said that it seems like I have A VARIANT of fibromyalgia. I don't show typical signs or symptoms of fibromyalgia and this 'variant' was the best thing she could explain my condition.

I was wondering if anyone has been told about a variant of fibromyalgia?
to me, it just sounds like what I have could be something else than fibromyalgia.

thank you for reading
have a nice day~ all ^^

 
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Old 09-28-2005, 07:39 AM   #2
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Re: has anybody been told to have a VARIANT of fibromyalgia?

I never heard of a variant of Fm. I do know that most people start with the FM pain in one area of their body. Mine started in the neck and shoulder and it stayed there for years and all of a sudden it moved all over. I am wondering if that is what your DR. is referring too.

Hugs to you, Linda
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Old 09-28-2005, 09:58 AM   #3
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Re: has anybody been told to have a VARIANT of fibromyalgia?

Variant has several meanings, one of them is changing or diversity. I think it just means you have fm and your fm is changing and taking on different synptoms. Those of us with a confirmed diagnosis of fm can relate to all those changing symptoms. This of course is just my opinion. Ialso get those sharp needle and pin things in hands and feet, had one in my big toe the other night that kept waking me up it was so sharp a pain it almost drove me 'batty'.

Good Luck and keep us posted on how you are doing.

Glojer

 
Old 09-28-2005, 04:31 PM   #4
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Re: has anybody been told to have a VARIANT of fibromyalgia?

You know how sometimes our pain is triggered by accidents or over-use... Did you have an accident of any kind June? The reason why I ask is because I fell recently and it was triggered again in my back. Now the olde pain is coming back too. (In my knee and wrist) I'm about at a 7 as far as pain. I'm just curious about what you do for a living. My first Fibro attack happened while I was in Beauty School and my hands were being used alot then...
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Old 09-28-2005, 04:58 PM   #5
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Re: has anybody been told to have a VARIANT of fibromyalgia?

Hi June,
What is crps/rsd?

I had all those symptoms too. So i know how you feel. Hope you get in to see a specialist real soon. When i started physical therapy with a pain mgmt doctor, my pain decreased immensely.
Donna

 
Old 09-30-2005, 08:42 PM   #6
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Re: has anybody been told to have a VARIANT of fibromyalgia?

Hello~
I haven't got a chance to check back to the board since I posted my thread.
today, I finished a month long pain management program. this last week has been the hardest week of all because the exercises made the cramps worst and brought the nerve pain up in scale.
anyhow, for the questions from above, I do science research and I use my hands a lot to deal with the instruments. I can tell you that originally I had tendonitis injury back in feb this year on my right hand from using a pair of scissors, and it was kind of a heavy pair of scissors and it was only one time usage but I got to cut something for about half an hour or so. While my right hand wasn't healing, I used my left hand and I ended up pulling index finger from thumb by lifting up something. This was end of april, and a week after that second injury, I had pain on palm side of the thumb flexor muscle, my hand and forearm got so cold all of the sudden and hand got numb and felt like muscles just froze up. I ended up going e.r. ,initial pain was relieved by muscle relaxant, but soon I felt the same nerve pains(burning and pins&neelde and aching) on my right hand and also the feet which I didn't even injure. Later my hand surgeon thought that I had CRPS( complex regional pain syndrome) or RSD(reflex sympathetic dystrophy ) and refer me to a pain clinic. While I was waiting for the pain program to start, my average pain level dropped from being 8 (on 10 scale) to about 3 own its own. So when I was evaluated at the clinic with lower level pain and also with somewhat different pain(I began to have bodyaches and joint pains addtion to the original pains), pain clinic doctor said I don't have CRPS. First they said they don't know what I have, but later they said I have Fibromyalgia variant.
Well, I started the pain program beginning of this month with pain level of 3, and I just finished the program (it was a month long monday through friday 8am to 4:30pm), and right now I am at pain level of 5. I think that I'm going through my first flare-up and still trying to manage the pain with the tools( biofeed back and exercises) I've learned. I find that it's hard to manage and pace, but at the same time I also realized that it doesn't happen in short amount of time. So I mean to keep exercise with the pain to strengthen my muscle and reduce my tension level to prevent the cycles of pain.

you can easily find some information when you do web search on CRPS( complex regional pain syndrome) or RSD(reflex sympathetic dystrophy ) , and one thing is that CRPS can be really progressively de-habilitating disease while fibromylagia isn't. So I can exercise with the pain (of course to a tolerable level) with the belief that I'm not damaging any joints or tissues.

I'm still learning about this pain symdrome and trying to adjust my life.
I hope all of you who are in similar situation to find a strength within themselves and carry on with a hopeful outlook and actually to get and feel better.

thanks for reading
have a wonderful day

Last edited by june789; 09-30-2005 at 08:44 PM.

 
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