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Old 10-06-2005, 04:43 PM   #1
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Doctors brushed me off. need help in MI!

Im a 22yr old male, and I've been on Ultram 6x a day for the last 4 months for fibro.. anyway I told my GP (the rx'er of the med's) that its not working anymore.. i waited 3 weeks to get into the pain clinic, where i waited 2 hours past my appointment today, to finally see a doctor.. who then told me I need to take anti-depressants, and that I need to learn to live with it, and if anything, they could give me shots in my spine.. ew no thanks.. I know its because im a 22yr old male, that they are treating me like this.. they prescribed me lidoderm patchs.. ew no thanks again.. Anyone know a good doctor in Lansing (michigan) area for fibro or cronic pain? whos not bias? I need a new medicine pronto! thank you!

 
Old 10-06-2005, 05:24 PM   #2
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Re: Doctors brushed me off. need help in MI!

Hilliard,
Sorry I don't know of any Dr.s in your area, I live in MN. However I did want to make a suggestion, if you can't get into or find a Rheumatologist call around to GP offices and ask if they have any doctors that treat FM and actually believe that it is a disease!!!

KSP

 
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Old 10-06-2005, 06:52 PM   #3
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Re: Doctors brushed me off. need help in MI!

Hilliard

I just wanted to let you know about Dr. John Lowe's treatment. After the first day on his protocol my pain was, for the most part, gone. That was about 2 weeks ago and I see improvement each day. I have fibromyalgia, chronic fatigue and adrenal insufficiency.

I am recording my experience with this treatment in the thread called "T3 (Cytomel)... my experience!).

My experience may provide an answer for you.

Best wishes
uncoordinated

 
Old 10-07-2005, 09:12 AM   #4
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Re: Doctors brushed me off. need help in MI!

Hilliard, call your local hospitals for a physician referral. Tell them you are looking for a doc who treats fibromyalgia or a rhuematologist who treats fibro. They should be able to give you some names within your insurance group.

 
Old 10-07-2005, 10:54 AM   #5
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Re: Doctors brushed me off. need help in MI!

Hilliard,

It can be hard to find a doc who is compassionate and realizes that you are dealing with something that is real.

All the advice given was great. I wonder, I am not sure, if the Fibro Assoc. of America has a list of docs in different areas.. might be worth looking up on the internet. Also, in some areas they have workshops at the local hospitals and colleges for fibro, perhaps through them you can find someone.

Good luck, hope you feel better soon.

Take care.

Peace and love, Hangin
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"Compassion can help heal our world"

 
Old 10-08-2005, 02:19 PM   #6
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Re: Doctors brushed me off. need help in MI!

Hi Hilliard, I found my rheumatologist by seaching on google with the name of my city and state, the word doctor and fibromyalgia. I found a doc that was supportive and helpful and is even involved in testing a new drug for fibromyalgia.

My neurologist referred me to a pain management group. They had a brochure about their practice and the first thing listed was fibromyalgia. I go there for chronic myofascial pain. A physical therapist releases the tightened muscles (trigger points) by pressing and massaging them out. The doctor injected trigger points in my back to get those to release. The trigger points were compressing nerves which was causing me pains in the 8 9 and 10's. I was treated for 8 weeks, 2 to 3 x a week and although i had trps in chains from head to foot, they got rid of all of them except the chunk between my shoulder blades.

Next week, I will have injections by my pain doctor into the muscles around my spine between my shoulder blades. Then i go to my chiro and have my spine adjusted. It is all knotted right now in that location. I was told not to leave it like that or it could calcify. It kind of takes my breath away and causes my back to hurt when i sit in a chair.

I don't know if you can identify with this at all. Just trying to help. I hope that you find a good doctor asap. I would try a different pain mgmt doctor and learn about chronic myofascial pain and trigger points and ask if you have that.

There are lots of ways to treat fms and cmp and that doctor was dead wrong in telling you that there is no treatment available. Shame on him (or her).

Keep the faith,
Donna

 
Old 10-16-2005, 07:13 PM   #7
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Re: Doctors brushed me off. need help in MI!

Hi Hilliard,

I can sympathize with your struggle. My doctors are in Owosso, about 25 miles from Lansing. My nuero is Dr Angala Borders-Robinson. Rheum is Dr Prakash. They both refer to the other to determine a diag. and course of treatment. You will go thru a series of meds. working your way up the strength chart. Some meds are used to treat a problem with an eye on the side benefit of pain relief. An example is Requip. I take this for Restless Leg Syndrom. I no longer run a marathon in bed everynight. The pain and cramping in my legs decreased greatly. I mention this so you do not feel like you are being brushed off because a med may not strictly be a pain med.
One thing to keep in mind about GP's, they will be investigated much quicker than a specialist for prescribing pain meds. long term. My GP will not prescribe any narcotic med and no more than a 30 day supply of the lesser pain med. He will send you to a pain specialist rather than risk his license and I really cannot blame him.
I would see Dr. Borders-Robinson first. She is very understanding and nice to work with. You will be sent to a Rheum just to check that area of issues. You will have to be very active in your treatment. You must be able to articulate what your issues are. I recommend a journal when you start a new med. If you are passive you will not see a step up the pain med ladder.
This will not be a 1 visit and you are done trip. I saw each Dr. every month for 6-8 months. It was about a year before a course of treatment that was effective was reached. Now I go every 3 months. All drs are reluctant to prescribe pain meds. because they can cause very severe issues elswhere in the body. I hope this info helps.

 
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