Newly Diagnosed - Fibromyalgia Message Board

KittenPaws · 11-18-2005, 05:52 PM

I've just been diagnosed tuesday and its been very hard to come to acceptance that i have fibromaylgia. I didnt really want to have a disease where i'll be in pain and tiredness for the rest of my life, but i guess thats how God's has made me special. I couldnt believe it until i looked at the symptoms list that is stickied above and checked almost everything off on it

. Its made me relize that my doctor isnt the numskull i thought she was.

But where do i go now? I wasnt told anything but to excercise and get some sunshine. But the sun is bad for me. Is there anything else? So far im on pain meds 150mg Ultram/tramadol am/pm and 50mg Indomethocin 3x daily and its not helping much at all most days. But my GP is at the end of what she can do for me right now. Shes ran out of resources. I want to get better but so far i havent found anything and i'm not starting any treatement that i know of.

Any help would be a blessing.

God bless.

Kitten

pookeysmom · 11-21-2005, 02:43 PM

Kitten,

I know that it isn't the diagnoses that you wanted- but as my Rheumatologist told me it is worse pain than if you had Cancer, but it won't kill you.

It sounds like you may want to try a Rheumatologist. Mine has helped me soo much. She said that it could take time but she would keep trying until we found something that helped. I ended up being referred to Pain Management and now the pain is mostly under control.

The other thing that has helped me is to gather as much information about FM as I can. I have read many books and looked at many message boards and I realize that I am not the only one who feels like this.

I had begun to think that maybe it was all in my head and I was just lazy- obviously that was not the case. Now if I pace myself I can lead a somewhat "normal" life.

Good luck and stay well,
Laurie

Avrod6 · 11-21-2005, 02:53 PM

Welcome to both of you, pookeysmom and kittenpaws. Everybody has such unique names. I love it. This is the first stop on your new journey. Everybody here has so much knowledge and care so much. Some can exercise and some can't. Listen to what your body tells you. I would ask to be referred to a rhuem doc. I kinda sounds like your doc doesn't know alot about fibro and knowledge is the key. I hope you are looking at some of the old posts they are so informing. I have good days where the pain and fatigue are there but not dibilitating and others days where it hurts to move. Do what feels good for you and finds a doc that is up on fibro. Take care and say whatever you need to say it truely does help.
Avrod

KittenPaws · 11-21-2005, 04:33 PM

My GP first thought it was lupus so she sent me to the rheumatologist, but because nothing is showing up in blood she tested me for fibro and come to it i h ave fibro instead (i may have lupus too, but we dont know yet). I dont really think she cares about me as it sounds in the letter to my gp, it was very abnormal, she didnt set a date to see me again or leave her phone number for me to re ach her (the rheumy). Anyway i trust my GP more and im sure we can get through this together right now. I have a friend who has a rhuemy in the same building as mine i may give a call and see what she thinks... Ty

Kitten

Glojer · 11-21-2005, 05:48 PM

Welcome Pookey and Kitten, we have a great and caring group here.

Kitten sounds like it is time to find a new rhuemy.

Pookey, very interesting what your rhuemy said about the pain being worse than cancer but it won't kill you. That certainly is a way to make you look at things differently.

Glojer