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Old 06-04-2006, 09:07 AM   #1
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New Fibro Research...Problem Within Brain?

Dr. Patrick Wood of Louisiana State University is doing studies claiming that for years, doctors have been looking in the wrong place for the cause of Fibro. Instead of looking at muscles and joints, he claims the problem is in the brain and central nervous system. He is doing research using brain scans and claims an effective treatment is on the horizon. Well lets hope so. My fibro has gotten to the point of where I cannot even cut my grass anymore. Everyday I need pain medicines just to fuction. Just wondering if anyone else has read about this.

Last edited by builder; 06-04-2006 at 09:09 AM.

 
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Old 06-04-2006, 10:00 AM   #2
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Re: New Fibro Research...Problem Within Brain?

rstarre thanks for the info. I did read that some researchers now believe fibro is a central nervous system disorder rather than a connective tissue disease. I don't really care what kind of disease they call it as long as they find a cure or at least a way to alleviate the fatigue and pain.

 
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Old 06-04-2006, 10:55 AM   #3
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Re: New Fibro Research...Problem Within Brain?

Thanks for posting, Rstarre. I had heard a while ago that there was research being done on CES (cranial electro-stim) for fibro ... thanks to your post I was able to follow Ariadne's thread to discover that Wood has recently published results showing modest benefit.

GEEZ, I got one of these CES things sitting around, maybe I'll boot it up! It was Rxd for a teen who had major anxiety & panic attacks & was effective at eliminating them within a week.

 
Old 06-05-2006, 12:11 AM   #4
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Re: New Fibro Research...Problem Within Brain?

My fibro did not begin until I suffered a traumatic brain injury, so that makes sense to me. I am sure still that we are "prone" to it because of our genetic makeup, but life was fine until the afternoon of October 6, 2005. I hope they make a great break through soon!!
~Mim

 
Old 06-05-2006, 05:51 AM   #5
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Re: New Fibro Research...Problem Within Brain?

Yes, I have read that our brains incorrectly interpret our body's pain because we have too much of a chemical (I forget what it is called) that is what regulates pain. That is the brain theory *I* have heard.

But I don't know what to believe. Nor do I care as long as THEY eventually find out and fix me.
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Old 06-05-2006, 11:50 PM   #6
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Re: New Fibro Research...Problem Within Brain?

MIMMGREGG..its funny you mentioned that. A friend of mine says she also got it after being rear ended in a car accident

 
Old 06-06-2006, 08:45 AM   #7
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Re: New Fibro Research...Problem Within Brain?

Mine also did not begin to manifest until after a severe head injury....my doctor at the time said that was probably what brought it to the surface too. She said a traumatic injury, incident or illness can cause FM to surface. But she felt that some are pre-destined due to being inundated with auto-ammune diseases. Although I was diagnosed 8 years ago, I think I've had it my whole life, at a early age I was diagnosed with Graves Disease, have underdeveloped internal reproductive organs, dentist unable to deaden mouth, doctors unable to deaden for spinals, my teeth are cracking like crazy (it's like the nerve pathways are dying to the inside of my teeth, no outside cavities, only inside ones??)....it's like my nerve pathways are all jumbled up somehow. If I didn't have such adversion to needles and an easy bleeder...I'm to the point of donating my body to science to see if doing some kind of nerve surgery would work. Although I feel the day is quickly approaching that I could do that anyway, just to maybe not hurt again one day, to be my old self again.....I miss me!!!!!

 
Old 06-06-2006, 08:57 AM   #8
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Re: New Fibro Research...Problem Within Brain?

hi liz,
i read your last line and my heart broke. i remember missing me. i remember how big that feeling was. it will lessen in time. as you find new meaning in your ever changing abilities you will find the peace and balance you seek.
i would not go back to the old me for anything. i am a better wiser woman, as is. i have learned a level of compassion only sick people attain.
peace,
bluelakelady

 
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