jewelofheaven

This is my first post and I may be off on my thinking, but my experience may help someone here. I have a very inactive thyroid. I was put on high dose meds for it (synthroid 2.5 mg) and suddenly went off the meds for a period of 5 months. At that time, I began having symptoms some of which I think those with fyro have. When I finally got back to the Dr. and on meds, it took about 4 months to get well again but all symptoms that were like fybro stopped. I also have a friend who used to have some of these symptoms and was diagnosed with fybro and not thyroidism. Her Dr said she was had low levels of the thyroid hormone but not low enough to be on meds. I now think the meds could have hlped her greatly and wish I could find her again to say so.

Basically with low thyroid, I digested food slower, was tired, needed naps, and if I got too low (forgot meds too many days etc) my arms would ache after washing windows or another chore. Once I went off the meds completely, I began getting spasms in my stomach, under the chin area, my lower legs on the outside burned and hurt, my ankles became weak and I would fall after a short distance of walking. Walking was very hard to do. My feet hurt especially in the heel area. My back ached badly and I ended up in the ER for pain meds for it and my legs.

As I said, once I got the synthroid back in my system all of those things have stopped completely. Please make sure you at least have this checked and if you are not quite in the range they will medicate for, ask them to just try a low dose for a 6 month period. I had to start with a low dose when I went back on the meds and had it increased every month to where it would begin helping me again.

I hope this helps someone.