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Old 06-10-2006, 10:39 PM   #1
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Fybro Hypothyroidism Connection

This is my first post and I may be off on my thinking, but my experience may help someone here. I have a very inactive thyroid. I was put on high dose meds for it (synthroid 2.5 mg) and suddenly went off the meds for a period of 5 months. At that time, I began having symptoms some of which I think those with fyro have. When I finally got back to the Dr. and on meds, it took about 4 months to get well again but all symptoms that were like fybro stopped. I also have a friend who used to have some of these symptoms and was diagnosed with fybro and not thyroidism. Her Dr said she was had low levels of the thyroid hormone but not low enough to be on meds. I now think the meds could have hlped her greatly and wish I could find her again to say so.

Basically with low thyroid, I digested food slower, was tired, needed naps, and if I got too low (forgot meds too many days etc) my arms would ache after washing windows or another chore. Once I went off the meds completely, I began getting spasms in my stomach, under the chin area, my lower legs on the outside burned and hurt, my ankles became weak and I would fall after a short distance of walking. Walking was very hard to do. My feet hurt especially in the heel area. My back ached badly and I ended up in the ER for pain meds for it and my legs.

As I said, once I got the synthroid back in my system all of those things have stopped completely. Please make sure you at least have this checked and if you are not quite in the range they will medicate for, ask them to just try a low dose for a 6 month period. I had to start with a low dose when I went back on the meds and had it increased every month to where it would begin helping me again.

I hope this helps someone.

 
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Old 06-11-2006, 05:27 AM   #2
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Re: Fybro Hypothyroidism Connection

Good morning. I had the opposite response to low thyroid. My fibro symptoms almost stopped completely. I was very tired all the time, my periods were down to 1 1/2 to 2 days and my hair was falling out in handfulls (seriously). When my doc suggested Rogaine I insisted that we find out why my hair was falling out instead of treating that symptom alone he did blood work. My thyroid was way low. After about a month on Synthroid my fibro came back worse than ever. I have more energy, my periods are back to 5 days (oh boy) and my hair stopped falling out. But my fibro is bad bad bad! I did find a new doc that is wonderful. He understands fibro and has helped me more that my old doc and even specialist. I have many family members with inflamatory disease including my daughter w/Crohns and dad with RA so other docs treated mewith anti inflamatory meds without bloodwork and guess what? THEY DIDN'T WORK!!!! I think it's great that Synthroid helps you feel so much better. I hope it continues to work. Hey, I take my synthroid with more dedication than I used to take my birth control pills. Good luck to you.

 
Old 06-11-2006, 07:49 AM   #3
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Chef Elizabeth HB User
Re: Fybro Hypothyroidism Connection

Good Morning AirForceMom,
I'm sorry I must be in a terrible fog this morning, I don't understand your post very well. Did you say that fixing your low thyroid by uping your Synthyroid made your Fibro worse, but now you feel so much better?
I'm on .2 Synthyroid since 1985 when I was diagnosed with Graves. The doctor decided to burn out my thyroid with radio active idodine instead of taking it out with surgery, so I have to take my Synthroid regliously. It never occured to me that it would cause my FM to be worse.
It has been proven that people diagnosed with FM have other auto-immune dieases and will find that their family members have the a multitude of auto-immune dieases through out the family as well, like diabetes, restless leg syn., Chrons, etc.

Last edited by moderator2; 06-11-2006 at 08:32 AM. Reason: When replying to a post it's not always necessary to reply with a quote.

 
Old 06-11-2006, 08:24 AM   #4
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Re: Fybro Hypothyroidism Connection

Welcome Jewel and AirForce!

I also have thyroid problems, am hypothyroid. I am finally on a dose of synthroid that works for me (112mcg). I think the key to it all is making sure you have your tsh and free t's in a range that helps the thyroid symptoms. I have said before, that I can't deal with my fibro well if my thyroid is messed up. Some of the symptoms overlap but getting rid of the thyroid symptoms is such a bonus .

Glojer

 
Old 06-11-2006, 01:38 PM   #5
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Re: Fybro Hypothyroidism Connection

Ya know...I probably did sound crazy saying that Synthroid made my Fibro worse and that was great! Well, I guess I felt like I was 80 years old. Yes, I do have more fibro pain but I still feel better than I did when my thyroid was soooooooooo loooooooooooow. I know my physical limits now and don't ignore them. I get spasms in my joints now from fibro. So, the first sign of pain I put that joint in a sling or a brace and I take a Soma (muscle relaxer) and stop what I am doing. If not, and I continue to move the joint I get spasms that have kept me awake with pain for up to 72 hours. So, yeah I can deal with the everyday stiffness, aches and pains pay attention to my body and recognize my symptoms and react to them. I don't feel like a 45 year old bald woman in menopause. AND GUESS WHAT....I HAVE THE FOG TOO THAT MAKES IT HARD TO EXPRESS MYSELF IN AN INTELLIGENT MANNER EARLY IN THE MORNIN! Good luck to you. I hope everything works out.

 
Old 06-11-2006, 03:21 PM   #6
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Re: Fybro Hypothyroidism Connection

Quote:
Originally Posted by AirForceMom2
Ya know...I probably did sound crazy saying that Synthroid made my Fibro worse and that was great! Well, I guess I felt like I was 80 years old. Yes, I do have more fibro pain but I still feel better than I did when my thyroid was soooooooooo loooooooooooow. I know my physical limits now and don't ignore them. I get spasms in my joints now from fibro. So, the first sign of pain I put that joint in a sling or a brace and I take a Soma (muscle relaxer) and stop what I am doing. If not, and I continue to move the joint I get spasms that have kept me awake with pain for up to 72 hours. So, yeah I can deal with the everyday stiffness, aches and pains pay attention to my body and recognize my symptoms and react to them. I don't feel like a 45 year old bald woman in menopause. AND GUESS WHAT....I HAVE THE FOG TOO THAT MAKES IT HARD TO EXPRESS MYSELF IN AN INTELLIGENT MANNER EARLY IN THE MORNIN! Good luck to you. I hope everything works out.
the brain fogs get so crazy sometimes I feel like I have alzheimers instead of FM. Of course my dad who doesn't understand either one just calls it Old Timers disease. But that explains some things I've been noticing, that my FM has become more pronounced in the past few years while my thyroid hormones have been more controlled. I just never put the two together before, thanks for the info. Although I guess that puts us into a catch 22....put up with low thyroid and lessen the FM symptoms or visa versa, I think I'll do as you do, tolerate and work with the symptoms of FM rather than go back to the thyroid problems, I'm to short to be a 300lb bald woman...and if I had to make intelligent decisions in the morning, boy would I be in trouble....that's why I wasn't sure if I was reading your post right or not.....but there are never any dumb questions, so I had to ask.... (I think I will try the sling/brace thing, sounds like a very good idea). Good luck to you too.....About your name "AirForceMom, do you have children in the AF? My son is Airborne 101st, he's over in Iraq doing his second tour of duty.

 
Old 06-12-2006, 06:17 AM   #7
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Re: Fybro Hypothyroidism Connection

I am the total opposite I have hypothyrodism...I get put on the meds then taken off and this has been going on since 2000...It can drive a person crazy...I don't know if there is any connection between fM and thyroid problems...I see my doc today to start more tapozol for the thyroid to get it under control once again...I think I will ask him...I'll keep you updated

 
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