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Old 06-18-2006, 12:11 PM   #1
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How I handle my Fibro!

I was diagnosed about 3 years ago. I had ever test and saw every Dr that my Dr thought that I should see. So, I quit him and found another dr who started me on EffexorXR 3x day, Abilify once a day, finally a thyroid med for hypothyroidism. Then I asked to be referred to a pain management Dr. He started me on Kadian 100mg 2x daily (slow release morphine) we tried several different muscle relaxers, but they all had the opposite effect. Then for my breakthru pain I take Actiq 1200mcg as needed. I also take xanax to sleep. Most of the time I am doing ok, but right now I am having a horrible flare. Unfortunately my husband just thinks i'm crazy. So today I am doing laundry and dishes. I think I am going to take a quick nap maybe I'll get to feeling better.

How does everybody else handle theirs???

 
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Old 06-18-2006, 01:23 PM   #2
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Re: How I handle my Fibro!

Mostly I use ergonomics.

For those of you who might not know what that is -- it is where you figure out what you can and can't do or how long you can do it for, etc. to minimize pain.

So, probably you all do that. You just might not have known it was called ergonomics!

Now you do.

And of course, I sleep, try to eat healthy, exercize quite lightly, stretch, and take a few medications for specific things related to the fibro . . . no pain meds though or any other meds because my mom doesn't think it's the best idea . . .
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Old 06-18-2006, 01:49 PM   #3
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Re: How I handle my Fibro!

I take a sleeping pill, muscle relaxer, and of course keep my thyroid (hypo) in check. I also take prednisone for joint problems (connective tissue disease - possible lupus). Other than that I exercise and of course I come to this board and talk with lots of great people. Oh, and I forgot I take vitamins.

 
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Old 06-19-2006, 11:04 AM   #4
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Re: How I handle my Fibro!

Pepperchick,

May I ask, was the Abilify rxd specfically for your fibro? That seems strange to me; definitely an off-label use & IMO, perhaps almost out of the ballpark. What aspect of your fibro is it helpful for?

Rx hormone supplements are impt for helping to keep my fibro at bay: I use bioidentical compounded Rx estrogen & testosterone. Also use thyroid hormone meds -- they help my pain & activity/ability level a great deal. My other Rx is a topical NSAID, very potent, which I use on rare occasions.

Other than that, I use vitamins, minerals, amino acids, & EPA concentrate fish oil, which helps both pain & low mood.

I have found that fluoride & chlorine are flare triggers for me, so I avoid them.

I do best with regular daily exercise. I walk and do range of motion / stretching. It's all very gentle, slow exercise, but things do go downhill if I miss several days in a row. When my flares are severe enough that I need to use my walker, I just do the stretching, usually under a warm shower or in a warm tub w/Epsom Salts & MSM added to the water.

I use assistive devices (cane, walker, raised toilet seat, reacher/grabber tool) as needed. When in the midst of a flare, these tools enable me to heal & prevent further pain.

My favorite comfort measure for pain is a microwaveable moist-heat pad that penetrates very quickly & can be easily moved around my body. I also use a hand-held shiatsu-type massager to take the edge off of painful areas. Not sure why it works; maybe gives the brain some other sensory input to process.

 
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Old 06-19-2006, 03:42 PM   #5
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Re: How I handle my Fibro!

I'm not sure about the Abiliy, but I know it's for bi-polar. I have an appt coming up and will definatly check it out!

 
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