I think I have Fibromyalgia, what do I do for it? - Fibromyalgia Message Board

TheMamaLisa · 06-23-2006, 12:27 PM

For years I have been having very odd symptoms. I have arthritis type pain in my knees especially when the weather changes. Have chronic back pain through the shoulders up through my neck. I get dizziness, nausea nda vomiting. I am extremly sensitive to smells. My arms go numb and tingle. I have an overwhelming sense to sleep. Everyday is battle just to get out of bed to do anything. I get alot of charlie horses, muscle twitches in my calfs and arms. I also feel like I am in a constant fog. I also experience a burning sensation on my skin but no rash or irritation is visible. I have had MRI's of my head and spine, blood work and just about every test you can think of. They are all normal. I am now scheduled to see a rheumatologist on Monday to see what they have to say. However when the appt was made the woman stated they dont treat fibromyalgia but could diagnosis it. So if i do indeed have it what are my treatment options and what kind of Dr do I see?

elmhar · 06-23-2006, 07:39 PM

Hi MamaLisa,

The Rheumie doc can help rule out copycat autoimmune diseases that resemble fibro. That's impt., because fibro is a diagnosis of excluding other possible causes for tender points, muscle pain, and fatigue.

Some people on this board have had help from their Rheumie doc. Others see neurologists, or pain specialists. Some work with GPs, others with internal med specialists. I am currently working with a naturopath after having burned out on MDs, and I think there might be a few other folks who have had that experience.

Hang aroung this board & you will learn there is no one treatment that is universally helpful for fibro. Try this treatment, try that one, see what helps.

Are you the same person who recently posted on the Autism board? I must remark that in all the yrs. I've spent at local autism support groups, I've been amazed at the high frequency of fibro & autoimmune diseases like lupus among Moms of kids on the spectrum. It could be the stress, but I wouldn't be surprised if researchers find that there's a connection -- perhaps a compromised ability of the body to eliminate toxic stuff -- that connects fibro Moms & their Autistic kids. If I got the wrong person, please forgive that last remark.

Best wishes.

TheMamaLisa · 06-23-2006, 10:43 PM

Yes its me,lol. Our family is the one with all the issues

Just wait in the morning it will be somthing new, lol. I am 26 and already going grey!

geminigirl43 · 06-24-2006, 01:10 AM

Quote:

Originally Posted by TheMamaLisa

For years I have been having very odd symptoms. I have arthritis type pain in my knees especially when the weather changes. Have chronic back pain through the shoulders up through my neck. I get dizziness, nausea nda vomiting. I am extremly sensitive to smells. My arms go numb and tingle. I have an overwhelming sense to sleep. Everyday is battle just to get out of bed to do anything. I get alot of charlie horses, muscle twitches in my calfs and arms. I also feel like I am in a constant fog. I also experience a burning sensation on my skin but no rash or irritation is visible. I have had MRI's of my head and spine, blood work and just about every test you can think of. They are all normal. I am now scheduled to see a rheumatologist on Monday to see what they have to say. However when the appt was made the woman stated they dont treat fibromyalgia but could diagnosis it. So if i do indeed have it what are my treatment options and what kind of Dr do I see?

I to have fibromyalgia for 14 years and was just diagnosed 2 months ago with TOS.All of you're symtems and things you have said sound like they could be either i have all of those symptoms plus sore muscles around heart and sore breast bones.You need to see a neurologist to discuss TOS and talk to your doctor about fibromyalgia,i was diagnosed through a psyiotherapist,and no it is a very hard thing to diagnose but they seem to be finding it easier lately to actually diagnose fibromyalgia now that it is more commonly known.Write if you have any more questions and i will try and help you!!!

TheMamaLisa · 06-24-2006, 08:57 AM

I am not sure about TOS. I had EMG studies and they all came back normal. Would that be the case in TOS? Thanks for the input!