Re: Nancy Jones a reply to your question!
Thank you so much for the detailed response. I'm sorry to hear about your grandmother, it's sad that doctors didn't know then as much as they do now. However I feel there is a long way to go, since they still are unable to diagnose so many things. Fibro and CTD primarily.
I go to a Fibro doctor who said that a test is currently being developed to test for Fibro and it will most likely be in the form of a spinal tap - yikes! Not sure when it will be available but it will be interesting to know how many people it weeds out from a Fibro diagnosis. Then, what are those people to do that don't test positive. Back on the doctor merry go round.
I am doing fine, some days are better than others. Most of my pain feels nerve related, not flu-like or muscular. I don't have any problems with sleep or energy. I'm currently taking Cymbalta which has helped a little. I really want to focus on exercise however time is the issue.
Take care and hope you are feeling a little better!