justme1972

Hello. I am a 34 year old woman who is just exhausted from tying to figure out what is going on here. This has been going on since I had my first child 3 years ago and while most of my symptoms point to MS, I am lesion free and my GP and neuro feel it is not MS, so Fibro has been mentioned. I will try to be as brief as possible.
March /2003....3 weeks of pins/needles, anxiety,weakness(percieved only). Had MRI of brain and spine, evoked potential, etc and all was clear. DX's with post partum and post traumatic stress caused by severe trauma experienced at birth

Symptoms free until.......

July /2005..........no tolerance to heat, glare really bothered me from sun, chest pains, severe constipation for a few days, repeated episodes of thrush(oral)
August/2005.......a few days of fatigue like I never felt before, just tired in every possible place, brain fog, hard to catch breath sometimes, hot flashes

September/2005
-left eye starts twitching(eyelid) lasts a week, followed by....
-3 weeks of eye pain in left eye
-pins/needles, electrick shock sensations in legs , arms, hands, back, etcetc
-pains in head
-weakness in right hand
-burning in feet
-flu like symptoms-
-burning in spine alternating with numb sensation
-weakness in lower legs although still able to fully walk and function

Symptoms went away after a week, they waxed and waned and spread the entire time, never lasting more than a few minutes here and there with exception of eye pain

-Symptoms came back in october after a cold

November/2005...saw neuro who has Ms herself. Shesaid based on my symptoms she was pretty sure I had MS and that she would run some tests and start me on meds in january.

- All MRI's came back negative for lesions so receptionist called and said i didnt have to return. Couldnt even get a follow up appt.

Have suffered with bouts of these symptoms, a week here, a week there. Some days none at all, some days a whole day of tickly feet, parathesia(sp0 in feet and hand etc

The worst symptom has to be theatigue, it is truly dehabilitating and with a 3 year old and a 21 month old quite difficult at times to cope

My Gp wont send me anywhere else because he says it's not MS(although there are people who never show lesions). He says it's chronic fatigue or Fibro, which I hear can be the cop out for docs who are tired of looking.My balance can be off at times(not severely or noticable0. I get growing like pains in my legs and arms. Carpel tunnel pain in my wrist off and on. No pressure pain points that I know of. Just a general feeling of unwell. I seem to get these episodes after a few days of feeling fluish. I have had about 10 since september/2005. I have been tested for Lymes, celiac, HIV(I had many transfusions with pregnancies), thyroid, you name it. All fine.

So, I know you are not doctors but are experienced in all this stuff. have any of you with definite fibro experienced these symptoms. I just feel so helpless. It's it's fibro, then i will start to help myself deal with it, but teh fear exists that if it's MS I am sitting here like a sitting duck with no help from the medical community, and my worst fear is it progressing with me not able to help it, especially because my babies are so young.

Anyhow, if you got this far, I truly thank you for your advice.

Lost in limboland.......