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Old 07-12-2006, 11:07 PM   #1
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Fibromyalgia

i received a head injury which brought on fibromyalgia and nerve damage.
i suffer intense burning throughout my body and muscle spasms around the
clock, my doctor doesnt want to know me and i see a physchiatrist who
is much the same. i dont know what to do and am suicidal. its been 10 months and i am no further ahead. i take 2mg of valium at night for the
muscle spasms is there anyone who can relate to these problems or has
advice on medications.

 
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Old 07-13-2006, 09:08 PM   #2
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Re: Fibromyalgia

Dear Sue2, Hello. I am sorry for your problems. My heart goes out to you. I also suffer from Fibro. I have muscle spasms always. Although I am in pain I can no way compare to your head injury or your pain.
One thing I can say is PRAY! That is the one thing keeping me happy. I am in the middle of a terrible flare. It seems we are all alone, hu? Today I was feeling so sorry for myself. Took my kids swimming and could only sit by the pool. Whcih husrt as well. Usually I am racing them in the water ect.
Please don't say your suicidal! This will get better! How do you know you won't feel much better next week? If you take your life you won't have tomorrow!!!!
Just take it one day at a time. You should tell your gp your thoughts and feelings. Maybe he can help.
Bluelakelady says she went to counciling to get her through. And she says it was the best thing she did.
Please let me know how you are doing.
Deena

 
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Old 07-14-2006, 11:27 AM   #3
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Re: Fibromyalgia

Hi there, I got post traumatic fibromyalgia from a head injury in October. It sounds like you need to seek out a neurosurgeon or neurologist that is well informed about tbi. I was fortunate to have a good doc, good psychologist, but terrible neuro and neuro psychologist. So the last 2 are gone and I am look for another neuropsychologist to reevaluate me. My last 2 say I am just tired and depressed. Newsflash, I have had depression for years and duh, a head injury makes you tired and causes pain. I have developed tmj, fibro, myofascial pain syndrome, exhaustion, chronic pain, chronic headaches....etc. from my head injury. Sweetie, you are NOT alone!!! Immediately start looking for a new doc trained in tbi! Good luck, and I hope you get the help you need and deserve.
~Mim

 
Old 07-16-2006, 10:36 PM   #4
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Re: Fibromyalgia

Dear Mim, thankyou for your reply. I live in Perth Australia. I also have TMJ
I have since found out it is commonly a first symptom of Fibro, I have had it
for 3 years. Ithink you are right to ask for other opinions,nuerologists ect
and I will also Sorry but what is tbi.

thanks, people over here dont even acknowledge Fibro.

 
Old 07-16-2006, 10:43 PM   #5
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Re: Fibromyalgia

Dear Deena, thanks for your reply. You are right I know about one day at a time, but both my hips feel like they have been hit by a sledge hammer.
I live in Perth Australia and over here they dont even think Fibro exists.
Its a real battle. I am a bit of a hermit , its nice to have contact.
I'll keep in touch. thanks. sue2.

 
Old 07-17-2006, 01:27 PM   #6
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Re: Fibromyalgia

Hi Sue, sorry, tbi stands for traumatic brain injury. In my case it is considered a mild tbi for the last one b/c I did not lose consciousness. I have had a total of 6 brain injuries over the last 25 years ( a very active and rambunctious child) 2 from tree falls, 2 from car wrecks, one from running through the house and slipping on papers and cracking my head on a wooden trash can and then a wooden floor, and the most recent landing backwards at an angle on a tile floor. The irony in all of this, my neuropsychologist and neurologist just think I am depressed....ha, the other gazillion docs think I have permanent brain damage. Either way it sucks...lol. Hope all that extra info helps.
Mim

 
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