Hello. I need some help. I am 25 years old with a 2.5 year old. I found out about 2 months ago that I have fibro. I have been in pain for over a year now. I can't take that drugs they want to give me because I have a young child. Over the counter doesn't work anymore. I can't keep up with my daughter or my house work. I am always tired and in pain. Can anyone please help me?
Unfortunately, I don't think anyone can guarantee that Med X or Alternative Remedy Y will work for you. There's a lot of trial & error in finding what works for any given individual with fibro. A few people luck out on the first try, but most of us have had to work at it.
Have you been to your doc recently for Rx med or referral? While there are some meds that pretty much zonk you out, some of the newer ones to try, Lyrica & a dopamine agonist I can't recall the name of, are not as sedating.
If sleep is interfering with your healing, many people find Ambien quite helpful.
Effexor has its following here too; it helps with depression, is energizing, and in some cases (not all) helps with pain.
I'm not pro-medication for myself, because I've had adverse reactions to many meds over the years, however, many people on this board have had to try a number of meds, and more than one doc, to find something that works. I'm not convinced that the conventional MDs are that much more successful than the alternative practitioners, but again, YMMV.
Are you confident that autoimmune, endocrine/hormonal, & low-grade infection have been thoroughly tested for & ruled out? Those issues are all common contributors to fibro pain. Even something as simple as a new BCP can throw hormones out of whack & up the flares.
I found a lot of hope, and practical help, in the book From Fatigued to Fantastic, by Jacob Teitelbaum, MD, Director of the Annapolic Research Center for Effective FMS/CFS Therapies. This doctor is himself a fibro sufferer as well as a fibro specialist. The book contains over 400 pages of thoughtful commentary on many different approaches to treating fibro. I found my first copy at the local public library, but later purchased it for my own personal reference.
get elizabeth vliet's book -screaming to be heard. she talks about fibro pain and the hormone connection. I had done everything else. going on estrogen worked for me, solved almost every pain problem i had.
On another thread people were saying that their specific-area pain was greatly helped with A) trigger point injections B) lidocaine patches C) nerve blocks. Some of these are more commonly provided through pain clinics. You might ask your doc to refer you.
Hi there! I have a 4 and 6 year old and understand about not wanting to be zonked out on meds. But also my gp (who knows zero about fibro) told me not to be such a marter. sp? ANyway I have founs somehwhat of a happy medium. I too have terrible lower back and hip pain. Somedays it brings me to tears. And ruins the quality of my life.
In the book Fatigued to Fantastic he writes that it is ok to take meds for the pain if herbal rememdies do not work.ANd do whatever it takes it get deep sleep with out being sedated the next day or hung over.
That made me feel better. I realized I could play so to speak with the meds until I found something that made life more bearable.
I'll tell you mine. But your will have to be cutomized to fit you. I other words what works for me will make some sick ect.
I take ultram or the generic really tramodol. Every six hours or more if needed for pain. The first day I felt drunk on it. After that I function normally. I try not to drive. But on one it shouldn't bother me at all. I can keep up the busy schedule that my kids and I are on.
For sleep I have Ambien but trying to figure that one out. I take Zanax or Exedrine pm depending on how tired I am. Unfortunately the Exedrine is not working very good anymore. Fibro interrupts sleep so bad. I usually need the Zanax to make me go to sleep. Last night I took 2. Slept pretty much thru the night with no hang over.
Others take anitdepressants. I have some but am afraid to take these yet.
Sorry this is long. Just trying to help. Don't know why I need h elp too!!!!
Hope you feel better
I feel so sorry for you gals who have this stuff with young children. I have had all this mess for over 20 years, inc the back pain and was just dxed with it about 4 months or so ago by a rheumy. However, I had figured it out anyway I had it so long and had gone to the endo and got my thyroid in order first.
Luckily, (?) or so it happened in a time in my life ( as with many others) that were under alot of stress at that time when it all started. I didn't have young children though but I did did have 5 older children and did home childcare for young children.. I know how hard it can be. At that itme the dr's knew nothring and just said I had EBVS (cousin to mono shall we say and now they say that it may be one of the causes for FM/CFS.. It never went away and the fatigue continued and went into alot of pain. Now I was dxed with FM/CMPS and arthritis in the neck. I have also just started taking Physical therapy which has been of some help , at least for awhile and esp with my flexibility. You might want to try some of that also.
I have also had pain in my back (genetic, I think as my mom always complained of it) but it seems like it is almost always there. Can't sit or stand to long, or sit either. When I get up I am stiff as a board and can hardly stand up. I'm a mess (-:. I'm 65 and sometimes feel like 85 or worse. One of the curses of FM they say is most people look good and of course feel like ____. I have had many people who say I look so good and not my age but that doesn't help my body any. It does help me feel a little better though in in some way but not in my body, for sure.
Have you ever tried any of the natural things that might help.? Like Malic acid? and or with Magnesium . You might give them a try. I am just starting on them slowly to see if they might do something., Prohealth has some things that might help you but you just have to try them. They are also not that cheap either. However others swear by many of them.
I am taking flexeril and Klonopin (generic) at bed time which does help me sleep. The doc gave me generic Darvocet which I haven't taken yet. OTC stuff does nothing either. Hope some of this helps you and info from everyone else. Everyone is so different with this stuff and the medications or natural things that help some and not others.
Don't give up. Give yourself also some time for yourself, even if you have to lock the bathroom door and take a nice hot bath. Probably will be good after the kiddos are in bed. Try not to shut yourself dow and do as much as you can and some things that you enjoy. (BEEN THERE WITH THE PAIN AND THE LITTLE KIDDOS). Keep in touch. !
WM13, welcome to the board. Getting the proper sleep is so very important, I know with little ones it may be hard for you to take a sleeping pill like ambien but perhaps a muscle relaxer or something that can help get a deeper sleep. I take a 10mg ambien a 25mg OTC benadryl and a 10mg baclofen (muscle relaxer) for sleep and during the day I take another 10mg baclofen. I take prednisone for joint pain from CTD so don't do much else for fibro pain, just try to exercise and stretch and get massages when I can.
The Fatigue to Fantastic book is really good, I do take vitamins and the book has a nice list of ones that can be helpful. Good Luck!
Thank you everyone. I really thought I was the only one going through this. With so many people telling you its in you head. You really start to think that. Thank you so much. I have started taking sleep meds at night and that is helping I just have to find ones that don't slow me down the next day.
Keep looking for the proper sleep meds, they really do help me. You are definitly not alone, come here anytime you think it is all caving in on you and these wonderful people will find support for you.