Hi.. Im new to this forum.. hoping to get some answers.. Ive been
suffering with pain througout the entire body for several years, past
couple of years, increasingly more... I also have headaches, weakness
on the leftside, vision problems, what seems to be some sortof tremor
in the night while sleeping... fatigue, insomnia, irritation in mouth, (ulcerated tounge, dry mouth) heavyness in arms, tingling in feet and hands, lower and upper back pain, pain in finger tips... Ive been to neuro, had a MRI about 1 half years ago.. it did show small leisions on brain.. Had nerve conducting test.. shows mild neuropathy on left side...The Dr. in the beginning had thought
to be MS.. but now is saying that he believes it is Fibromyalgia .. I have done
reseach on Fibro.. and I have not seen where anyone has had leisions on brain.. Has anyone heard of this.. or should I find myself a new Dr.
I also have all the symptoms you describe, right down to the pain in the fingertips ( i also have numbness in them, with pain UNDER the numbness), and even the irritated tongue. I was also found to have nueropathy, but like caronp25, i dont have lesions in the brain. At least i DONT THINK i do, come to think of it, i am not sure if ive had an MRI done on my head.
I too have lesions in my brain found by MRI. A neurologist ruled out MS and wanted to attribute the lesions to migraines, but I would not classify my frequent headaches as migraines at all.
I read in a book called "Chronic Fatigue Syndrome, Fibromylagia and other Invisible Illnesses" by Katrina Berne, PH.D. that this is a very common finding in people with Fibromyalgia. This book also details many other "abnormal" findings (lab results and the like) which are frequently found in Fibro patients. I also found out that my inexplicable hypokalemia (low potassium) is another common finding in Fibro patients (as are many other nutritional and electrolyte deficiencies). Good reading.
I would suggest that you be evaluated by a good rheumatologist as well as another neurologist just to cover all bases. Lupus can cause all of these types of symptoms as well. And can also cause some of the white spots on MRI.
I have a question about the night time tremors you mentioned. Does this happen just at the point you are drifting off to sleep? And does the tremor seem to be all internal? I mean you cannot visually see anything tremoring , it's all inside your body? I have had this type of thing in the past, but thankfully not for about the past 6-8 months. It used to happen every night. Never found out what it was.
Just wondering if this is the same thing that you experience. Feels like a freight train is going through your body.
Let me know if you can..thanks !
Good luck on finding the cause of your symptoms..I know the frustration of it all also !
Hi.. Thanks for all the feedback.. I am still at a lost for what is going on.. I have another Neurologist appt coming up in Sept.. If I dont start getting some answers soon.. I am going to ask for some one else.. I have in the past
been tested for lyme and lupus both neg. results..
Anxiousinnj- in answer to your question about the tremors.. Yes.. it does
appear that it is shortly after I fall asleep.. I awake as if my entire body was shaking .. but when awake you can not see movement... I feel it really strong in my head.. This can happen several time a week and at times if
i lie down just to take a rest in the day time.
I am very fitigued.. so time to go.. thanks again to all of you...