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Old 07-31-2006, 06:12 PM   #1
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jayneellen45 HB User
finally a answer

Hi everyone and thank you for listening.For several yrs I have experienced fatigue,odd sensations,pain,muscle spasms,charlie horses,stiffness and tightness every where!
My muscles are like rocks,yet weak.My legs hurt especially my thighs.My neck and lower back,arms...etc....

I was referred to a M.S clinic where I have been seen for 2 years.Yet no firm diagnosis.Several Mri's showed a brain lesion 1cm left frontal lobe.Also 3 herniated cervical disks,2 thoracic,and several lumbar.Nerve compression at L4 and L5.Stenoisis and spondyloisis.
Neuro surgeon spine specialist wanted to do a 3 level cervical fusion.My family DR suggested I needed the surgery after I showed her the myelogram results.I asked the ortho who treated me for months as well as the family DR to refer me to a rheumy.Both declined...saying there was nothing a rheumy could do for me!

My recent visit to the M.S clinic...still no definite.Gave a copy of the myelogram report and the DR referred me to the Emory Spine Center in Atlanta for a 2nd opinion.Today my eyes were truly opened!I went to the spine center.The DR took alot of time asking questions and examined me.
When I layed on my stomach he pressed certain areas and I was in agony!
He was sure I suffer from fibromyalgia.He referred me to a rheumy.He did say that it could be a few more serious conditions that the rheumy would have to rule out.Any one know what that could be???
Seems Fibro has taken its toll on me...and I am glad to finally have a name or more than a probablity of what is wrong with me!
Anyone with similair experiences?Any input and support would be appreciated Jane

 
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Old 07-31-2006, 09:27 PM   #2
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Join Date: Jul 2006
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shortymac HB User
Re: finally a answer

I have been through several drs. and they have told me that I show a few lesions on the MRI but that if I have MS it is very mild. The problem is that the symptoms don't seem mild and I have even had to quit work. My symptoms sound just like yours. I have just been seen at Mayo Clinic and received the same dx as before. I am going to ask my dr. about fibro - I thought I was crazy - this has been going on for over 20 yrs.

Good luck with your dx and any treatments you find.

Jackie

 
Old 08-02-2006, 06:12 AM   #3
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Join Date: Jul 2006
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la_in_fla HB User
Re: finally a answer

Quote:
Originally Posted by jayneellen45
He did say that it could be a few more serious conditions that the rheumy would have to rule out.Any one know what that could be???
When my Mom was diagnosed with FM, her doctor ran tests to rule out Lupus and something called Poly Myalgia Rheumatica. She didn't have either, but the doctor just wanted to be on the safe side by making sure.

Good luck!

 
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