Hi Claire, sorry to hear your having so many problems. But, it sounds like you are on the right track with being referred to a Neurologist. The best thing to do is to keep a list of your symptoms & duration each day so that you can discuss them during the appointment. Plus, it really helps when filling out all the paperwork. As far as questions to ask the Neurologist - the first time I went to one with simliar symptoms - it was more of a my describing the problems I was having & what making sure he understand what I needed. For example: answers, sleep, manage-able pain & being able to walk steady. Needless to say he did a lot of tests to rule out all other conditions such as M.S..
Good luck & keep us posted.