I haven't really updated latley so here goes...
My Endocrinologist dx me with Hashi's- not meds at this time
My Neuorologits has no dx but ruled out ms, nerve damage ( mri of brain did show unusual shrinkage, but he said not to worry) Neurontin 900mgs a day. This has slightly improved the muscle twitching and tingling hands and feet.
My cardiologist dx me with MVP and I am on Topral
I see a back specialist next week. And tomorrow see a new general doc. As my current one is a waste of time.
He dx me with fibro but refuses any symptom to be related to it.
I have had one remission that lasted only days. And instead of being happy for them was oddly curious when each step didn't hurt. It was weird. Then I wake up and it is all back. Next remission I will enjoy!!!!
Some days (like today) I hurt all over. ANd may be a little depressed. As I wrote in an earlier post I need ssi but no one responded. And my Grandma just died. But life is good and I should be happy. It is just hard when you are in so much constant pain.
My husband has finally learned to accept this fibro and not be angry at me or life. It was really hard last Feb thru July. Didn't know if we would make it. But we finally got it together. He is actually understanding this miserable dx better. He even hollored at me to see the news the other night when they were talking about fibro. Of course I missed it!!!!!
Really all is good. I am more at peace. Not feverently searching for the miracle cure anymore. Of course I know you have to be in charge of your health care. And have a plan. But regarding fibro, acceptance is the hardest part.
I wish all of you luck and peace in dealing with this disease. Here's to more remission day!!!!!!!!!!!!!!!!!!
Deena
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