hey bosanova..........hmmmmm, sounds like me. I too have FM, and i think that it's a symptom. but neuro is going to do an EMG on my legs as he thinks that i may have some type of neuropathy. as i have the constant leg pain, numbness, weakness......which is also in my feet as well. to walk alot kills me.
my rheumy told me whatever he could do for me, he will. he will give me time off, write an order that i can only work no more than 5-6 hours a day, as i work 12 hour shifts and on my feet majority of the day, a note NOT to lift no more than 5lbs., as he said to me, how can you get any relief working like that, then going home to tend to 3 kids.....17, 12 & 3 1/2. It's very hard, but i manage........i have too!
they have scheduled my EMG yet, but when it's done i'll let ya know of the results. neuro is going to be there when the tech does the test,,,,he wants to give me results right then. doesn't want me to have to wait.
Thanks for the reply. Sounds like you have a lot on your plate. It can be tough to manage the pain along with an active life, eh? At least your doctor sounds very involved in your care, which is great. He seems compassionate.
I can't really afford any specialized care right now, so just have to handle things as best I can.
I can say that when I take Elavil for pain, it makes a significant difference in the way I'm feeling. Good to know there's something out there that can help.
But finding more solutions to the many problems that go along with this disorder would be nice.
what is a emg? i have fibro, just found out 2 months ago,although i've had pain for years. my pain is getting worse,it involves more joints now. i feel like i cant walk sometimes.my hips, knees and feet really hurt. i have two young kids and resting is not an option for me.my liver enzymes are elevated so i cant take any meds yet, i have an appointment with liver specialist this month. i tried to do p/t but felt like it made me worse. i have an mri scheduled next week for my neck. dr is checking for ms,lupus too,(my ana was positive)sometimes my fingers go numb. how do you do it? i try not to complain about my pain, but it has gotten out of control, and it affects my normal everyday activities like walking.. at first a dr made me feel like it was all stress related and it was all in my head, wanted me to take an anxiety med, (got rid of him)so i switched drs two years ago, and she is helping me find a dr who specialzes in fibro.any info that you may have would be great.i guess i'm not alone with this disorder...:
No Penny, you are not alone! I, like many others know how you feel.
It's very hard for me, with working FT and having 3 kids, being a single parent. But i take one day at a time. My meds ease up on my pain somewhat, but not completely. Rheumy just started me on Neurontin, have to work up to higher dosages, so hopefully it will help.
My hands and fingers are numb all the time, so are legs and feet alot, my left side is all the time. Hate it. I even asked rheumy about handicap parking permit, but said they won't give it JUST for FM. so i'll wait til after my other tests with Neuro, then i'll ask neuro. what's a few more weeks....huh
my 1st neuro said it was my Cervical Spondylitis....medication or surgery, and that was that. took myself to neurosurgeon, who from there referred me to MS Specialist. as the neurosurgeon said there was nothing that required surgery.
It took my a long haul to get to my rheumy and this neuro. But i think i found a pair of AWESOME doctors. They listen to what i have to say and how i feel. and neuro is determined to get to the bottom of my problems, as he knows how i'm feeling is for real and not in my head. He told me this!
The best doctor to go to for FM are a Rheumy, they specialize in that. a neuro can also help you.
Good luck to ya! I hope you have as good of luck as i did with doctors.
Thanks for getting back so quickly. i still have a long way to go, my dr is doing all these test to help find out why i'm having so much trouble walking. lately i have had some periods of very little pain(mostly late morning)but by the afternoon the pain will flare it's ugly head. it seems very unpredictable,i want to be involved in my kids activities, and i never know if i can. also is being tired one of the effects from fibro? and headaches? i tried to look up on the computer some info, and there seems to be alot of stuff out there. thats how i found this site. so far this has been the most helpful.I still dont know what a emg is? is that the test that they stick needles in different areas to test nerves? i think thats what i had on my hands, not sure though, my mind is so forgetful these days,i do remember the needles very well! see i cant take anything to help untill i see a liver specialist(next week) i have a problem with my enzymes being elevated and my liver is fatty, so i cant take any meds , not even tylenol. i do cheat sometimes when the pain is really bad with naproxin. i was on plaqinel(not sure of the spelling) and the dr took me off it when my liver started to flare up. I know how you feel about the parking thing, every step i take can be painful, not looking forward to xmas shopping. i can picture myself in one of those little carts you see on t.v. in a few years or sooner. now whats this about flare ups? is that why i have severe pain one day and very little on another? i think thats why i feel like i'm going crazy, how can you have pain so bad you cant walk one day and be fine the next day?orry for going on and on, it's just nice to have people who understand what i'm going thru. not just a dr who treats my symptoms.
yes, chronic leg pain and achiness can be part of FM. I have gone to every kind of practitioner for years without much relief. I can say pretty surely that pain meds don't really help. The only med that has helped is one that lets me sleep (Restoril) so that my muscles can repair themselves at night. Also, stretching is very important, preferably after exercising, but if you miss a day exercising (yes, you must exercise, even if you hurt), then stretch anyway. Yoga is very good ( a gentle, beginner class). Vitamin and mineral supplements are good -- eating a healthy diet is very important. I recommend reading Dr. John Sarno's Mind Body Prescription and Divided Mind. Good luck with finding what works for you.