Well it's been 3 years now since all of this pain started. Six months ago the Rheumy said "I think you probably have Fibromyalgia." I thought, well there is another garbage can diagnosis. I'm a 51 year old man. Guys rarely get fibro. Well I've done everything that the docs asked. I've asked for more and more tests. I've even been to the shrink half a dozen times. Well Ladies. I Give.
I'm about to jump off of the diagnostic Merry-Go-Round. How do you know when it's time?
It just seems like there should be something that can control the pains without puting you in la-la land. It seems like you shouldn't have to constantly deal with the wild and ever-changing variety of pains.
You don't have to go on heavy duty narcotics to get the pain relieved.
I'm seventeen, so they've never given me any narcotics (except for one particularly excruciating migraine--vicodin once) and they shy away from giving me meds that can be addicting.
A lot of antidepressants are used for the treatment of FM. I've been on several. Some helped a lot, but had bad side effects, some not so much, with relatively no side effects. Just see what works for you.
Also, I've been put on a daily regimen of Celebrex. It's an NSAID, not as hard on the stomach as ibuprofen, and though it's not an overwhelming relief from the pain, it definitely helps. You might want to mention that--rheumatologists use Celebrex frequently. I take two a day.
It's better if you let yourself accept the fibromyalgia. The longer you deny it, the worse for wear you'll be in the long run.
Like you Radar1 I have been in denial about having fibro. Especially after my chiropracter, whom i really liked and trusted, told me she didn't believe fibromyalgia was a real disease. Also saying it was a "garbage can" diagnosis. She kind of discouraged me from seeking help,and said she could help me. Well, after 4mos of letting her work on me with no change, I decided to look into fibro on my own. And from what I read ,that diagnosis fit me to a T . I'm no longer seeing her, and I'm going to be seeing a rheumatologist soon. I'm tired of dancing around the diagnosis of fibromyalgia. I've been to a Holistic GYN ,thinking if I had the right hormone balance I would feel better. I've had tests run by my GP for R.A and Lupus,and when they came back negative he showed me the door,with an attitude it was all in my head. I saw an orthopedist because I had teninitis in both arms ,shoulders ,and bursitis in my hips,but thank goodness he told me to me to go see a rheumatologist. So now I'm ready to accept that diagnosis of fibromyalgia, deal with it head on. Whatever it takes to get some relief. Good luck to you . This is definently a disease that has no set treatments ,or cures etc. and is not well understood by many in the health profession. It's been a real journey for me ,but hopefully I'm coming to the part where I get some answers and understanding as to what I'm going through,and some help. take care ...Kat
Just curious, I had a really bad couple of days last week. I still work full time. 3 years to retirement.
Anyway, got up in the morning did the usual stuff and went to work. As soon as I got there I knew I shouldn't have been there. I just felt like I had run a marathon after drinking all night. I was just wiped out. So I told the boss I felt bad and went home. I could barely stay awake to drive home even though I had slept 8 hours the night before. I got home went to back to bed at 8:30am and didn't wake up 'til 2pm. I stayed up 'til 10pm and went back to bed and slept 'til 10am.
I've never had this happen before. Is this common with Fibro?
i get that way sometimes myself. i think that it is a way our bodies tell us that we need to take it easy for a while. fatigue is really a big thing with fibro also.
i still can't believe that after all these years that some docs still think that fibro is all in our head
we go through so much to finally get this dx and when i meet someone like that i don't even waste my breath or time.
they need to do the research.
anywhoo, just try and get the rest that you need and you should be okay.
what meds have you tried or are you on right now?
Effexor: Started taking about 10 years ago for ADD (it helps), also for Neuropathic pain. I have diabetic-like (but I don't have diabetes) peripheral neuropathy also.
Nortriptyline: neuropathic pain
Protonix: for severe laryngeal reflux
Lisinopril: Blood pressure
HCTZ: water pill for blood pressure
Aspirin Therapy: blood pressure
Niacin: High Cholesterol, I decided to go off of the statins just on the chance that it had something to do with the neuropathy. So far no indication statin induced neuropathy. So far the niacin doesn't do anything for my cholesterol.\
Just got out from the Rheumy.
She says that There is something "atypical" going on with me. The deal is, whatever I have is getting worse. She says that the only thing that is really solid about Fibro is that it is not progressive.
I'm scheduled for a Bone Scan on Feb. 20 and a Nerve Conduction Study on the 21st.
This makes me nervous. She said it was to look for inflamation. If there is inflamation She says it's not Fibro.
In my last post I said that I was going for a nerve Conduction Study and a Bone Scan plus blood work for inflamation.
I went back in to see my Rheumy and she said that I don't have anything out of the normal for inflamation. No Bone Cancer or anything else. The nerve Conduction Study was the same as 6 months ago. So my Peripheral neuropathy is stable.
She said that she was going to stand on a diagnosis of atypical Fibro.
She sent me to a pain management specialist afterward who said, "You don't have enough tender points. I don't think that you Fibro, You have atypical Chronic Fatigue Syndrome."
I asked why was it atypical and she said that since I have sleep apnea I can't be given a diagnosis of Chronic Fatigue Syndrome.
I get so frustrated with this. I've got Fibro, no I've got CFS, no its just CF, WHATEVER. I've been tested so many ways. I Give Up !
I'm Done with these Doctors. I'm just going to live my life, take my meds, and see if I can start to live again.
Hello Radar. I am new here.
I am being treated for pain by anesthesiologist. I haven't been diagnosed with FMS but am being treated for fibro symptoms. He doesn't care whether a formal diagnosis is made or not. From his findings, the treatment I receive is the same.
Living my life on narcotics was not something I was willing to do. That is what my GP kept pushing. When I finally got to see this doc, it was a totally different attitude. He is 100% behind me in trying anything but narcotics. Yes, somedays the pain is so bad I rethink my conviction about narcotic free.
I take an anti inflamatory(meloxicam), amytriptyline and lyrica to help with nerve pain, effexor for depression. I also get monthly trigger point injections and go to the hospital once a month for an infusion too.
I also push myself to do aqua-fitness. It isn't always easy to convince myself I feel up to going but at least I am glad I get through the class when it is done. It helps decrease the stiffness for me.
You and your doc will have to figure out what works for you. Good luch & keep us posted.